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Hi, I currently tried a 2 month trial for gluten free. Some of my symptoms decreased heavily, but I wanted a medical diagnosis. So I've been eating gluten for about a month and quite a few of my symptoms have came back and more. The bad gas came back, bloating more, the first time trying bread again I had to rush to the toilet a few times (d) and have got it odd times. Symptoms what have came since before, fatigued, dry lips a lot more especially in the morning, heel pain,dizziness and I've developed a lump on my foot (opposite to a bonion, called a bonionette if it is that) Are these all symptoms too? Could some be a nutritional deficiency?(Bone pain?) Thanks

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I had a lot of problems when I reintroduced gluten for the challenge, much worse than before. I had already been diagnosed with plantar fasciitis, which leads to heel pain, which might be worth looking at. Mine disappeared again when I went gluten-free. It returns if I get glutened. I think it is a generalized inflammation that gets us on gluten sometimes.

Good luck with the challenge, not fun. I gave up on doctor's orders after 3 weeks. I hope you get the diagnosis you want, but if you get negative tests, consider non celiac gluten intolerance. I had negative tests, including genes, so my GI diagnosed NCGI. It might be worth keeping a record of symptoms on ane off gluten, my GI used these in diagnosis.

Best wishes Mw

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Hi There.

I am new to this but I just had to comment because I have similar symptoms. Have not yet been diagnosed yet, but had blood work done last week now waiting on results.

I have also been diagnosed with plantar facilis, pardon the spelling, but never really thought it could be connected. Also have dry lips too. My stomach has felt uneasy for weeks, lots of gas, having really loose stools, heartburn and acid reflex. Joint pain has been really bad lately and I have been diagnosed with a fistula.

It's just really nice I could find some others with the same kind of symptoms and its not all in my head!

Should also mention celiac disease runs in the famliy, grandmother, aunt and some cousins.

Think I should try going gluten free starting this week and see if things improve.

Anyhow sorry to ramble on.

Cheers!

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Thanks for the feedback! It runs in my family to as my mother has it. I'm just hoping it is celiac when I get tested to stop all my problems!

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Hey goodtime, just to let you know that if you need or choose an endoscopy or further blood tests, you need to be eating gluten still, so maybe consider holding off until testing is complete, if you want a diagnosis.

I wish you luck with finding the root of your problems. It is amazing what can turn out to be related

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Just to reiterate, as difficult as it is, please stay on gluten until your biopsy----for the most accurate result.

FWIW, I had what was called "Plantar fasciitis" too.

"itis" which means " inflammation" -- can occur anywhere in the body with a gluten problem.

In 2007, (before DX when I was very ill and did not know why) I had to have special inserts made, but still suffered terrible foot pain. I felt like I was stepping on glass when I got out of bed every morning and I could not walk without pain.

Now, 2 years after diagnosis, I have NO foot pain symptoms whatsoever and there is no need for the inserts a podiatrist told me I would "wear forever". This is just my experience, of course! :)

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Mindwarp, I was thinking if the blood test is positive I would just go gluten free and see if symptoms go away after time. I am already having a colonoscopy this month. It's prescreening to make sure I do not have Chron's or something else. Before I have surgery on the fistula. So I figure that is enough poking and prodding for now.

Irish Heart my plantar fasciitis is now a mild discomfort and in the left heel, when it first started it was really bad. But 2 days after it went away, than the next day was back again like it was at the first which is weird!

Anyhow I will keep you's posted on results and guess I will stay on gluten so if test come back neg they can do further testing.

Thanks for the replies!

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Thanks! Hope it is celiac and I can just get better and feel myself again! Has anyone had any problems with bonions?

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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