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Anyone Have These Symptoms?
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Hi all,

I am waiting on a biopsy in a little over a week to confirm my celiac dx. My symptoms are severe gerd, indigestion, some constipation, muscle and joint pain, insomnia (can fall asleep yet wake up numerous times throughout the night), many more.

Here are the things I am concerned about because they are new and not part of my normal fibromyalgia symptoms which I have had for years: feeling cold all the time, cold hands and feet (sweaty feet too), my hands have now began to hurt, they are sensitive to the cold but do not turn colors like Raynauds, my fingerpads are wrinkly (especially when cold) and when they are warm they feel swollen. My palms hurt and are kind of orange colored. It is so wierd and freaking me out. When I googe it alot of symptoms are indicative of thyroid issues and sometimes celiac shows up.

I am going to get bloodwork for thyroid soon, I have had it a couple of times with borderline results. I didnt want to start meds for it in case it was all due to the celiac.

Thanks for any replies I would love to hear if any one else had crazy symptoms like me.

Jess

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Oh I forgot to add I am constantly congested, and get frequent sinus infections. I am allergic to many things but have controlled my environment and have gotten allergy shots for 4 years now. I have also been getting gassy from dairy so I have switched to almond milk and I am doing much better with that. I do still have a yogurt for breakfast and seem to do fine with that. Thanks again for any responses:)

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Yep, definitely celiac symptoms. I had many of those myself.

I also had the cold with a borderline TSH for well over a decade. i was sure I had hypo problems but I was always told that I was within range. I did't realize that the range up here was too broad (0.2-6.0) and that the TSH doesn't tell the whole pictuure. If I had had more thyroid tests, and done my own research, I am confident that i would have been treated 15 years ago and would have felt much better in my 20's and 30's.

Many borderline TSHs (especially consistant ones) can indicate hypothyroidism with the presence of symptoms (like cold, fatigue, achy body, dry skin and hair, acne, thinning hair, constipation). Have your doctore check:

  • TSH - should be near a 1.
  • Free T4 and Free T3 - are the available hormones in the body and should be (ideally) beween the 50th and 75th percentile of your lab's normal reference range.
  • TPO Ab - these autoantibodies should be non-existant; if present, they could indicate Hashimoto's disease

Good luck with the endoscopy. Make sure they take lots of samples; I've heard 6-8 is often enough. If they don't take enough samples, and the damage is patchy rather than uniform, then the doctors might miss the damage... and doctors seem to get really confused when one test is positive and another test is negative... :rolleyes:

And good luck with the gluten-free diet when your testing is complete. I hope you feel better!

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Yep, definitely celiac symptoms. I had many of those myself.

I also had the cold with a borderline TSH for well over a decade. i was sure I had hypo problems but I was always told that I was within range. I did't realize that the range up here was too broad (0.2-6.0) and that the TSH doesn't tell the whole pictuure. If I had had more thyroid tests, and done my own research, I am confident that i would have been treated 15 years ago and would have felt much better in my 20's and 30's.

Many borderline TSHs (especially consistant ones) can indicate hypothyroidism with the presence of symptoms (like cold, fatigue, achy body, dry skin and hair, acne, thinning hair, constipation). Have your doctore check:

  • TSH - should be near a 1.
  • Free T4 and Free T3 - are the available hormones in the body and should be (ideally) beween the 50th and 75th percentile of your lab's normal reference range.
  • TPO Ab - these autoantibodies should be non-existant; if present, they could indicate Hashimoto's disease

Good luck with the endoscopy. Make sure they take lots of samples; I've heard 6-8 is often enough. If they don't take enough samples, and the damage is patchy rather than uniform, then the doctors might miss the damage... and doctors seem to get really confused when one test is positive and another test is negative... :rolleyes:

And good luck with the gluten-free diet when your testing is complete. I hope you feel better!

Thanks Nicole! I am sure I will be on here alot once I get my official dx! I am going to go gluten free anyway just from the couple days I mistakenly did it I felt so much better:) I will have my Dr. do the test for hypo too. He did test for all those things you mentioned and I was always just in the range for everything except my TSH which was a bit above it .

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Yes, I have all these symptoms and was diagnosed with fibro, but I feel I'm gluten intolerant. I don't think I have celiac's because my stomach did not show that I did during endoscopy. After no gluten, I feel much better. Good luck with your results! And best of luck living gluten free!

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
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    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
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