Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Severe Stomach Pain
0

4 posts in this topic

My 9 year old son has been having recurring stomach pain for 2-3 months. We have an appt with a GI specialist in one week. this weekend we ended up in the Emergency room, he was pale, severe stomach pain, dehydrated. Dehydrated because everything he eats and drinks was hurting his stomach.

Blood test revealed elevated glucose and xray showed lots of gas, no impaction. He has bouts of constipation then loose bowel movements to the point of pain.

His symptoms seem aggravated by breads, bagels, cookies and sweets! But just about anything upsets is tummy now.

Help!!

Does this sound like a celiac or GI? Dr. wants us to avoid gluten for a week? NO test done yet, besides blood work in ER, which was not specific for celiac.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had severe stomach pain before diagnosis. It wasn't enough for the emergency room, but it would make me double over. The problem with cutting out gluten before testing is that it could give you false negative results. Your son might have to be sick to test positive. I hope that you get through it quickly. Your poor son. If it is bad enough you could quit the gluten anyway and not worry about the official diagnosis, or hope that the testing would be positive anyways. That can lead to problems later though. For instance, my daughter's college requires a doctors note to provide a gluten free diet in residences.

0

Share this post


Link to post
Share on other sites

As a child, I remember being curled up in a ball on the couch after many meals because of the pain... and nothing helped it go away, I would just lay there for 30 minutes or more until it finally faded. As an adult, I learned to suck it up, but I wouldn't wish it on any little body. :( What you describe was definitely one of my symptoms, including the "C".

Avoiding gluten for a week will tell you very very little. The doctor should order tests, and schedule an endoscopic biopsy (if you want to go that route), and once his testing is complete then he should go gluten-free for at least 3 months. One week is barely enough time to notice a change; he could start noticing less stomach pain, but many people (like myself) end up feeling worse, headachey, tired and cranky in those early days... There is a chance the change won't be positive at first if he has any sort of withdrawl.

Besides, blood work will come up as a negative, regardless of his celiac status, if he is not consuming gluten at the time of testing. This is especially true if he is new to the disease and his autoantibody levels are not high yet; in fact being in the early stages of the disease could cause a false negative blood test even if he is eating gluten.

I would get the blood work done as soon as possible; your family doctor can order it. The most common blood tests are:

ttg IgA and ttg IgG

EMA IgA

DGP IgA and DGP IgG

total serum IgA (to see if he has adequate levels of IgA for the tests to be relevant

If those tests are negative, try the gluten-free diet anyway. GI is MUCH more common than celiac and can cause the same awful symptoms, just without the organ damage. As you know, GI is not something to be taken lightly.

Celiacs are often low in nutrients so you might see if you can have his D, B12, iron, Ca, and potassium levels too.

Good luck to you. I hope he feels well soon.

0

Share this post


Link to post
Share on other sites

As a child, I remember being curled up in a ball on the couch after many meals because of the pain... and nothing helped it go away, I would just lay there for 30 minutes or more until it finally faded. As an adult, I learned to suck it up, but I wouldn't wish it on any little body. :( What you describe was definitely one of my symptoms, including the "C".

Avoiding gluten for a week will tell you very very little. The doctor should order tests, and schedule an endoscopic biopsy (if you want to go that route), and once his testing is complete then he should go gluten-free for at least 3 months. One week is barely enough time to notice a change; he could start noticing less stomach pain, but many people (like myself) end up feeling worse, headachey, tired and cranky in those early days... There is a chance the change won't be positive at first if he has any sort of withdrawl.

Besides, blood work will come up as a negative, regardless of his celiac status, if he is not consuming gluten at the time of testing. This is especially true if he is new to the disease and his autoantibody levels are not high yet; in fact being in the early stages of the disease could cause a false negative blood test even if he is eating gluten.

I would get the blood work done as soon as possible; your family doctor can order it. The most common blood tests are:

ttg IgA and ttg IgG

EMA IgA

DGP IgA and DGP IgG

total serum IgA (to see if he has adequate levels of IgA for the tests to be relevant

If those tests are negative, try the gluten-free diet anyway. GI is MUCH more common than celiac and can cause the same awful symptoms, just without the organ damage. As you know, GI is not something to be taken lightly.

Celiacs are often low in nutrients so you might see if you can have his D, B12, iron, Ca, and potassium levels too.

Good luck to you. I hope he feels well soon.

Thank you so much, that helps...we are heading to our primary Dr. tomorrow, and I will bring this list of blood work that I would like tested!
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,363
    • Total Posts
      920,544
  • Topics

  • Posts

    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
    • Hello we got her biopsy results back and they are normal.  The doc is calling her non celiac gluten intolerant and lactose intolerant.  Now we will just wait to see if the gluten-free diet helps her.  She does have elevated IgG to casein and wheat  I know there is controversy on whether that test is helpful or not but either way we are hoping she gets well going gluten-free    
    • My family was out camping earlier this month to our favorite lake.  They have a restaurant there we have going to for years.  Since I recently went gluten free, I was very nervous about trying out their menu.  Usually, restaurants have a select few items you can choose from that are considered "gluten-free" (i.e. Olive Garden).  However, this restaurant even had French Fries that were in a separate fryer than the rest of fry population.  I considered it a huge treat when they not only went out of their way to make sure you could get sandwiches gluten-free, but also had French fries and a dessert available.  The best part of it was I didn't get sick afterwards.  Yahoo!  Thank goodness it's 3 hours away.
    • too many of us are treated this way, unfortunately   ^^^^^  and many of us have been in the same (no quality of life!  always sick! )  situation and yes, it can be life threatening if left untreated.  so glad you're feeling better   no thanks to the almighty doctor  i have a celiac diagnosis and my g.p. (who i go to - or used to go to - for my check ups, see how my blood pressure is, vitamin levels, etc.  normal maintenance, you know) tried to give me viberzi!!  for my ibs-d !!  what???  i have celiac.  i was furious!!  (i'm still pretty upset)   o, the good news was that he gave me a coupon for the first month.  after that, it's THIRTY DOLLARS A MONTH.   not to mention all the lovely side effects (one of them was diarrhea!!)   no, thanks, buddy....   anyways, rant over lolz - welcome to the forum!
    • Those numbers are all perfect meaning they show you likely don't have celiac.  Those tests are very accurate IF you are eating a normal diet of gluten.  You must be eating gluten for weeks prior to this testing.  So if you have not been then yes these results are not accurate.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,437
    • Most Online
      1,763

    Newest Member
    Laurabella
    Joined