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I'm Done


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39 replies to this topic

#16 Razzle Dazzle Brazell

 
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Posted 09 February 2013 - 08:01 AM

Well that makes me feel better. I am at over two thousand because I had to buy all this kitchen equipment in an attempt to expand my diet by making my own of everything, condiments and deli meats hopefully, sauces and then just getting my own of things to prevent from getting sick using my mom's stuff. I guess it is expensive to set up a kitchen anyway let along getting weird things like food mills and sausage stuffer. I will be alright. I will find out what it is and get it fixed and I will have endured much difficulty and seemingly impossibility that I will be empowered to accomplish what I desire to accomplish in life.
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Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

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#17 AnnJay

 
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Posted 09 February 2013 - 11:55 AM

Yeah, I get discouraged sometimes too. Especially when just as I think I have it figured out and then I feel sick again. Blah. Since removing gluten 8 months ago I have also had to remove corn, soy, tomatoes, and chocolate. Dairy was already gone. It sounds like we are eating similarly, with meat and vegetables and a bit if starch thrown in. Quinoa sometimes, potatoes sometimes, and rice a few times a week. Cauliflower, parsnips, and other veggies are often starches for me.

And all we want is to feel good again. It's hard. I keep hoping that after a year or so I might be able to add something back to my diet. But I still get sick from the very occasional attempt to eat at a restaurant. And that is so discouraging! It is a daily effort to keep myself fed, healthy, and without cross contamination from my family. But, it is worth it!

Another consoling thought is the hope that medical advances will some day lead to easier dx and treatment for people like us.
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#18 Celiac Mindwarp

 
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Posted 09 February 2013 - 03:46 PM

Hey razzle, sounds like you turned the corner. Glad things are looking up :)
I got a lovely new purple toaster and bread bin about 2 weeks before I gave up gluten-free bread... It can be an expensive old time..
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#19 CommonTater

 
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Posted 09 February 2013 - 04:34 PM

I feel so depressed right now and I am resolved to give in and accept things for how they are meant to be. I get sick now anytime I have carbohydrates and sugars. It just progresses to more and more complicated diet. Well call me an addict or a bafoon but I cannot live my life with no carbohydrates and no sugars and you know what...I was not made to live without carbohydrates and sugar. In my current mindset, I am going to just do what I want while I can and enjoy my life as much as I can because I have found it impossible to stay away from sugar. I regret doing that stupid gluten challenge. I feel as though that three week period completely messed up my immune system and sent me on the path to hell. I just don't care anymore


Can you have Agave in place of sugar, that's what I use?
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After many years of suffering from Late Stage Lyme Disease I became Gluten intolerant and I'm extremely sensitive.


#20 JNBunnie1

 
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Posted 10 February 2013 - 05:25 PM

Razzle, I SO FEEL YOUR PAIN. It has taken me six years and dozens of changes to
reach a healthy state. I couldnt have tomatoes for over a year. I don't do well with beans,
red or green peppers, spinach, or citrus. I am now on the lysine diet for 'herpes' thanks to
being infected with cold sores shortly before breaking up with my cheating ex-boyfriend, which
means little to no nuts, which I was using nut butters to bake with a lot before.

The stress of the (horrendous) breakup has left me entirely grain-free as I was experiencing
severe urethritis that was NOT a UTI but just inflammation, so I had to de-inflammatize (is
that a word?) my diet completely. I'm just now getting black and green tea back. Sigh....

I have been on probiotics for years, and upping it a few months ago helped a lot. When my
system feels overwhelmed I do a detox tea for a few days and take charcoal (not together,
of course) and that evens me out. I seem to suffer from a general inability to remove toxins.

All that to say I understand. It sucks. It's hard. And also- everything Takala said! :lol: :lol:
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If you're going through hell, keep going. ~Winston Churchill

#21 Razzle Dazzle Brazell

 
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Posted 11 February 2013 - 08:43 AM

thx gatita that makes me hopeful i got a whole slew of tests done and we will see what happens with them. I am supposed to get the results for CBC, Tryptase (whatever that is), ANA, celiac panel (half the cost at 300), and some others... I really hope it reveals something. If not,, I will next get checked for an biointestinal imbalance or infection. I also feeli need to see why i am not properly digesting fats.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#22 Marc49

 
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Posted 11 February 2013 - 11:39 AM

http://labtestsonlin...yptase/tab/test

ANA as you probably know is looking for any inflammatory issues, too many to mention.
One thing I have learned,.......when ANYONE obsesses on a health issue, and spends a lot of time doing research on their own, you are bound to drive yourself to distraction at one point or the other.

This article leads to another article, on and on.
Before you know it, you have yourself dying from your own self diagnosis.

Quit dwelling on it so much, and you just might feel better.
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#23 Razzle Dazzle Brazell

 
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Posted 11 February 2013 - 05:47 PM

Wow Marc49. I find your post totally useless and disrespectful. Perhaps the fact that five days a week I spend a third of my day at work means I am a workaholic. The word obsession implies that I give unrelenting and undeserved attention to what is going on in my body. I only have one body, one life and when what is going on with my body impairs my ability to suffer this life, then it is 100% deserved attention. When what is going on in my body makes it impossible to provide myself safely with mmy most basic neccessity to survive (nutrients), it is gonna get my attention.

And not that it is truly a point worth discussing but I will humor you: there were plenty of times I decided that I would just pretend like nothing was wrong and it just resulted in a lot of pain and suffering and a cascade of torturous symptoms that sapped my ability to function or even breathe or remmemmber what day it was or spend time with my family. Maybe you're right, if I quit dwelling on it and instead decide to starve myself rather thhan think about how to feed myself I will feel better for a day or two.
  • 1
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#24 Ninja

 
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Posted 11 February 2013 - 06:06 PM

Razzle,

Have you had any luck with digestive enzymes? (I really liked Enzymedica Digest Spectrum or Digest Gold.) The reason I ask is because fat malabsorption can be caused by pancreatic insufficiency. You might wanna give them a try if you haven't.

Hugs!
Laura
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Gluten Free 2/12 

 

Let the soul speak with the silent articulation of a face

~Rumi
 

 


#25 Juliebove

 
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Posted 12 February 2013 - 02:51 AM

http://labtestsonlin...yptase/tab/test

ANA as you probably know is looking for any inflammatory issues, too many to mention.
One thing I have learned,.......when ANYONE obsesses on a health issue, and spends a lot of time doing research on their own, you are bound to drive yourself to distraction at one point or the other.

This article leads to another article, on and on.
Before you know it, you have yourself dying from your own self diagnosis.

Quit dwelling on it so much, and you just might feel better.


I must seriously disagree with you! As a person with mulitple medical problems, I was instructed by different Drs. to do research not only for myself but for my daughter. The bad thing about Drs. is that each one has his or her own specialty. They will concentrate on that and tend to ignore all of the other problems. At least in my experience. I have yet to find one that would put it all together for me. That fell to me. Had I not done research on my own, I would not have known that the statin I was on was causing some of my problems. Or that the diabetes med I was on was in fact raising my blood sugar. Or that some of my problems were caused by menopause. Actually a PA pointed me in that direction! I also wouldn't have learned about many of the deficencies I've had in my diet. Yes, I've been tested for some and some where found. But they didn't find some others.

Yes, I take a ton of vitaming and supplements now. But I have had to go to the Dr. far less than ever before. I can't remember the last time I had a cold or the flu. I did have recent problems that I now know were related to menopause. I had some skin problems, cause unknown. And an eye problem. Again, cause unknown.

I have also found that Drs. are usually of little help when it comes to diet. Unless perhaps it is celiac or a true food allergy. They do seem to understand these things. But they do not seem to understand food intolerances. Because there is no one standard test for these things.

I have never ever thought I was going to die. Although at some points in my life I was sick enough and sometimes made sick by medications that a Dr. prescribed and I couldn't tolerate that I sure wished I *would* die!

Perhaps if you don't suffer from things that you have yet to have ferreted out, then you wouldn't understand the lengths that some of us will go to in order to feel better.

And at times I do have to question whether my life such as it is, is really worth it. Not only do I have to stick myself numerous times each day to check my blood sugar but I have to shoot myself full of insulin most of the time when I eat. Or eat to try to get my blood sugar back up where it should be. I have to watch every bite that I eat, not only for the diabetes but my gastroparesis and my food intolerances. Let's see... I want a big salad. But will I actually digest it today? I have to think about it before I can eat. Or I am not digesting well. Let me run my food through the Cron-O-Meter and see where I am lacking. Oooh! Time to up the vitamin E again. Or... Can I go there? Let me check it out and see where I might be able to park. How far I might have to walk. Will I have to stand in line? Can I bring food in if I need to? Will it be too far away for me to drive to? Because if I spend too much time with my foot on the brake or gas pedal, my leg will cramp up on me. Will I be out in the sun? If I am, my Psoriasis might flare. And then I'll spend a few months (or more) trying to get those itchy red patches to go away.

For me it is always a good thing when I discover a problem and figure out what to do about it. And I seem to be doing pretty well at the moment except for the thinning hair and the occasional bout of low blood sugar. Now if I could just get my daughter well.
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#26 Juliebove

 
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Posted 12 February 2013 - 02:55 AM

Razzle,

Have you had any luck with digestive enzymes? (I really liked Enzymedica Digest Spectrum or Digest Gold.) The reason I ask is because fat malabsorption can be caused by pancreatic insufficiency. You might wanna give them a try if you haven't!

Hugs!
Laura


But do be careful what you take. I was taking PDA and it was fine but have since switched to Swanson's HCL. Same thing but just not quite as strong. Much cheaper though and so far so good. I have to avoid anything with Bromelain because that gives me horrible gas and stomach pains. And I foolishly tried Pancreatin which is something one might need with pancreas problems. Aside from the diabetes, I don't think I have pancreas problems and that stuff left me in horrible pain. I think it made me vomit as well but can't remember. Then I looked it up and discovered that it should only be taken if one has a known pancreas problem.
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#27 Lady Eowyn

 
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Posted 12 February 2013 - 04:37 AM

Hi Razzle
Just a small comment ( and yes, I do understand how you feel) - I have in the last week discovered coconut water, sold in health stores. Read a mention of it on this forum.

It's fabulous :) and really seems to knock out cravings with a small glass. I find it quite sweet as well and very hydrating.
Nutrient rich and probably anti-candida too - worth a try.
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#28 Marc49

 
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Posted 12 February 2013 - 11:18 AM

Wow Marc49. I find your post totally useless and disrespectful. Perhaps the fact that five days a week I spend a third of my day at work means I am a workaholic. The word obsession implies that I give unrelenting and undeserved attention to what is going on in my body. I only have one body, one life and when what is going on with my body impairs my ability to suffer this life, then it is 100% deserved attention. When what is going on in my body makes it impossible to provide myself safely with mmy most basic neccessity to survive (nutrients), it is gonna get my attention.

And not that it is truly a point worth discussing but I will humor you: there were plenty of times I decided that I would just pretend like nothing was wrong and it just resulted in a lot of pain and suffering and a cascade of torturous symptoms that sapped my ability to function or even breathe or remmemmber what day it was or spend time with my family. Maybe you're right, if I quit dwelling on it and instead decide to starve myself rather thhan think about how to feed myself I will feel better for a day or two.

Obviously you are looking to take offense at what I said when it was not meant in that way.

First off YOU start a thread titled "I'm Done."
Sounds quite positive to me.

Secondarily, I tried to show you what one test was about that you claimed to be unaware of, and then I went on to say what I HAVE seen in a few folks before.
One of my best friends almost drove himself insane looking at medical info.

Best wishes, and you will never see another response from me, so no worries. :)
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#29 Razzle Dazzle Brazell

 
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Posted 12 February 2013 - 12:36 PM

Marc49
First off the fact that the thread was entitled Im Done bears no significance to whether it was appropriate to come on a thread with someone who feels as if they want to give up saying that they are obsessed and implying that they were sick because they were obsessive about their health.

I already know what ANA is by the way.

Obviously you typed what you meant and posted it. I doubt the keyboard took over and forced you to type the words "when ANYONE obsesses on a health issue..." You then go on to express that if I do not think about it I might feel better.
I hope you did not mean to be offensive but you ought to be more careful with the words you type because I know for certain that I am not the only one on this forum who would take offense at someone implying that their sickness is in any way in their head or that they could think or unthink themselves to no longer being ill with the things they put in their mouth.

I started this thread to express how I felt like giving up trying to avoid all the things that make me sick not because I had decided to quit making myself sick in my mind.
  • 1
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#30 love2travel

 
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Posted 12 February 2013 - 04:31 PM

I kinda know what Marc is saying in a way. Just bear with me. I have had severe back pain for years and it was nearly all I thought about. I became obsessed and allowed it to control me. Not a good place to be. Believe me - I am a researcher to the nth degree, nothing wrong with it. But I took it to extremes. Now I refuse to let it control my life. Not saying you are at all. Just relating my own experience. :) Though I continue to suffer daily, I feel liberated from the firm grip it had on me.

ETA: That said, I strongly believe we must be our own advocates and learn as much as we can about celiac and other things that plague us. This can be as much a mental game as physical. At least for me. When I am preoccupied and busy with interesting things, my pain lessen. Distraction really helps me. So, I make sure there are tons of (good) distractions in my life. ^_^

Edited by love2travel, 12 February 2013 - 05:27 PM.

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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.




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