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How Long Did It Take Before You Saw Any Improvement?
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I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

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The post-gluten course is often a little unpredictable, since we are all so different. You may experience miraculous improvement right away. Certainly, if you are allergic to dairy and eliminate it you should notice a pretty immediate improvement. With celiac, it is less predictable. It depends on the amount of GI damage, it depends on your level of addiction to gluten and whether or not you go through a withdrawal period of two or three weeks. Certainly, you have a lot of healing to do, and it is not like turning off the faucet and everything is all better. Have you had testing done for nutrient deficiencies (vitamins, minerals, iron?) If you are low in things like Vit.D, B12, iron, you will need to rebuild your stores before you start feeling significantly better. Nevertheless, within the first couple of weeks you should notice that you are feeling a bit better but do not be upset if you are not because of the other factors.

You may find that your food is still not digesting properly because your pancreas needs to heal from the gluten too, and is not putting out enough enzymes, which you will then need to supplement. It also helps to restore the good flora in your gut by taking probiotics. In your case if you are allergic to dairy you will not be able to do yogurt so you will have to get dairy-free probiotics.

If you are lucky, your allergy testing will have picked up on just lactose intolerance (although I do think it is the protein casein they test for, come to think of it), but if you are only lactose intolerant you may be able to regain dairy at a later stage.

No need to go looking for problems that might or might not happen. If you find you are not improving, talk to us about them and we can give further advice. :)

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I have had vitamin levels checked recently and I had low potassium and also low vitamin D, but I only took over the counter potassium suppliments and the doc didnt think my vitamin D was too bad so he decided not to treat it. I have also had a mild case of pancreatitis in the past. I hope that I can improve more, I have seen some improvement since going gluten free but I could tell I was getting sick from eating cheese and butter. So when the doctor dx'ed me with a milk allergy I was not completely surprised if that makes any sense at all. I feel a little depressed about the milk thing though. My diet seems so restricted... :(

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I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

just curious...did the allergist tell you it looks like you have celiac based on the DGP igG score alone or in combination with the potassium and vitamin D level? I've read a few of your other posts, and it seems we have a lot in common :) my thread and numbers are here http://www.celiac.co...ults-please/�� I only had a strong positive for the DGP IgG and nothing else.

the exercising and endurance post you made, I can completely relate!! I lost a lot of weight in 2010 doing Jillian Michaels videos and changing my eating habits. I've gained some of the weight back, but now doing any her workouts or most exercises in general makes me feel tired and worn out, instead of elevating my mood and making me feel good. Sure the weight gain is a small part, but I was able to do her videos and feel better when I was heavier than my current weight and get that mood lift before <_< I have my annual at the ob/gyn today, so I'm going to ask her to order some nutrient tests, so hopefully she will!

I'm happy that you're getting some answers!!

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As I bumped along my first 7 months gluten free it has been hard to grasp "feeling better." As I look back though, I realize profound changes have come. I was challenged with months of withdrawl symptoms or problems with missing gluten or cross contamination. I also discovered other allergies. A month or so ago, a clear mind decided to live with me! At times I feel energetic.

I didn't just go gluten free and feel better. I keep working toward better health whereever it took me.

You are on the road, Keep walking,

It may take a while,

but headed in the right direction,

You'll get there.

Get Well,

Diana

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1desperateladysaved, I totally and completely can relate about the missing food or having issues with cross contamination. I feel like I am so dumb when it comes to hidden ingredients and I think I have poisoned myself without knowing a few times. I really do hope I am on the road to recovery, as I want to live as long as I can for my kids. Thank you for your advice, it makes me feel better having your advice.

Powerofpositivethinking, my allergist said that he thinks that I have celiac. I am still headed to the GI to possibly confirm it, but I will say that after cutting gluten out, I feel way better than I did while on it so I think no matter what is done or said there I am keeping myself off the gluten. I also think we have alot in common and I have read your other posts too! ;) About the endurance thing, I feel a little better after cutting out the gluten and I have been able to FINALLY clean my house without falling asleep afterward and I have been able to run my kids around town for Dr.'s appointments without crashing at night with major knee pain and a general feeling of unwell. You should get your vitamin levels checked. You might be like me and be able to suppliment with over the counter vitamins and do okay if you need them. One other thing is that I also noticed that I gained the most weight when my diet was rich in dairy and gluten type foods. I know you may not have a dairy allergy, but with the gluten, you maybe able to lose that weight when you cut it out (your still eating gluten for your endoscopy, right?). I also lost weight 2 years ago with exercise and was feeling great, but that was short lived as I think the celiac reared its ugly head and halted that. I gained 40 lbs back in 2 months. :( Since being off gluten for only a week, I have lost 4 lbs and I have been eating rice noodles with gluten-free seasonings and olive oil. I want to say that I believe that in my own mind that I am in the possible early stages of celiac disease and that it was a warning sign when I recieved the positive DGP IgG that I needed to go gluten free right away. I am not a Dr, this is my own guess.

This is why I am so grateful for this forum. I am scared, I feel depressed about all of this and my parents (even though I am 28 years old, I still listen to them) think its all just anxiety related and don't believe I have anyhting wrong with me, even after blood tests and a very obvious positive skin prick allergy test. I know I can come here and find answers to my questions. I can find better answers here than I can in all of the doctor's offices that I have been to. I have people I can relate to that are going through what I am and I have seasoned people that can chime in and help me with in depth issues. I am so grateful for this forum.

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I think it's funny you mentioned about your parents because I'm 27, but it still matters to me what they think too! Although weight wise I'm "healthier: according to my GP, it seems I can trace my problems back to when I lost weight in the first place. My mom thinks i'm being overly dramatic with my bowel issues, but I know what was normal before, and that's not what's happening now. I didn't even tell them I went to a GI. I'm waiting until my follow-up appointment on the 21st to tell them anything.

Luckily, I had my ob/gyn appointment today and requested for her to run the following tests, which I put together from forum posts on here. I was so happy she agreed, and she will be sending a report to my GI doctor, so we'll see what information comes back.

These were the tests requested:

Complete Metabolic Profile

Complete Blood Count

Vitamins A, B (B1, B2, B6, B12), D, E, K

Ferritin/iron

Magnesium

Folate

Potassium

Calcium

Zinc

Thyroid (TSH, Free T3 and Free T4)

Inflammation Markers CRP, SED and RF

It was quite the collection, but hopefully it will shed some more light on things!

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That's a great list. It's what we all should have but very few get. :)

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I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

It took me about a week. I was having daily migraines and gastro distress. Within a few days it slowed down, by a week I was able to go shopping without having to make a run (literally) to the bathroom. Then again, they caught mine fairly early. there are some people who have had severe damage before they were diagnosed and it may have taken them longer to feel better.

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    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
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