Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Severe Stomach Pain
0

4 posts in this topic

My 9 year old son has been having recurring stomach pain for 2-3 months. We have an appt with a GI specialist in one week. this weekend we ended up in the Emergency room, he was pale, severe stomach pain, dehydrated. Dehydrated because everything he eats and drinks was hurting his stomach.

Blood test revealed elevated glucose and xray showed lots of gas, no impaction. He has bouts of constipation then loose bowel movements to the point of pain.

His symptoms seem aggravated by breads, bagels, cookies and sweets! But just about anything upsets is tummy now.

Help!!

Does this sound like a celiac or GI? Dr. wants us to avoid gluten for a week? NO test done yet, besides blood work in ER, which was not specific for celiac.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had severe stomach pain before diagnosis. It wasn't enough for the emergency room, but it would make me double over. The problem with cutting out gluten before testing is that it could give you false negative results. Your son might have to be sick to test positive. I hope that you get through it quickly. Your poor son. If it is bad enough you could quit the gluten anyway and not worry about the official diagnosis, or hope that the testing would be positive anyways. That can lead to problems later though. For instance, my daughter's college requires a doctors note to provide a gluten free diet in residences.

0

Share this post


Link to post
Share on other sites

As a child, I remember being curled up in a ball on the couch after many meals because of the pain... and nothing helped it go away, I would just lay there for 30 minutes or more until it finally faded. As an adult, I learned to suck it up, but I wouldn't wish it on any little body. :( What you describe was definitely one of my symptoms, including the "C".

Avoiding gluten for a week will tell you very very little. The doctor should order tests, and schedule an endoscopic biopsy (if you want to go that route), and once his testing is complete then he should go gluten-free for at least 3 months. One week is barely enough time to notice a change; he could start noticing less stomach pain, but many people (like myself) end up feeling worse, headachey, tired and cranky in those early days... There is a chance the change won't be positive at first if he has any sort of withdrawl.

Besides, blood work will come up as a negative, regardless of his celiac status, if he is not consuming gluten at the time of testing. This is especially true if he is new to the disease and his autoantibody levels are not high yet; in fact being in the early stages of the disease could cause a false negative blood test even if he is eating gluten.

I would get the blood work done as soon as possible; your family doctor can order it. The most common blood tests are:

ttg IgA and ttg IgG

EMA IgA

DGP IgA and DGP IgG

total serum IgA (to see if he has adequate levels of IgA for the tests to be relevant

If those tests are negative, try the gluten-free diet anyway. GI is MUCH more common than celiac and can cause the same awful symptoms, just without the organ damage. As you know, GI is not something to be taken lightly.

Celiacs are often low in nutrients so you might see if you can have his D, B12, iron, Ca, and potassium levels too.

Good luck to you. I hope he feels well soon.

0

Share this post


Link to post
Share on other sites

As a child, I remember being curled up in a ball on the couch after many meals because of the pain... and nothing helped it go away, I would just lay there for 30 minutes or more until it finally faded. As an adult, I learned to suck it up, but I wouldn't wish it on any little body. :( What you describe was definitely one of my symptoms, including the "C".

Avoiding gluten for a week will tell you very very little. The doctor should order tests, and schedule an endoscopic biopsy (if you want to go that route), and once his testing is complete then he should go gluten-free for at least 3 months. One week is barely enough time to notice a change; he could start noticing less stomach pain, but many people (like myself) end up feeling worse, headachey, tired and cranky in those early days... There is a chance the change won't be positive at first if he has any sort of withdrawl.

Besides, blood work will come up as a negative, regardless of his celiac status, if he is not consuming gluten at the time of testing. This is especially true if he is new to the disease and his autoantibody levels are not high yet; in fact being in the early stages of the disease could cause a false negative blood test even if he is eating gluten.

I would get the blood work done as soon as possible; your family doctor can order it. The most common blood tests are:

ttg IgA and ttg IgG

EMA IgA

DGP IgA and DGP IgG

total serum IgA (to see if he has adequate levels of IgA for the tests to be relevant

If those tests are negative, try the gluten-free diet anyway. GI is MUCH more common than celiac and can cause the same awful symptoms, just without the organ damage. As you know, GI is not something to be taken lightly.

Celiacs are often low in nutrients so you might see if you can have his D, B12, iron, Ca, and potassium levels too.

Good luck to you. I hope he feels well soon.

Thank you so much, that helps...we are heading to our primary Dr. tomorrow, and I will bring this list of blood work that I would like tested!
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,152
    • Total Posts
      919,607
  • Topics

  • Posts

    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,189
    • Most Online
      1,763

    Newest Member
    Raany
    Joined