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Casein Withdrawal - When Will It Be Over?!

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Hi all. I recently had a positive IgG test for Casein so am taking this out of my diet - which would make sense as over the last year I had added it back in after coming off gluten and amongst other things I've had weight gain (crazy!), water retention, hot sweats, itching, wind, constipation etc. Now I'm off it the wind, sweating and constipation are resolving pretty quickly but I am itching like mad particularly in the afternoons after a busy day. I've tried liver herbs to help with the detox but they aren't doing much. Also I wondered if anyone knew when the water would start to come off. I have bad swelling in my lower legs by the end of the day and have also been treated for adrenal fatigue (I suppose from having eaten something for some time that my body didn't like). Any tips and stories would be greatly welcome. I know not directly about gluten but I know a lot of you will also have this issue with milk/casein because of the celiac. Thanks!


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My casein symptoms involve a dry mouth and possibly a low grade fever, or maybe decrease in body temperature. I've only gained weight since being gluten and casein free, despite already being obese. I've never suffered from gluten withdrawal or dairy withdrawal that other people talk about.

I have never heard of IgG tests for anything beyond gluten. Who did this test and why is it positive to casein and not, for instance, gluten? For instance, when I asked my GI about whether I could get tested to see if I had an issue with dairy beyond lactose (like casein or whey), he said it wasn't really done and that my IgA (yeah, I know that's not IgG) was most very, very likely elevated due to gluten. With a confirmation biopsy, there's no question that I'm a celiac.


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Hey Cavernio. thanks for your reply. things are already starting to get better. I'm loosing that feeling like I have water oozing from every pore and the water weight is starting to come off too. Tummy still a bit dodgy though and ear still ringing but I suppose it's going to take a while to get everything back to balance. The gluten didn't show on my IgG because I stopped eating it over a year and a half ago - so it wouldn't show up because all the IgG storms with the markers for gluten will have gone away. Eggs and soya didn't show for the same reason - I stopped eating them about 4 months ago. But my acupuncturist can feel in my pulse that they and the gluten are bad for me. Perhaps in a year or two she won't feel that reaction anymore because I had zero of any of them in my system. I think the moral of the story for me is - eat clean, eat healthy and don't ever have any proteins that remotely look or behave like gluten... eggs, casein, soy are all very similar. Makes eating out a challenge! I'm always opting for steak and plain boiled potatoes and peas! Thank goodness for olive oil and balsamic!


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    • I have the same symptoms.  These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia.  I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea. 
    • Usually I'm using apps to tell me what celiacs have thought about the restaurants in the area and repeatedly eating at a few different places I haven't gotten sick. Now that I think about it, gluten was a definite possibility. I ,however, just got all negative results from all the following tests so I'm guessing I'm doing ok on that front. -Basic metabolic panel -Liver enzyme panel -CBC -Serum IgA -Tissue transglutaminase(tTG), IgA -Tissue transglutaminase(tTG), IgG -Thyroxine(T4), free direct serum -Thyroid stimulating hormone I thought the same thing about positive antibodies and non-celiac sensitivity reading this; l'm seeing his nurse practioner in two weeks so I'm going to take this and basically argue with what he said and see how that goes haha. I'm gonna guess not real well. I'm going to push being tested for other autoimmune diseases in addition.  
    • I was dx with duoedenitis end of August. No mention of a stomach, esophagus or duoendal ulcer. Just a small hernia. Less then 2cm. But I have a LOT of pain right below the breast bone and I jumped when it was recently touched on exam. I can even feel a small bump in the area. I feel so dizzy and unwell, like some kind of bacteria is invading my brain and am very queasy still.  My heart still feels weird too.  Bloodwork normal, a bit low on protein which is unreal because I get a ton of it but it is always is low if I have not eaten. Mildly elevated myeloycytes and basophils. My GI will probably not see me for a week or two, my primary care put me on sucralfate.  As soon as the food hits my digestive system I feel really weird all over, stomach, chest, throat, head. Just feel like I have this horrible thing infecting my body.  Did anyone feel ulcer pain and have it NOT be an ulcer? I suppose one could have developed since August. 
    • Hi AWOL, Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be err on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.
    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
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