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Casein Withdrawal - When Will It Be Over?!
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Hi all. I recently had a positive IgG test for Casein so am taking this out of my diet - which would make sense as over the last year I had added it back in after coming off gluten and amongst other things I've had weight gain (crazy!), water retention, hot sweats, itching, wind, constipation etc. Now I'm off it the wind, sweating and constipation are resolving pretty quickly but I am itching like mad particularly in the afternoons after a busy day. I've tried liver herbs to help with the detox but they aren't doing much. Also I wondered if anyone knew when the water would start to come off. I have bad swelling in my lower legs by the end of the day and have also been treated for adrenal fatigue (I suppose from having eaten something for some time that my body didn't like). Any tips and stories would be greatly welcome. I know not directly about gluten but I know a lot of you will also have this issue with milk/casein because of the celiac. Thanks!

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My casein symptoms involve a dry mouth and possibly a low grade fever, or maybe decrease in body temperature. I've only gained weight since being gluten and casein free, despite already being obese. I've never suffered from gluten withdrawal or dairy withdrawal that other people talk about.

I have never heard of IgG tests for anything beyond gluten. Who did this test and why is it positive to casein and not, for instance, gluten? For instance, when I asked my GI about whether I could get tested to see if I had an issue with dairy beyond lactose (like casein or whey), he said it wasn't really done and that my IgA (yeah, I know that's not IgG) was most very, very likely elevated due to gluten. With a confirmation biopsy, there's no question that I'm a celiac.

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Hey Cavernio. thanks for your reply. things are already starting to get better. I'm loosing that feeling like I have water oozing from every pore and the water weight is starting to come off too. Tummy still a bit dodgy though and ear still ringing but I suppose it's going to take a while to get everything back to balance. The gluten didn't show on my IgG because I stopped eating it over a year and a half ago - so it wouldn't show up because all the IgG storms with the markers for gluten will have gone away. Eggs and soya didn't show for the same reason - I stopped eating them about 4 months ago. But my acupuncturist can feel in my pulse that they and the gluten are bad for me. Perhaps in a year or two she won't feel that reaction anymore because I had zero of any of them in my system. I think the moral of the story for me is - eat clean, eat healthy and don't ever have any proteins that remotely look or behave like gluten... eggs, casein, soy are all very similar. Makes eating out a challenge! I'm always opting for steak and plain boiled potatoes and peas! Thank goodness for olive oil and balsamic!

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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