Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Are These The Right Blood Tests?

7 posts in this topic

My 9 year old had his blood drawn today, these are the tests ordered:


Comp. Metabolic Panel


TSH, ultrasensitive



Vit. D -25 Hydroxy


Share this post

Link to post
Share on other sites

Ads by Google:

This is the full celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

It is hard to know what is meant by CELIAC Ab panel. If it is only the tests with "antibody" in its name, it may not include the DGP (a newer test), or the total serum IgA which is an important control for all IgA testing. Can you call the lab and ask them what they consider to be a CELIAC Ab panel? And if it does not include the last two I would ask my doctor to include them if I were you, if it is not too late.

The other tests are a complete blood count and metabolic panel as it says, thyroid function, iron and vitamin D.


Share this post

Link to post
Share on other sites

I agree with Mushroom. I, too am not too sure what the Celiac AB panel involves, but she posted the current serologic testing in her previous post. It's a complete series of six test, which speak to each other...for a more definative diagnosis. I would insist on nothing less.

It's also good to be tested for other issues. There could be a common link or this issue could be very independent from a gluten issues.

Best of luck to you with your testing.


Share this post

Link to post
Share on other sites


Seeing the above tests, I was told by doc yesterday that for a celiac blood test (UK) I would only need to consume gluten for two weeks and that the test is sensitive. Didn't ask which test this is as previously believed that you had to eat lots of gluten for three months :o which I cannot do. I am self-diagnosed but have DH and no real doubt in my mind, just every so often have misgivings and wonder if i'm just on a fad. Negative results would make me feel so stupid. Does having DH mean celiac blood tests have higher incidence of false negative? I showed anti gliadin antibodies on saliva test which recommended gluten free. Have had DH (self diagnosed but classic case) and Hashi's since teens. Sensitive to iodine - reaction with DH and hypothyroid - and Sooooooooooo can't eat gluten!!!

Feeling very down with self-doubt at the moment - doc relying on useless TSH, reduced dose (thyroid hormone) last Nov and now have lots of old enemies (hypo symptoms) back.

Any advice on tests?

Will ring doc and find out what blood test he was on about.


Share this post

Link to post
Share on other sites

My UK doctor said one week gluten challenge, but changed to 6 weeks when I showed her the coeliac UK advice.

We seem to have different tests as standard, but I have yet to get anyone to tell me what they are. Mine came back negative, with no ranges.

There is no need to feel stupid. Diagnosis is a difficult process, and often confusing. Once your testing is done, it is worth trying strictly gluten-free. This is often the best test.

I did this, and my GI diagnosed me non celiac gluten intolerant on the basis of my reaction to the gluten challenge (I bailed after 3 weeks and will never repeat) and response to gluten-free diet.

I feel way better than a few months ago.

Good luck with your journey, ask lots of questions :)


Share this post

Link to post
Share on other sites

Hi Mindwarp

Been gluten free over 12 months and think a 3 month challenge might be the end of me :o - would be unable to function. On two weeks with gluten being mentioned by doc, just thought that perhaps it was worth a try for official diagnoses. While I don't need this for myself, I get fed up with the reaction of others giving you that 'yeah, yeah' look - you know the one I mean! - especially the doc!

I mentioned to him about reaction to other foods, soy, dairy, rice, pots ...... he said if I was cutting out foods, including gluten, I was bound to start getting reactions to them - what does that mean ??????

Feeling in a bad place at the moment - so am probably best ignored :ph34r: .


Share this post

Link to post
Share on other sites

Hi, I think we just need to keep asking questions and following our guts (ha ha). I am finding working out the other intolerances extremely difficult. I would say stick around, not sure being ignored is the way to go.

I did have a test at 3 weeks, though it was negative. If you have already started eating gluten, maybe do the 2 weeks and get the test. Personally, I wouldn't do it again now.

I was upset when I got a negative for celiac. I am keeping going with the non celiac gluten intolerance. I think because I take it seriously, other people do, mostly. I think we just gotta keep going. I had a bad day today, but coming here and knowing I am not alone helps.

Sending hugs Mw


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • I understand. Poor thing, made doubly rough because 13 is a really hard age even in the best of times. OK, at 13 she should show the damage in the biopsies. I didn't know if she was 2 or 3 yrs. old & in those cases sometimes they just plain haven't lived long enough to be damaged where the biopsies pick it up - it can be so patchy then.  Gosh, I'm really feeling for her & you both and I so want to say take her off gluten the moment the endoscopy is over but I'm afraid to say that b/c I've seen some pretty weird things go on that you would never expect. Docs can be so uninformed! Please let us know how things turn out & send your daughter some hugs from me and tell her I believe her. Please let her know that most of us had been told by doctors they think it's all in our heads, didn't believe us, blew us off so we know exactly how she feels. Remind her her pedi believes her & he's been more helpful than the GI has.  Press the GI for 6-8 biopsies but a bare minimum of 6.  {{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member