Hi, I currently tried a 2 month trial for gluten free. Some of my symptoms decreased heavily, but I wanted a medical diagnosis. So I've been eating gluten for about a month and quite a few of my symptoms have came back and more. The bad gas came back, bloating more, the first time trying bread again I had to rush to the toilet a few times (d) and have got it odd times. Symptoms what have came since before, fatigued, dry lips a lot more especially in the morning, heel pain,dizziness and I've developed a lump on my foot (opposite to a bonion, called a bonionette if it is that) Are these all symptoms too? Could some be a nutritional deficiency?(Bone pain?) Thanks
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7 replies to this topic
#2
Celiac Mindwarp
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Posted 09 February 2013 - 03:01 AM
I had a lot of problems when I reintroduced gluten for the challenge, much worse than before. I had already been diagnosed with plantar fasciitis, which leads to heel pain, which might be worth looking at. Mine disappeared again when I went gluten-free. It returns if I get glutened. I think it is a generalized inflammation that gets us on gluten sometimes.
Good luck with the challenge, not fun. I gave up on doctor's orders after 3 weeks. I hope you get the diagnosis you want, but if you get negative tests, consider non celiac gluten intolerance. I had negative tests, including genes, so my GI diagnosed NCGI. It might be worth keeping a record of symptoms on ane off gluten, my GI used these in diagnosis.
Best wishes Mw
Good luck with the challenge, not fun. I gave up on doctor's orders after 3 weeks. I hope you get the diagnosis you want, but if you get negative tests, consider non celiac gluten intolerance. I had negative tests, including genes, so my GI diagnosed NCGI. It might be worth keeping a record of symptoms on ane off gluten, my GI used these in diagnosis.
Best wishes Mw
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#3
goodtime78
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Posted 09 February 2013 - 04:59 AM
Hi There.
I am new to this but I just had to comment because I have similar symptoms. Have not yet been diagnosed yet, but had blood work done last week now waiting on results.
I have also been diagnosed with plantar facilis, pardon the spelling, but never really thought it could be connected. Also have dry lips too. My stomach has felt uneasy for weeks, lots of gas, having really loose stools, heartburn and acid reflex. Joint pain has been really bad lately and I have been diagnosed with a fistula.
It's just really nice I could find some others with the same kind of symptoms and its not all in my head!
Should also mention celiac disease runs in the famliy, grandmother, aunt and some cousins.
Think I should try going gluten free starting this week and see if things improve.
Anyhow sorry to ramble on.
Cheers!
I am new to this but I just had to comment because I have similar symptoms. Have not yet been diagnosed yet, but had blood work done last week now waiting on results.
I have also been diagnosed with plantar facilis, pardon the spelling, but never really thought it could be connected. Also have dry lips too. My stomach has felt uneasy for weeks, lots of gas, having really loose stools, heartburn and acid reflex. Joint pain has been really bad lately and I have been diagnosed with a fistula.
It's just really nice I could find some others with the same kind of symptoms and its not all in my head!
Should also mention celiac disease runs in the famliy, grandmother, aunt and some cousins.
Think I should try going gluten free starting this week and see if things improve.
Anyhow sorry to ramble on.
Cheers!
#4
adambryant
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Posted 09 February 2013 - 08:09 AM
Thanks for the feedback! It runs in my family to as my mother has it. I'm just hoping it is celiac when I get tested to stop all my problems!
#5
Celiac Mindwarp
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Posted 09 February 2013 - 03:56 PM
Hey goodtime, just to let you know that if you need or choose an endoscopy or further blood tests, you need to be eating gluten still, so maybe consider holding off until testing is complete, if you want a diagnosis.
I wish you luck with finding the root of your problems. It is amazing what can turn out to be related
I wish you luck with finding the root of your problems. It is amazing what can turn out to be related
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#6
IrishHeart
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Posted 09 February 2013 - 04:12 PM
Just to reiterate, as difficult as it is, please stay on gluten until your biopsy----for the most accurate result.
FWIW, I had what was called "Plantar fasciitis" too.
"itis" which means " inflammation" -- can occur anywhere in the body with a gluten problem.
In 2007, (before DX when I was very ill and did not know why) I had to have special inserts made, but still suffered terrible foot pain. I felt like I was stepping on glass when I got out of bed every morning and I could not walk without pain.
Now, 2 years after diagnosis, I have NO foot pain symptoms whatsoever and there is no need for the inserts a podiatrist told me I would "wear forever". This is just my experience, of course!
FWIW, I had what was called "Plantar fasciitis" too.
"itis" which means " inflammation" -- can occur anywhere in the body with a gluten problem.
In 2007, (before DX when I was very ill and did not know why) I had to have special inserts made, but still suffered terrible foot pain. I felt like I was stepping on glass when I got out of bed every morning and I could not walk without pain.
Now, 2 years after diagnosis, I have NO foot pain symptoms whatsoever and there is no need for the inserts a podiatrist told me I would "wear forever". This is just my experience, of course!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
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#7
goodtime78
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Posted 09 February 2013 - 07:47 PM
Mindwarp, I was thinking if the blood test is positive I would just go gluten free and see if symptoms go away after time. I am already having a colonoscopy this month. It's prescreening to make sure I do not have Chron's or something else. Before I have surgery on the fistula. So I figure that is enough poking and prodding for now.
Irish Heart my plantar fasciitis is now a mild discomfort and in the left heel, when it first started it was really bad. But 2 days after it went away, than the next day was back again like it was at the first which is weird!
Anyhow I will keep you's posted on results and guess I will stay on gluten so if test come back neg they can do further testing.
Thanks for the replies!
Irish Heart my plantar fasciitis is now a mild discomfort and in the left heel, when it first started it was really bad. But 2 days after it went away, than the next day was back again like it was at the first which is weird!
Anyhow I will keep you's posted on results and guess I will stay on gluten so if test come back neg they can do further testing.
Thanks for the replies!
#8
adambryant
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Posted 10 February 2013 - 12:17 AM
Thanks! Hope it is celiac and I can just get better and feel myself again! Has anyone had any problems with bonions?
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