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Two Months In And Food Intolerances Are Growing! Why?
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So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized, I had become intolerant to dairy - something I had expected to a point given the state of my gut. However, I figured that would be the end of it, hopefully! Because of my dairy intolerance I thought I would try the So Delicious Coconut ice cream - definitely delicious and no ill effects. This past weekend I saw they had a no sugar added variety and because of my diabetes, I figured that might be better than the other. I tried it two nights ago and was okay that night but later on, not so much. As an experiment to confirm it was that food that had given me the problem, I ate it again...same issues. I'm trying to figure out whether it was some added ingredient in the NSA variety or if it is the So Delicious brand in general. I have heard people have had reactions to the carageenan in that, but figured I was okay because I haven't reacted to the yogurt that had it in it or the first So Delicious brand I tried. However, maybe like everything else, I am growing intolerant to that too.

I guess my question is, is it normal to have growing food intolerances two months into the gluten-free diet? If so, why? All I know, is that it becomes very frustrating to have to keep adding foods to my do-not-eat list. :(

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It is possible that you are better able to distinguish food problems now. That seemed to be the case for me. You get one big culprit out of the way and your body isn't overwhelmed with that anymore. Then it is more able to alert you that something is wrong with what you are still eating. I also had cross contamination problems that kept me feeling low and withdrawl. Give yourself time to cope with these. Keep refining your scrutinizing and making it better and better.

Keep at it! You are on the right road. For every food I haven't been able to eat anymore, I find two or three things to substitute with. I have used almond milk, coconut milk, and hazlenut milk for example.

It seems odd to me to have too much acidicity in your stomach. I take a little hydrochloric acid to help with digestion.

Get well***

Diana

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Thanks for the help. :) Hazelnut milk sounds really good - I've never seen that in any of the stores near me though :(

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Hi there

I'm 5 months gluten free (just), I have had SO many allergies and intolerances since I began gluten free. Dairy was the first, soy next, then eggs, citrus fruit (caused terrible asthma and bad ezcema), quinoa (asthma again), and now corn (which is really upsetting me as corn is everywhere)... Recently had a few reactions to corn, just like eating gluten :( the reaction last night from blowing up a balloon or baking my son's birthday cake (don't know which it was?).... So yes, it's very possible to have growing problems with food intolerances and allergies.

I've had some great advice on here though, and some great people on here keep telling me to hang on in there. And that's precisely what I aim to do. It's hard. I'm currently depressed about corn (very recent intolerance)... I keep wondering how much food I will be able to eat... I'm vegetarian too so it's very difficult.

But... On a day to day level, I feel ok! And isn't that wonderful! My energy has picked up since taking iron etc feel much better generally. So something must be right?? I also gave up smoking and sugar when I went gluten-free. My poor poor body! I just keep telling myself that my body has gone a bit haywire and is just rewiring itself (and sometimes getting it wrong for a bit)!

It's hard to be positive, don't I just know it. But it's the only way. Some of the guys on here are an inspiration with their positivity... So I figure they are probably right...

Good luck, have a good rant on here! I have been on here all day complaining!! Makes me feel tons better!

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Grrr. Because out digestive symptoms are drama queens. Just when you think you get it, it all changes on you.

I hear it gets easier, so hang on. When I feel sad, I read the Crohn's boards and thank my lucky stars.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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