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Do I Have Celiac? Everything Points Me Here..

4 posts in this topic

Im lost..

1. Symptoms

2. Things I noticed that may or may not matter

1. Symptoms

- Drowsiness

- Brain fog

- Fatigue

- Social anxiety (a bit)

- Somewhat bad social skills (but normal social life)

- Dont feel emotions as intense as others (but do feel of course)

- Been told I look somewhat melancholic

- Analyse everything/deep thinker/cant turn of thinking many times

2. Things I noticed that may or may not matter

* When I had a lot of pizza as young, the skin in my face would turn bad. It would itch a bit and I could get some bigger than usual pimples.

* Lactose intolerant.

* When i had antibiotics in the last couple of years i almost felt a bit less stressed for a few days. Bit more relaxed. But then back to normal. Even when I wasnt sick and just had some antibiotics to be safe.

* The cant-turn-of-thinking has gotten worse the last couple of years. 30 years old today. Good shape, gym 5 times a week.

* Have vitiligo, autoimmune disease.

* Very stressful life before.

*Always felt easily stressed out. At least after 17 years old.

* React and feel very strong after taking iron supplements. Tested and got back normal iron levels. React very good to oysters as well. Mental clarity after in less than hour hours. Ate zinc supplements and felt nothing.

* No stressful job for over two years. But still I feel mentally exhausted after for example a cross-fit session (normal gym is fine). It feels good afterwards, but I feel mentally overwhelmed even having a normal discussion. Bodywize/muscle wize i could do another session (with an effort of course).

* Bought a book called practical paleo and followed a meal plan for auto-immune disorders that took out all grains, nightshades, nuts, dairy and maybe something else. My god - within a few days the clarity of my brain was so crisp it shocked me. Social skills went up in some strange way. I didnt get tense when talking to strangers. But I lost 7 kilos in 2 weeks and I was starting to look sick (dont want to loose weight). Switched back to eating rice, soda, nightshades and dairy but no wheat. And i most likely got small amounts of gluten in me when eating out. The effect wore of. But still a bit better when it came to energy levels.

* During this the paleo test I noticed that when i had 5-7 bananas (in an effort to keep my weight) my stomach got bloated and I passed alot of gas.

* Same with sweet potatoes. Bloated as hell even on a small amount.

* Probiotics (biokult brand) seems to relax me in some way. Helps a lot when I had some raw salmon and felt a bit bad. The pills fixed it within 10 min. Happened several times. Used the probiotics about ten times.

* On the paleo test I got so tired from the lack of carbs. Not a brain fog fatigue, but a muscle fatigue.

* On the paleo diet I drank a can of coconut milk (not water) before bed time once to battle the weight loss. Fever for three days! I felt the milk in my stomach and knew straight away it was a bad idea. Always enjoyed cocounut in food before. Tried a small bit of it afterwards and cant really say how i reacted. Too afraid to try more.

* On the paleo, my skin got so fucking good i was shaking my head in disbelief. Im 30 and have no dimples. But the skin got really smooth, soft and a bit "fatty" in a good way. Almost glowing. I stopped using a moisturizer two days after the paleo diet.

* Cholesterol high. Tested.

* Blood pressure somewhat high, 130/??. Pulse always been a bit high, 80 resting pulse.

* Did the adrenal blood pressure test at home. My blood pressure drops 20 points from sitting to standing. Apparently it should increase. And a drop is suppose to indicate adrenal burn out. Which I feel is a pretty safe bet. Its not my work (got burned out two years ago and have been taking it Very easy since then).

* When I lowered the amount of sweet potatoes and ate more meat/fat on the paleo diet, my skin would get better. When I increased the sweet potatoes (my main carb on the diet) I would get dimples. I dont seem to get dimples by rice for example.

* NOW.. The worst thing ever. 5 days ago i decided to reintroduce wheat/gluten.

As I wrote above I most likely got small amounts since I stopped the paleo diet a couple of months ago. But this time I had half a pizza..

I cant say for sure it has any connection. But I woke up that night with my brain going so fast it scared me. Got anxiety, border line panic attacks. Was scared I was going crazy/schizo/developing OCD.. My mind wouldnt stop thinking. It really scared me. Got a rash on my hip the day after as well. Skin dry.

Day after that, I switched back to paleo and 1 hour mindfulness meditation every day. Been doing this for 6 days now. Luckily it wore off. But I can still feel it a little bit. The anxiety is not all gone. And I dont feel as good as last time i went on paleo. Stopped eating sweet potatoes on day 5 and switched butternut squash as source of carb. My facial skin seemed to like that a lot. Or it could be that it took a few days for the diet to kick in. Will try to reintroduce sweet potatoes in a few days.

Whats wrong? Celiac? Any thoughts at all?

Regards Johan

Edited by JohanJohan

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// Not sure if this will be a double post. My last one didnt seem to get through. Paste it again.

When you are new poster, your posts will not appear until a Moderator has looked at them first. This helps to prevent spam and other inappropriate content.


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When you are new poster, your posts will not appear until a Moderator has looked at them first. This helps to prevent spam and other inappropriate content.

Thanks Kareng. Good to know.


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Sorry to bump my own thread here. I going to try to write down every symptom that comes. And then i just send a link to this thread to my future GP, nutritionist etc.

* Drank 4 tablespoons of olive oil to get calories. Stomach pain an hour later. Seems like my stomach doesnt like to much fat.


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    • I understand. Poor thing, made doubly rough because 13 is a really hard age even in the best of times. OK, at 13 she should show the damage in the biopsies. I didn't know if she was 2 or 3 yrs. old & in those cases sometimes they just plain haven't lived long enough to be damaged where the biopsies pick it up - it can be so patchy then.  Gosh, I'm really feeling for her & you both and I so want to say take her off gluten the moment the endoscopy is over but I'm afraid to say that b/c I've seen some pretty weird things go on that you would never expect. Docs can be so uninformed! Please let us know how things turn out & send your daughter some hugs from me and tell her I believe her. Please let her know that most of us had been told by doctors they think it's all in our heads, didn't believe us, blew us off so we know exactly how she feels. Remind her her pedi believes her & he's been more helpful than the GI has.  Press the GI for 6-8 biopsies but a bare minimum of 6.  {{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
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