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Hi, I currently tried a 2 month trial for gluten free. Some of my symptoms decreased heavily, but I wanted a medical diagnosis. So I've been eating gluten for about a month and quite a few of my symptoms have came back and more. The bad gas came back, bloating more, the first time trying bread again I had to rush to the toilet a few times (d) and have got it odd times. Symptoms what have came since before, fatigued, dry lips a lot more especially in the morning, heel pain,dizziness and I've developed a lump on my foot (opposite to a bonion, called a bonionette if it is that) Are these all symptoms too? Could some be a nutritional deficiency?(Bone pain?) Thanks

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I had a lot of problems when I reintroduced gluten for the challenge, much worse than before. I had already been diagnosed with plantar fasciitis, which leads to heel pain, which might be worth looking at. Mine disappeared again when I went gluten-free. It returns if I get glutened. I think it is a generalized inflammation that gets us on gluten sometimes.

Good luck with the challenge, not fun. I gave up on doctor's orders after 3 weeks. I hope you get the diagnosis you want, but if you get negative tests, consider non celiac gluten intolerance. I had negative tests, including genes, so my GI diagnosed NCGI. It might be worth keeping a record of symptoms on ane off gluten, my GI used these in diagnosis.

Best wishes Mw

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Hi There.

I am new to this but I just had to comment because I have similar symptoms. Have not yet been diagnosed yet, but had blood work done last week now waiting on results.

I have also been diagnosed with plantar facilis, pardon the spelling, but never really thought it could be connected. Also have dry lips too. My stomach has felt uneasy for weeks, lots of gas, having really loose stools, heartburn and acid reflex. Joint pain has been really bad lately and I have been diagnosed with a fistula.

It's just really nice I could find some others with the same kind of symptoms and its not all in my head!

Should also mention celiac disease runs in the famliy, grandmother, aunt and some cousins.

Think I should try going gluten free starting this week and see if things improve.

Anyhow sorry to ramble on.

Cheers!

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Thanks for the feedback! It runs in my family to as my mother has it. I'm just hoping it is celiac when I get tested to stop all my problems!

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Hey goodtime, just to let you know that if you need or choose an endoscopy or further blood tests, you need to be eating gluten still, so maybe consider holding off until testing is complete, if you want a diagnosis.

I wish you luck with finding the root of your problems. It is amazing what can turn out to be related

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Just to reiterate, as difficult as it is, please stay on gluten until your biopsy----for the most accurate result.

FWIW, I had what was called "Plantar fasciitis" too.

"itis" which means " inflammation" -- can occur anywhere in the body with a gluten problem.

In 2007, (before DX when I was very ill and did not know why) I had to have special inserts made, but still suffered terrible foot pain. I felt like I was stepping on glass when I got out of bed every morning and I could not walk without pain.

Now, 2 years after diagnosis, I have NO foot pain symptoms whatsoever and there is no need for the inserts a podiatrist told me I would "wear forever". This is just my experience, of course! :)

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Mindwarp, I was thinking if the blood test is positive I would just go gluten free and see if symptoms go away after time. I am already having a colonoscopy this month. It's prescreening to make sure I do not have Chron's or something else. Before I have surgery on the fistula. So I figure that is enough poking and prodding for now.

Irish Heart my plantar fasciitis is now a mild discomfort and in the left heel, when it first started it was really bad. But 2 days after it went away, than the next day was back again like it was at the first which is weird!

Anyhow I will keep you's posted on results and guess I will stay on gluten so if test come back neg they can do further testing.

Thanks for the replies!

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Thanks! Hope it is celiac and I can just get better and feel myself again! Has anyone had any problems with bonions?

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    • Couldn't have said it better!  
    • If you are going for an endoscopy, then please ask for a celiac antibodies COMPLETE panel.  This will help you determine if you have been diet compliant (zapped by hidden sources of gluten or accidental cross contamination) and if your doctor misses the (possible) damaged areas during the procedure.    That way you can rule out celiac disease and THEN worry about the possibility of other AI issues.   I did this last summer.  I got really sick.  My GI thought SIBO right off the bat.  But I asked just to be tested for celiac disease.  Sure enough, I had elevated antibodies.  No need to test for SIBO or anything else at that point.  I just waited a few months for symptoms to subside.   Good Luck to you!  
    • That's good Megan, that you were tested.  Many people have the genes, but only some develop the disease.  Your doctor is right about celiac often appearing after some kind of physical stress or illness. The tricky thing about eliminating one food is that you body may be reacting to multiple foods.  So not getting better could mean you just eliminated one problem instead of 3. It's not unusual to have digestion issues for quite a while after going gluten-free.  Our guts are damaged and that damage has to heal.  But it can't heal until the immune system stops it's attack.  The immune system attack/reaction can keep going for weeks to months.  So it can be a slow recovery.  Often people report getting better and then getting worse and going back and forth on symptoms. What doesn't help is that our bacteria in our guts can get really screwed up by the disease process.  We can't properly digest things so there is more undigested food for bacteria to thrive on.  Avoiding sugars and carbs can help with that issue. Here are some starting the gluten-free diet tips for the first 6 months.  Some of these you have already taken care of: Get tested before starting the gluten-free diet.
      Get your vitamin/mineral levels tested also.
      Don't eat in restaurants
      Eat only whole foods not processed foods.
      Eat only food you cook yourself, think simple foods, not gourmet meals.
      Take probiotics.
      Take gluten-free vitamins.
      Take digestive enzymes.
      Avoid dairy if it causes symptoms.
      Avoid sugars and starchy foods. They can cause bloating.
      Avoid alcohol.
      Watch out for cross contamination. Helpful threads: FAQ Celiac com
      http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/ Newbie Info 101
      http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
    • yes, I was tested for it. They said after stomach surgeries and other major things causing that much stress on your body you can become intolerant to gluten. It happened to my aunt as well who was in a horrible car accident. They said you can always carry the gene in your body and having that much stress on your body can start it.
    • A new study confirms a link between intestinal viral infections and celiac disease. View the full article
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