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Are These The Right Blood Tests?
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7 posts in this topic

My 9 year old had his blood drawn today, these are the tests ordered:

CBC

Comp. Metabolic Panel

FREE t4

TSH, ultrasensitive

CELIAC Ab Panel

Iron

Vit. D -25 Hydroxy

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This is the full celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

It is hard to know what is meant by CELIAC Ab panel. If it is only the tests with "antibody" in its name, it may not include the DGP (a newer test), or the total serum IgA which is an important control for all IgA testing. Can you call the lab and ask them what they consider to be a CELIAC Ab panel? And if it does not include the last two I would ask my doctor to include them if I were you, if it is not too late.

The other tests are a complete blood count and metabolic panel as it says, thyroid function, iron and vitamin D.

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I agree with Mushroom. I, too am not too sure what the Celiac AB panel involves, but she posted the current serologic testing in her previous post. It's a complete series of six test, which speak to each other...for a more definative diagnosis. I would insist on nothing less.

It's also good to be tested for other issues. There could be a common link or this issue could be very independent from a gluten issues.

Best of luck to you with your testing.

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Hi

Seeing the above tests, I was told by doc yesterday that for a celiac blood test (UK) I would only need to consume gluten for two weeks and that the test is sensitive. Didn't ask which test this is as previously believed that you had to eat lots of gluten for three months :o which I cannot do. I am self-diagnosed but have DH and no real doubt in my mind, just every so often have misgivings and wonder if i'm just on a fad. Negative results would make me feel so stupid. Does having DH mean celiac blood tests have higher incidence of false negative? I showed anti gliadin antibodies on saliva test which recommended gluten free. Have had DH (self diagnosed but classic case) and Hashi's since teens. Sensitive to iodine - reaction with DH and hypothyroid - and Sooooooooooo can't eat gluten!!!

Feeling very down with self-doubt at the moment - doc relying on useless TSH, reduced dose (thyroid hormone) last Nov and now have lots of old enemies (hypo symptoms) back.

Any advice on tests?

Will ring doc and find out what blood test he was on about.

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My UK doctor said one week gluten challenge, but changed to 6 weeks when I showed her the coeliac UK advice.

We seem to have different tests as standard, but I have yet to get anyone to tell me what they are. Mine came back negative, with no ranges.

There is no need to feel stupid. Diagnosis is a difficult process, and often confusing. Once your testing is done, it is worth trying strictly gluten-free. This is often the best test.

I did this, and my GI diagnosed me non celiac gluten intolerant on the basis of my reaction to the gluten challenge (I bailed after 3 weeks and will never repeat) and response to gluten-free diet.

I feel way better than a few months ago.

Good luck with your journey, ask lots of questions :)

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Hi Mindwarp

Been gluten free over 12 months and think a 3 month challenge might be the end of me :o - would be unable to function. On two weeks with gluten being mentioned by doc, just thought that perhaps it was worth a try for official diagnoses. While I don't need this for myself, I get fed up with the reaction of others giving you that 'yeah, yeah' look - you know the one I mean! - especially the doc!

I mentioned to him about reaction to other foods, soy, dairy, rice, pots ...... he said if I was cutting out foods, including gluten, I was bound to start getting reactions to them - what does that mean ??????

Feeling in a bad place at the moment - so am probably best ignored :ph34r: .

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Hi, I think we just need to keep asking questions and following our guts (ha ha). I am finding working out the other intolerances extremely difficult. I would say stick around, not sure being ignored is the way to go.

I did have a test at 3 weeks, though it was negative. If you have already started eating gluten, maybe do the 2 weeks and get the test. Personally, I wouldn't do it again now.

I was upset when I got a negative for celiac. I am keeping going with the non celiac gluten intolerance. I think because I take it seriously, other people do, mostly. I think we just gotta keep going. I had a bad day today, but coming here and knowing I am not alone helps.

Sending hugs Mw

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
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    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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