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Staying In Hotels
#1
Posted 12 February 2013 - 09:37 PM
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#2
Posted 13 February 2013 - 02:06 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#3
Posted 13 February 2013 - 05:02 AM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#4
Posted 13 February 2013 - 05:42 AM
Have a good trip, wherever you decide to go.
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein ![]()
Celiac.com - Celiac Disease Board Moderator
#5
Posted 13 February 2013 - 04:49 PM
Like Shroom, I have a hard time sleeping through the night on an uncomfortable bed but lately, I've had great luck. I can't wait to go to Florida in 14 days, 11 hours and 5 minutes....but who's counting.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. ![]()
Celiac.com - Celiac Disease Board Moderator
#6
Posted 13 February 2013 - 04:55 PM
#7
Posted 13 February 2013 - 09:03 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#8
Posted 14 February 2013 - 04:57 AM
I do bring my own home made soap and shampoo. I bring my own cooking equipment. I always try to get a kitchen. I always try to wipe my working area down before I start. I make sure not to touch my food to any surface.
I cook in my room. None of the hotels which I have stayed in ever had a written rule against it. I try to be very careful not to burn the place down, or leave much evidence.
One hotel once did take issue when they found my crock pot cooking in my room. They asked me to bring it to the lobby for the day. So, I did. I would be leary of cross contamination in such a case. Someone might open the lid.
I have a list of things to bring along. I print out this list each time. I can later add anything I had forgotten, so the next trip I am more prepared. When I am packing I keep looking around the kitchen for things I can't do without on the trip.
I hope you will have a relaxing, healing time.
Diana
#9
Posted 15 February 2013 - 01:29 PM
#10
Posted 15 February 2013 - 03:14 PM
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#11
Posted 15 February 2013 - 05:15 PM
#12
Posted 15 February 2013 - 05:32 PM
My SIL brings her own pillow, because she likes it best.
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
#13
Posted 15 February 2013 - 05:39 PM
#14
Posted 15 February 2013 - 06:09 PM
What about sheets and it being on ur hands?
Gluten is not a bacteria or a fungus or other creepy things. No need to worrry Wendy.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#15
Posted 15 February 2013 - 06:36 PM
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