Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Did It Take Before You Saw Any Improvement?
0

9 posts in this topic

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

0

Share this post


Link to post
Share on other sites


The post-gluten course is often a little unpredictable, since we are all so different. You may experience miraculous improvement right away. Certainly, if you are allergic to dairy and eliminate it you should notice a pretty immediate improvement. With celiac, it is less predictable. It depends on the amount of GI damage, it depends on your level of addiction to gluten and whether or not you go through a withdrawal period of two or three weeks. Certainly, you have a lot of healing to do, and it is not like turning off the faucet and everything is all better. Have you had testing done for nutrient deficiencies (vitamins, minerals, iron?) If you are low in things like Vit.D, B12, iron, you will need to rebuild your stores before you start feeling significantly better. Nevertheless, within the first couple of weeks you should notice that you are feeling a bit better but do not be upset if you are not because of the other factors.

You may find that your food is still not digesting properly because your pancreas needs to heal from the gluten too, and is not putting out enough enzymes, which you will then need to supplement. It also helps to restore the good flora in your gut by taking probiotics. In your case if you are allergic to dairy you will not be able to do yogurt so you will have to get dairy-free probiotics.

If you are lucky, your allergy testing will have picked up on just lactose intolerance (although I do think it is the protein casein they test for, come to think of it), but if you are only lactose intolerant you may be able to regain dairy at a later stage.

No need to go looking for problems that might or might not happen. If you find you are not improving, talk to us about them and we can give further advice. :)

1

Share this post


Link to post
Share on other sites

I have had vitamin levels checked recently and I had low potassium and also low vitamin D, but I only took over the counter potassium suppliments and the doc didnt think my vitamin D was too bad so he decided not to treat it. I have also had a mild case of pancreatitis in the past. I hope that I can improve more, I have seen some improvement since going gluten free but I could tell I was getting sick from eating cheese and butter. So when the doctor dx'ed me with a milk allergy I was not completely surprised if that makes any sense at all. I feel a little depressed about the milk thing though. My diet seems so restricted... :(

0

Share this post


Link to post
Share on other sites

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

just curious...did the allergist tell you it looks like you have celiac based on the DGP igG score alone or in combination with the potassium and vitamin D level? I've read a few of your other posts, and it seems we have a lot in common :) my thread and numbers are here http://www.celiac.co...ults-please/�� I only had a strong positive for the DGP IgG and nothing else.

the exercising and endurance post you made, I can completely relate!! I lost a lot of weight in 2010 doing Jillian Michaels videos and changing my eating habits. I've gained some of the weight back, but now doing any her workouts or most exercises in general makes me feel tired and worn out, instead of elevating my mood and making me feel good. Sure the weight gain is a small part, but I was able to do her videos and feel better when I was heavier than my current weight and get that mood lift before <_< I have my annual at the ob/gyn today, so I'm going to ask her to order some nutrient tests, so hopefully she will!

I'm happy that you're getting some answers!!

0

Share this post


Link to post
Share on other sites

As I bumped along my first 7 months gluten free it has been hard to grasp "feeling better." As I look back though, I realize profound changes have come. I was challenged with months of withdrawl symptoms or problems with missing gluten or cross contamination. I also discovered other allergies. A month or so ago, a clear mind decided to live with me! At times I feel energetic.

I didn't just go gluten free and feel better. I keep working toward better health whereever it took me.

You are on the road, Keep walking,

It may take a while,

but headed in the right direction,

You'll get there.

Get Well,

Diana

0

Share this post


Link to post
Share on other sites

1desperateladysaved, I totally and completely can relate about the missing food or having issues with cross contamination. I feel like I am so dumb when it comes to hidden ingredients and I think I have poisoned myself without knowing a few times. I really do hope I am on the road to recovery, as I want to live as long as I can for my kids. Thank you for your advice, it makes me feel better having your advice.

Powerofpositivethinking, my allergist said that he thinks that I have celiac. I am still headed to the GI to possibly confirm it, but I will say that after cutting gluten out, I feel way better than I did while on it so I think no matter what is done or said there I am keeping myself off the gluten. I also think we have alot in common and I have read your other posts too! ;) About the endurance thing, I feel a little better after cutting out the gluten and I have been able to FINALLY clean my house without falling asleep afterward and I have been able to run my kids around town for Dr.'s appointments without crashing at night with major knee pain and a general feeling of unwell. You should get your vitamin levels checked. You might be like me and be able to suppliment with over the counter vitamins and do okay if you need them. One other thing is that I also noticed that I gained the most weight when my diet was rich in dairy and gluten type foods. I know you may not have a dairy allergy, but with the gluten, you maybe able to lose that weight when you cut it out (your still eating gluten for your endoscopy, right?). I also lost weight 2 years ago with exercise and was feeling great, but that was short lived as I think the celiac reared its ugly head and halted that. I gained 40 lbs back in 2 months. :( Since being off gluten for only a week, I have lost 4 lbs and I have been eating rice noodles with gluten-free seasonings and olive oil. I want to say that I believe that in my own mind that I am in the possible early stages of celiac disease and that it was a warning sign when I recieved the positive DGP IgG that I needed to go gluten free right away. I am not a Dr, this is my own guess.

This is why I am so grateful for this forum. I am scared, I feel depressed about all of this and my parents (even though I am 28 years old, I still listen to them) think its all just anxiety related and don't believe I have anyhting wrong with me, even after blood tests and a very obvious positive skin prick allergy test. I know I can come here and find answers to my questions. I can find better answers here than I can in all of the doctor's offices that I have been to. I have people I can relate to that are going through what I am and I have seasoned people that can chime in and help me with in depth issues. I am so grateful for this forum.

0

Share this post


Link to post
Share on other sites

I think it's funny you mentioned about your parents because I'm 27, but it still matters to me what they think too! Although weight wise I'm "healthier: according to my GP, it seems I can trace my problems back to when I lost weight in the first place. My mom thinks i'm being overly dramatic with my bowel issues, but I know what was normal before, and that's not what's happening now. I didn't even tell them I went to a GI. I'm waiting until my follow-up appointment on the 21st to tell them anything.

Luckily, I had my ob/gyn appointment today and requested for her to run the following tests, which I put together from forum posts on here. I was so happy she agreed, and she will be sending a report to my GI doctor, so we'll see what information comes back.

These were the tests requested:

Complete Metabolic Profile

Complete Blood Count

Vitamins A, B (B1, B2, B6, B12), D, E, K

Ferritin/iron

Magnesium

Folate

Potassium

Calcium

Zinc

Thyroid (TSH, Free T3 and Free T4)

Inflammation Markers CRP, SED and RF

It was quite the collection, but hopefully it will shed some more light on things!

0

Share this post


Link to post
Share on other sites

That's a great list. It's what we all should have but very few get. :)

0

Share this post


Link to post
Share on other sites

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

It took me about a week. I was having daily migraines and gastro distress. Within a few days it slowed down, by a week I was able to go shopping without having to make a run (literally) to the bathroom. Then again, they caught mine fairly early. there are some people who have had severe damage before they were diagnosed and it may have taken them longer to feel better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,721
    • Total Posts
      914,574
  • Topics

  • Posts

    • Gluten challenge. Random reactions of gluten sensitivity (brain fog)
      hi all, I have brain fog and I suspect that is due to gluten sensitivity.  When I became aware of those symptoms in the past, I did an elimination diet, and gluten introduction  seemed to correlate with the perceived brain fog Then, I was off gluten for a year, but because it is self-diagnosed it is not always easy to explain it and remain 100% gluten free when, for example, travelling or invited to someone's house for dinner. So, I thought I wanted to get to the bottom of this and check for celiac decease first. I have been doing a gluten challenge for the last 4 weeks, and my symptoms are very strange. Sometimes, I eat a slice of cake or a croissant and I can be tired and foggy for the whole day.  Strangely,  there are other times where i can eat bread or a full pizza and have no symptoms at all. Beer is strange, sometimes it affects me, sometimes it does not at all... I am not sensitive to Pasta so far... I am very confused. I thought that maybe it was because the consumed gluten quantity but there does not seem to be any correlation at all. Sometimes, I think that it has to be something else (not the gluten) that is causing those reactions. I cannot understand the random reaction to gluten.  Does anybody have a similar experience or an insight or what could be going on? Thanks!!!    
    • I got WELL!!
      It sounds like things are looking up for you. Happy dance, happy dance! Happy Valentines Day!
    • Help understanding test results??
      I forgot to add this...I only had one positive on the complete celiac panel.  I had a positive on the DGP IgA test, my visual endoscopy "looked fine" but my biopsies revealed a Marsh Stage IIIB (moderate to severe villi damage).  My symptom at the time was anemia.   Keep eating gluten daily until all testing is complete.  This is really important!   Hang in there!    
    • SO HUNGRY. All. The. Time.
      Over my 6 gluten-free years, I have endured this "Starving Syndrome" several times.  Actually, I have lost count.  I am 5'4" and frequently eat more than my 6'4" husband.  My weight has gone from a low of 93 lbs. to my current high of 105 lbs.  I eat as much as I possibly can.   I agree about the fats helping me to feel full.  I'm beginning to test out the "grain hypothesis" as mentioned above. It seems (feels) to me that when I go through a major healing spurt, my body just wants more food!  No idea if this is actually what is happening.  Still, I have come to look at it as a "good thing" when my body wants lots of food.  I just relax and try to give my SMART body what it wants.
    • I got WELL!!
      Update on my progress: 1.  By thorough and consistent evaluation of my food diary (every item ingested for 6 years); I've finally figured out that both dairy and nightshades cause me PAIN!  I had tried eliminating these previously; but it was no help.  I tried again anyway...and IT WORKED!!  Maybe because I'm healthier now?  Never was lactose intolerant; but BOTH these items cause me PAIN!  All over, wish-I-were-dead PAIN! 2.  Just completed 2 courses of Xifaxin.  One in November and one in February.  The first course helped some with the Buddha Belly.  This second course helped a lot!  Fingers crossed that things will only continue to improve.  (I actually think it may be helping reduce the fatigue!  But I won't mention it as I don't want to jinx it!) 3.  Added back rice.  Had been grain-free for 3 years.  Seems fine and maybe even beneficial.  I'm pursuing adding more variety to my diet.  Looking at amaranth and buckwheat.  Plan to discuss diet with nutritionist after my next GI appt.  to get tips on this.  (Had to postpone this appt. due to bad headcold--first in many years!) 4.  Plan to discuss changing levothyroxine brand at next internist appt. in a couple weeks.  Currently taking Tirosint--and love it.  But...investigating other options like Levoxyl since I may have felt better on that.  Sadly, Pfizer was NOT helpful the last 2 times I called them to discuss gluten content/contamination.  Mylan generic was VERY helpful!  Choice to be determined.  Goal is to reduce fatigue. 5.  Continuing with exercise, meditation, drawing, etc.  Paying attention to mindset and emotional calm.  Optimism is my friend. 6.  On a humorous note, my hairline continues to advance!  I always had the highest of foreheads.  Ha!  Now my hairline is moving, from all directions, closer to my eyes!  i actually have developed a widow's peak!  This is too funny.  Sixty-six years old and my hairline keeps getting thicker and more extensive!  Mother Nature toys with me! HAPPY VALENTINE'S DAY to everyone!!   Remember to love yourself!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,771
    • Most Online
      1,763

    Newest Member
    Christine1962
    Joined