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Newly gluten-free And Dairy Free And Itchy Sores Everywhere! Aaaah!
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Hi, I post here all the time, and I am newly dx'ed with celiac disease and a dairy allergy and I have since cut these foods from my diet. I have been off gluten for over a week, almost four days free of dairy. I already struggled with itchy, flakey and very sore scalp before I found out I had food issues. Well now that I have been gluten free, I have been getting itchy sores all over my scalp, and they kind of ooze some, and I also have been getting the sores on my arms, the inside of my fingers and on my neck, more the back and side part namely. Has this ever happened to anyone before after newly cutting out gluten or dairy? I have no idea if this is dh or not, but it seems strange that it seems to have gotten worse since cutting out the trigger foods. Any guesses on what is going on? Oh please not another allergy!! Lol

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And my scalp has been more itchier than normal to add to my symptoms.

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If its itchier than normal in your scalp and you have those spots, to me that screams that its healing. I have a very bad habit of digging my scalp raw when i'm stressed (i don't realize i'm doing it until i have a patch already done :( ) and when its in its healing stage, oh does it ever itch!

The rest of the body, however, sounds like DH to me.

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Wow, guess I never realized how sick I was... This whole thing is just so crazy to me! Thanks for your reply!

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It's possible that it's dh but not being caused by going gluten-free --- instead it may have been going to present itself anyway but you got dx'd before it did. If it's dh then it can continue to present off & on for a couple years possibly. You see, with dh, the antibodies stay in the skin & it takes time for them to dissipate. Going gluten-free is not a magic bullet as far as dh is concerned. It's sort of like having no brakes on a car & you have to let it coast to a stop. But I will also say that there are many skin rashes that people with celiac disease are prone to. You've gone gluten-free --- that's all you can do. Just be extremely vigilant not to get cc'd. If it is dh; dh is sensitive to the tiniest amount of gluten.

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I wanted to let you guys know that I took some benadryl later that evening and the sores stopped. The itching also stopped, so I was allergic to something, I don't know what.. But I really appreciate all of your replies and answers!

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HOORAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
    • So ok, I get the pain/bloating thing, but it still feels so crazy. But my god, I look 6 months preggers after dinner and 4 months the rest of the time. How long will this last?! I have not gained any weight but have to hide me belly now. I can hardly breath! Omg, that does take me back to pregnancy.  I had "acute marked focal duodenditis" a few weeks ago and an elevated DGP. the pain sometimes makes me seriously think I must be bleeding somewhere. It is actually worse then 3 weeks ago. Although many of the other glutening symptoms are finally vanishing. Even my mid and lower back is tender to touch. Sometimes it burns, aches or like someone is stabbing me in my side. My ribs hurt and everything is tender.  I am on protonix and fish oil. I have a prn for xanax which helps the pain (off market use for muscle relaxant).    I am fair skinned and notice a red under-the-skin discolored rash that comes and goes on my upper stomach. Sometimes it travels down one side. Not itchy. Almost like I can actually see the inflammation under my skin.  1) when will I stop looking knocked up?  2) Any other fair-skinned folks notice a purpleish-red rash on your bellies? It mostly goes away and comes back, which I tske to be a good sign. 
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