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I'm Done
#1
Posted 07 February 2013 - 08:13 AM
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#2
Posted 07 February 2013 - 08:28 AM
Just wanted to let you know I was wrecked like you after my gluten challenge. It took me a few weeks to start feeling better, once gluten-free. My sugar levels were a mess. I found I needed to eat good nutritious foods and lay off the junk. I have been better than for years now.
The challenge was hell for me, but my silver lining was that it convinced me never to eat gluten again, and that my problems are real. It convinced my GI to give me a non celiac gluten Intolerance diagnosis after my genes were negative.
Hang in there, be kind to yourself
Mw x
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#3
Posted 07 February 2013 - 09:15 AM
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#4
Posted 07 February 2013 - 09:43 AM
Thanx for the encouragement. My problem is that all I crave now is carbs and sugar and im still losing weight. I went low carb for a while and felt immensely better until I started a more physically demanding job. Since I started it I cannot stay away from carbs and sugar. I still think I have candida and I dont have hope it is conquerable. It seems it is a lifelong thing and I know that is not something I cant do for a year let alone a lifetime. I have alot of money on a credit card that I am trying to pay off from purchasing my own kitchen equipment to try and expand my diet without making myself sick. After that I guess I may try at getting more tests done. Then thanks to Obama I have a delimma of having to pay for health insurance premium and deductible I cannot afford by the beginning of next year. I have had every food allergy test done you can imagine. I feel like I am playing slots with my life and I am running low on tokens
Razzle.....have you been tested for diabetes? You say that you are eating carbs and sugar yet still losing weight. That can be a symptom of diabetes. I am sorry to have to bring that up but you sound so miserable....I feel bad about that. We have all been there and it is really hard to remain positive. It doesn't help to have to be forced to pay for health care by the government......I totally get that. I do have insurance through my job but it isn't that cheap for group policies either. This whole health care thing is gonna blow up and it's crazy to force people to buy into it or be punished. Like that doesn't add a lot of stress......
Hang in there because if you are feeling bad because of a gluten challenge, it may take a while for everything to calm down. But you already know that. Take care of yourself and I hope you feel better really soon.
#5
Posted 07 February 2013 - 10:14 AM
My symptoms include: abdominal swelling and extreme fatigue, brain fog, itchy and burning, sore scalp, pain in the back of my head (like someone hit me with a baseball bat) and anxiety, achey joints, inability to fully exhale due to sharp pain in upper left quadrant of abdomen. Citric acid causes severe symptoms of all these as well as making me stutter. I will have problems putting the words together on my lips though i can in my mind. Gluten only causes abdominal swelling part, anxiety, and fatigue as well as bladder incontinence.
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#6
Posted 07 February 2013 - 10:33 AM
Can you satisfy your need for sugar by eating naturally sugery things? Like an apple with a little honey drizzled on it?
Carbs and sugar end up being the same thing in the long run (if i remembered my Bio lectures correctly).
What are you currently eating? Are you getting enough nutrients in your diet? Sometimes we crave and want something more when we're not getting enough of.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#7
Posted 07 February 2013 - 10:33 AM
Have you looked into/been tested for SIBO? I've heard that many people who continue to develop food intolerances, to the point of losing many whole, good, and nutritious foods, have had SIBO. Abdominal bloating, cramps, pain, "fullness" and weight loss are just some of the symptoms.
HUGS,
Laura
Gluten Free 2/12 - Preliminary diagnosis from GI: "probable Celiac" 2/13
Sorghum Sensitive 2/12
Oat Sensitive 9/12
Double DQB1*0602
Don't bend; don't water it down; don't try to make it logical; don't edit your own soul according to the fashion. Rather, follow your most intense obsessions mercilessly.
~Franz Kafka
#8
Posted 07 February 2013 - 11:14 AM
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#9
Posted 07 February 2013 - 11:26 AM
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#10
Posted 07 February 2013 - 01:39 PM
#11
Posted 07 February 2013 - 02:06 PM
You need more good fats- LOTS of fats - from coconut milk or oil, lard, bacon, vegetable or olive oils, nuts, avocado, etc, and some natural carbohydrates in the form of starchy vegetables and fruits, if you are going to eat like this ("sugarless") and have half a chance of succeeding. Can you do legumes in the form of peanut butter or very well drained and rinsed canned beans ? Sweet potatoes ? Squash ? One of the most filling things to eat is canned pure pumpkin puree mixed with canned coconut milk, it can be savory for a soup base, or sweet for a breakfast, and sometimes this mixture baked with eggs to form a custard. Can you tolerate some form of stevia for a sweet taste ? What about agave or honey ?
You need to get something else in there at breakfast. A pure rice first meal = not good. Add some fat to that, somehow. Can you puree part of a banana with some green leafy vegetables and/or parsley and some berries for a smoothie ? What about a baked sweet potato with some almond butter ? What about leftovers for breakfast ? Cannot bear the thought of fish that early? What about shrimp or chicken? You can take some cooked brown rice pasta, and mix it up with a fast homemade thai- style peanut sauce and coconut aminos and top it with some shredded vegetables.
You are hungry for micronutrients, and that is why you are having such cravings. The body interprets needs "nutrients" as basic ferocious hunger for sugar. Most regular people feel this and try to satiate it with highly processed "white" carbs such as white rice, white bread, white potatoes ( I am a big fan of eating some fat if you eat a white potato, such as frying it, so it slows the whole processing thing down) and bad things like white flour pastries, cakes, cookies, etc made with lots of white sugar. These things are processed quickly and spike a blood sugar high (wheeeeeee
If you do go to using gluten free flours and baking ingredients, try using the highest protein ones you can find, and combining two or more of them for the maximum nutrition. For example, you can use brown rice flour instead of white, and add a seed or nut meal flour. A sorghum flour mixed with amaranth or buckwheat can make a good all purpose "breading" coating, for example.
Be careful with your buckwheat sources, you do know that the Bob's red mill brand is all oat cross contaminated, don't you ?
You can make a fantastic pancake/flatbread with just buckwheat flour and soaked chia seeds (and the other ingredients) - another way to add oil fat to your diet.
You can also tamp down the cravings by making sure you take a gluten free B vitamin complex, and a calcium supplement (not tums, try a calcium citrate) and some form of vitamin D and magnesium.
#12
Posted 08 February 2013 - 03:20 AM
Ditch the millet ! Ditch the millet ! Cross contamination city, and it can be as bad as oats for some of us.
You need more good fats- LOTS of fats - from coconut milk or oil, lard, bacon, vegetable or olive oils, nuts, avocado, etc, and some natural carbohydrates in the form of starchy vegetables and fruits, if you are going to eat like this ("sugarless") and have half a chance of succeeding. Can you do legumes in the form of peanut butter or very well drained and rinsed canned beans ? Sweet potatoes ? Squash ? One of the most filling things to eat is canned pure pumpkin puree mixed with canned coconut milk, it can be savory for a soup base, or sweet for a breakfast, and sometimes this mixture baked with eggs to form a custard. Can you tolerate some form of stevia for a sweet taste ? What about agave or honey ?
You need to get something else in there at breakfast. A pure rice first meal = not good. Add some fat to that, somehow. Can you puree part of a banana with some green leafy vegetables and/or parsley and some berries for a smoothie ? What about a baked sweet potato with some almond butter ? What about leftovers for breakfast ? Cannot bear the thought of fish that early? What about shrimp or chicken? You can take some cooked brown rice pasta, and mix it up with a fast homemade thai- style peanut sauce and coconut aminos and top it with some shredded vegetables.
You are hungry for micronutrients, and that is why you are having such cravings. The body interprets needs "nutrients" as basic ferocious hunger for sugar. Most regular people feel this and try to satiate it with highly processed "white" carbs such as white rice, white bread, white potatoes ( I am a big fan of eating some fat if you eat a white potato, such as frying it, so it slows the whole processing thing down) and bad things like white flour pastries, cakes, cookies, etc made with lots of white sugar. These things are processed quickly and spike a blood sugar high (wheeeeeee!) and then comes a blood sugar crash (and boom goes the dynamite
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). This sets up a bad cycle of eating "white things" - (as my neighbor calls them
) and wanting more and more of them.
If you do go to using gluten free flours and baking ingredients, try using the highest protein ones you can find, and combining two or more of them for the maximum nutrition. For example, you can use brown rice flour instead of white, and add a seed or nut meal flour. A sorghum flour mixed with amaranth or buckwheat can make a good all purpose "breading" coating, for example.
Be careful with your buckwheat sources, you do know that the Bob's red mill brand is all oat cross contaminated, don't you ?I am grinding the Burkett Mills (Pocono) cereal in a coffee grinder to get my own buckwheat flours. Buckwheat is technically a seed, as is amaranth. You can also try quinoa if you can stand the taste.
You can make a fantastic pancake/flatbread with just buckwheat flour and soaked chia seeds (and the other ingredients) - another way to add oil fat to your diet.
You can also tamp down the cravings by making sure you take a gluten free B vitamin complex, and a calcium supplement (not tums, try a calcium citrate) and some form of vitamin D and magnesium.
Very interesting. I rarely get cravings and when I do, I am always lacking in some nutrient. Like magnesium. I do use the Cron-O-Meter online often and run all of my food through it. I can then see what I am lacking and take more supps if needed.
#13
Posted 08 February 2013 - 04:47 AM
I just realized that my craving for junky sweets is gone. I loath them. I still am attracted to some fruits and starchy foods. I always combine any fruit with meals or protein. I hope you are able to absorb sugar from your food.
Diana
#14
Posted 08 February 2013 - 09:12 AM
Speaking of blandness, I have a real problem with tasting things except sweet and herbs. Why? beats me but I salt everything to death and pepper everything to death and that is why i get hypertensive and will literally burn my tongue and throat with all the spice. I think this is what had caused my salicylate sensitivity. Dont want to back down that path. I wonder if it is because of the thrush I had and how long it will take for the lack in taste to go away since my thrush has been gone a while. or maybe it is poor oral hygeine. I react to acidic liquids in plastic bottles pretty strongly. I have been brushing out my whole mouth with just baking soda for a while now.
I just cant help but think about nine months ago I was a normal person and now my immune system is playing tether ball with my health. oh i also do not tolerate luncheon meats. I have a slicer and still need to learn how to make my own deli slices at home, that will open a whole new world to me. Bacon and turkey slices and i have a sausage maker now.. It may not taste the same but it is something...
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12
You only get one life so make it count.
#15
Posted 08 February 2013 - 09:50 AM
I think I will just cough up the cash and get a bloodwork for different intestinal infection agents. I guess I gotta do what I gotta do. I am just afraid that it will be an endless and futile chase that only results in mounting debt.
I hear you on this!!! Even with insurance I still owe $1000 for all my tests last year. At least I did finally get diagnosed with SIBO recently and hope the treatment works. Sometimes you just gotta keep trying, but I feel your pain...
Diagnosed with wheat hates me 4/13
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