Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Do Celiac's Have An Odor?


  • Please log in to reply

17 replies to this topic

#1 *Daniella*

 
*Daniella*

    Community Member

  • Advanced Members
  • PipPipPip
  • 42 posts
 

Posted 10 February 2013 - 03:50 PM

The other day my boyfriend said he can tell when I have been glutened because I admit a distinct odor through my skin. He said it's NOT foul smelling but more medicinal. Has anybody else been told that?
  • 0
Diagnosed 10/20/08
Positive Bloodwork and Biopsy

Celiac.com Sponsor:

#2 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 10 February 2013 - 04:10 PM

Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?
not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 a1956chill

 
a1956chill

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,365 posts
 

Posted 10 February 2013 - 04:18 PM

Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?
not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)

Not me either,, I will take the word of the fool ,, I mean test subject,, that agrees to perform that controlled study :rolleyes:,

I have known people who drink a LOT of alcohol to have the odor of alcohol come thru their skin after a particularly rough binge .
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#4 JNBunnie1

 
JNBunnie1

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,326 posts
 

Posted 10 February 2013 - 04:29 PM

HAHAHAHAHAH!!!!!!

I do know that in my experience living with a man for six years, he would most definitely smell
different when he was sick, like with a cold or something. And my mother always said she could
smell when we were sick. It's not out of the realm of logic that the chemistry in your body
would change enough when glutened to affect your odor. Especially to someone with a very
sensitive sniffer, I smell things most people don't notice. Interesting topic!
  • 0
If you're going through hell, keep going. ~Winston Churchill

#5 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 10 February 2013 - 04:39 PM

I agree on the "alcohol smell" after a binge. No question!! I agree on the "sick smell" too. That's perspiration coming out your pores, right?

but if we're gonna ooze after a glutening, wouldn't we smell like a bagel??

Just sayin.

I can smell things no one else can, too. Really, I have "super nose" (the hubs thinks I am nuts sometimes.) but I am "fine tuned".... same with taste and hearing. Super Sonic.

That said, I bet I may probably smell like OTHER things besides "medicinal" after a gluten hit.....because you can bet I am going to probably heave or be in the loo for a bit.... :ph34r:
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#6 GFinDC

 
GFinDC

    A little farting never hurt anybody... :-).

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,159 posts
 

Posted 10 February 2013 - 05:46 PM

People who smoke certaintly have an odor. Some people smell like cinnamon too. Don't ask me why. Rose water is medicinal right? So maybe we smell like rose water. Otherwise I can't imagine why we would have a particular odor, so there, says FP.
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#7 JNBunnie1

 
JNBunnie1

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,326 posts
 

Posted 10 February 2013 - 06:12 PM

Well, haven't a lot of people reported hormone disruptions from glutening? Night sweats,
hot flashes, booby tenderness, cycle issues... I have read of pregnant women smelling
different, as reported by their husbands or mothers. So why not a glutening? Nobody
would ever fund the study of something like this, but it sure is interesting!
  • 0
If you're going through hell, keep going. ~Winston Churchill

#8 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 10 February 2013 - 09:15 PM

My hubs' aunt said she could smell people who had cancer :blink:
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#9 JNBunnie1

 
JNBunnie1

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,326 posts
 

Posted 10 February 2013 - 09:39 PM

Dogs can smell cancer!
  • 0
If you're going through hell, keep going. ~Winston Churchill

#10 a1956chill

 
a1956chill

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,365 posts
 

Posted 11 February 2013 - 01:46 AM

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#11 Celiac Mindwarp

 
Celiac Mindwarp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,167 posts
 

Posted 11 February 2013 - 02:06 AM

I am à sensitive sniffer :)
I can sometimes smell when a diabetic is out of whack. It is the classic sweet pear drop smell that people say is on the breath, but I smell it on the skin. I had a boyfriend with diabetes, but I had to pretend it didn't happen, it used to annoy him that I knew. Mind you, it annoyed me that he used to get drunk and expect his mates or me to get him out of fits. Hence ex.

Another friend was freaked out when I asked if he was diabetic. Turned out he was prediabetic.

Not sure about celiac. I think there is a general sick smell.
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#12 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 11 February 2013 - 05:12 AM

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)


The startled skunk walking by the open window in summer just about kills me. <_<
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 ncdave

 
ncdave

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 232 posts
 

Posted 11 February 2013 - 06:25 AM

Eat some chocolate an smell the skin on your arm, pretty amazing !
  • 0
gluten free 12/11
dairy free 2/12
soy free 10/12
corn free 10/12
nightshade free 10/12

#14 cavernio

 
cavernio

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 428 posts
 

Posted 11 February 2013 - 07:55 AM

I've often wondered this. I wonder why we don't get dogs to diagnose all sorts of diseases for us, we trust them to find bombs and drugs.
I personally haven't noticed a celiac odor, but have wondered a lot if it's contributed to my own pretty strong BO.
  • 0
diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#15 mommida

 
mommida

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,958 posts
 

Posted 11 February 2013 - 08:39 AM

We had a dog that loved everybody. She would growl at anyone who had cancer (most times pre diagnoses).

I honest to God can smell ice (ice rink ice).

A lot of us mid westerners can smell spring. (it smells like black dirt and it is not the first day of uncovered ground from snow melt)

The boyfriend just has a really good sniffer, very well in tuned to you. He will probably know your pregnant before you do.
  • 0
Michigan




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: