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Place To Say Hi?
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9 posts in this topic

I've looked around and I don't see a place for new members like me to introduce themselves. Am I missing something or should I just dive in maybe describing my diagnosis in that forum?

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I've looked around and I don't see a place for new members like me to introduce themselves. Am I missing something or should I just dive in maybe describing my diagnosis in that forum?

You may dive off the diving board in the section than pertains to your questions.

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Nope. No cheerful greeting for you. Instead you get the immediate helpful support of the people that frequent the section you've chosen.

Problem with the kiddos? Post in the parents section and get the 'hello' from moms and dads who have been there.

Nasty skin problems? Scratch along with the posters in the DH section.

Want to pretend for a little while that you've never heard of gluten? Join us in the 'tickle me elbow' thread or on the song game in the "anything other than..." forum

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Hi,

Some people post an introduction in the Celiac Meeting Room. But there is no requirement to do that.

So here's a cheerful greeting for you anyway! Hi ! :D

http://www.celiac.co...c-meeting-room/

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Welcome Crazyfly!

Post away...there is always someone hanging around that can answer questions or provide a virtual shoulder when needed.

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I've looked around and I don't see a place for new members like me to introduce themselves. Am I missing something or should I just dive in maybe describing my diagnosis in that forum?

Hi, I'm new too and I just spent the last hours looking for the same thing! I've never blogged so I'm not sure how to even post my questions.

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Hi, I'm new too and I just spent the last hours looking for the same thing! I've never blogged so I'm not sure how to even post my questions.

Judging from your name, I assume you will be posting about your child.  You might try the section called Parents of Kids or Babies, and start a new topic there.  There is a Start a New Topic Button and a space for a caption. :)

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Judging from your name, I assume you will be posting about your child.  You might try the section called Parents of Kids or Babies, and start a new topic there.  There is a Start a New Topic Button and a space for a caption. :)

Thank you!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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