Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New -- Have Symptoms Of Gluten Intolerance
0

16 posts in this topic

I've noticed, for a long while now (about 2 years), that whenever I eat things with any real amount of gluten, I feel terrible not long after.

My symptoms include:

- Headache

- Fatigue

- Stomachache/nausea

- Bloating

- Gas/burping

- Vit D deficiency (found out from a blood test)

I know that these are typical symptoms of gluten intolerance/celiac, so my question is: Should I go to the doctor, or should I jut try to cut gluten out and see what happens?

A few years ago, I did talk to a doctor about it, and was told to try going gluten-free for a week or two to see if it helped. I only lasted a few days though since I was living at home, and my parents pretty much refused to buy/cook me gluten-free food. Now however, most of the year, I live at school, in an apartment, and I buy and cook my own food, so going gluten-free is a much more viable option.

Edited by keeponsingin
0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi keeponsingin and welcome to the board.

You say you have symptoms of gluten intolerance now. I guess your trial at gluten free wasn't very edifying for you without the cooperation of your family. You have to think about how you would feel later on if your symptoms improved some, but didn't improve all the way, and you didn't have a diagnosis. Would you still feel that you should eat gluten free? Or would you be tempted to say, well this isn't really working all the way so it probably isn't really gluten and OMG, that pizza looks and smells so good!!!

You see, that's the problem without a diagnosis for some people. Do you still have insurance under your parents' policy to get the full celiac blood panel run? That consists of:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

If you get the blood test done you can know for sure (well, almost) whether or not it is celiac. If it isn't celiac it could still be gluten intolerance, but if you test positive on the blood work they will probably want to do an endo with biopsy to confirm the diagnosis. If they find a damaged gut they will know for sure it is celiac, an autoimmune condition that carries inherent risks with it if you continue to consume gluten. So it can be a very strong motivator when you start smelling the pizza :)

If you don't get the testing done now and just go gluten free and then start to doubt yourself, you would have to go back on gluten for at least a couple of months for the testing to be accurate, and some people find this an incredibly painful experience, so if you want the testing, now is the time. And you must keep eating gluten until all testing (including the endo) is completed.

Obviously, if you are living independently you don't have to worry about the school making meal plan accommodations for you. The only possible times being undiagnosed could be a problem would be serving in the military, getting gluten free food as a hospital inpatient, and (this one involves having the diagnosis) getting health / life insurance. Obamacare if it lasts may handle the first one and the other is an imponderable :rolleyes:

So those are the major parameters you have to consider when you think about just going gluten free and seeing if it works. Many of us on here have done just that without major problems (I was hospitalized in a coma and they were able to come up with feeding tube food for me which was allergen free - although I did become quite malnourished on it :wacko: - but it kept me alive). Good luck on making your decisions and I wish you good health. :)

0

Share this post


Link to post
Share on other sites

Thank you for taking the time to respond.

I didn't have enough support from my parents the first time around to see if it really made a difference. They pretty much refused to take me grocery shopping or make gluten-free food for me to eat. As I said though, now, I live in an apartment and buy and cook my own food most of the time, so I don't have to rely on my parents to do that, gluten-free or not.

I can't be in the military, ever, because I have bipolar disorder, so that is a complete non-issue for me.

I am still on my mom's insurance, and it covers most all things.

From what I've read (which was confirmed by your reply) is that in order for the testing to be accurate, you have to be consuming gluten for a period of time beforehand...so one idea I had was to wait until I'm home for spring break (which is 3 weeks away), then make an appointment to see my GP so that if they want to do any testing, I'll still have been consuming gluten, and I have time to get things done.

Honestly, I'm sick of feeling sick all the time, so I'm willing to do what I have to do in order to feel better.

0

Share this post


Link to post
Share on other sites

I think that you need to be assertive and insist that they do the testing. Just tell them you will go gluten free anyway and then no one will ever know, because you can't stand being so sick. Too many of us let the "thems" of this world make the decision for us, and look where it got us - years of illness because we didn't know any better. I am glad your generation is growing up aware of celiac disease and can avoid having the doctors hold the knowledge (but not enough of it) and not sharing it with us. This is all due to Mr. Internet and Dr. Google, I believe, the latter much despised by the medical profession in general (at least those who are intimidated by an informed patient who doesn't just say, Yes, Doctor :D )

Be brave, be bold! :ph34r:

1

Share this post


Link to post
Share on other sites

It is pretty awful feeling sick all the time. And since most of the time I buy and cook my own food, I can control my diet almost 100%...so what a doctor says won't really affect me too too much (unless celiac is confirmed -- then obviously people will take me more seriously).

0

Share this post


Link to post
Share on other sites




Ugh...I made the mistake of having a roll and granola this morning...I've been feeling super sick since a few hours after that. I just want to feel better!!

0

Share this post


Link to post
Share on other sites

Thank you. I will be making an appointment with my GP when I go home for break, and hopefully I can get things cleared up.

0

Share this post


Link to post
Share on other sites

The roll, while unpleasant :( , was not a mistake, because you do have to keep your gluten levels up if you want testing. Just try and do it where it won't affect your class attendance. :) Get yourself some Tums and/or Pepto Bismol and drink plenty of water, and hope you feel better quickly after thee incidents.

0

Share this post


Link to post
Share on other sites

I'm not a big breakfast eater to begin with, and my classes, for the most part, are early in the day, so I usually don't eat until after I'm finished with class anyway. I guess that's a good thing.

0

Share this post


Link to post
Share on other sites

And then, last night, I had the bright idea of ordering the $10 Dinner Box from Pizza Hut with my friend...at least I slept it off.

Spring break can't come soon enough! I would go to the health center at my school, but if they gave me a referral, it would be very difficult to get there since I don't have a car. It's easier to just do it all at home, especially since there's a lab at my GP's office, so I can talk with them and get bloodwork done all at the same time.

0

Share this post


Link to post
Share on other sites

Turns out I'm going home this coming weekend (the 15th). Do you think I should try to get in to my GP's office either Friday or Saturday, or should I wait until my spring break the first week of March?

0

Share this post


Link to post
Share on other sites

I emailed my GP and requested an appointment Saturday. Hopefully they can get me in. I can't live like this forever!

0

Share this post


Link to post
Share on other sites

I'm going to see the doctor on Friday, and hopefully get some answers!

0

Share this post


Link to post
Share on other sites

Good luck with your appointment :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,147
    • Total Posts
      919,589
  • Topics

  • Posts

    • Hi lolobaggins, Yes, it is not unusual to have symptoms that come and go after going gluten-free.  Edema (swelling) can also be a symptom of an allergic reaction.  Fatigue is not fun but remember your body is trying to heal a major organ, your gut.  So some rest might be a good idea.  The immune system response is going to keep going for several weeks to several months.  Each little bit of gluten kicks the immune response off again and extends the healing time.  So it's helpful to be very careful with your diet. Meats, vegetable, and nuts are good foods to eat at the beginning.  And whole foods rather than processed foods.  Dairy is often a problem until the villi are healed.  After a few weeks if things are going well you can try to add one new food a week and see how things go.  But take it slow and easy.  The fewer foods/ingredients we are eating the easier it is to identify problem foods. Welcome to the forum!
    • Welcome to the club that you never wanted to join!  (I plagiarized that from someone else here but can't recall who so I can't give credit to them.) Anyway, there is a steep learning curve to being gluten free.  It takes time to learn to read labels.  It takes time to heal (like months to YEARS).  Symptoms can wax or wane.  You just have to keep moving forward.  Give yourself time to heal and do not worry about the gym right now.  It will come back later, I promise (from a gal who cycles, swims, and runs).   Read our Newbie 101 section pinned at the top of the "Coping" section.  It contains valuable tips about cross contamination and hidden sources of gluten.  Read, read, read, the internet from reliable sources (not crazy bloggers).   You will feel better soon.  
    • Ha!    That happens to me all the time!!!!!  It drives me crazy!
    • "Accidentally marked them soy free".  Are you kidding?  That's fraud!  Consumer Reports just issued a huge report this month on supplements.   Yes, everyone thinks they are all "natural" and therefore safe.  Doctors and nurses recommend them all the time, but they can do a lot of damage.  Anyone can start making them in their bathroom and there's literally no regulation.   Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!  http://www.consumerreports.org/cro/magazine/2016/09/index.htm What about the probiotics?  Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs  remain sick. https://www.sciencedaily.com/releases/2015/05/150515083232.htm Think twice about taking supplements.  Make sure you really medically need supplements.  I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!  You have been on the gluten-free bandwagon for many years (member here for years).  Your doctors should be looking at other things that might be making you sick still.  Something is wrong!   That's my two cents!    
    • Hi Schlafentzug, The usual diagnosis process is a blood test for antibodies first, followed up by an endoscopy to check for gut damage.  You have to eat gluten for 12 weeks before the blood tests. It sounds like your brother may have celiac disease also.  His gut lining villi were damaged by something, and villi flattening  is a common celiac disease indicator.  Being shorter than other family members is also a common indicator. The excessive gas is probably from bad digestion.  The gut damage interferes with proper digestion and some enzymes aren't made.  Lactase is made by the villi in the gut. You should definitely get tested and before going gluten-free IMHO.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,181
    • Most Online
      1,763

    Newest Member
    Diana061
    Joined