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Staying In Hotels
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Currently being tested for casein...hoping that will come back fine so dairy can be had eventually. I have limited calcium and i really don't want to have to take supplements. I do have one i bought but haven't taken it. Most leafy greens are high in sals...thing is i was having broccoli (high in sals) and chewing gum (almost everyday and also high) a lot during that time and this pain would only hit me once a month. Weirdest thing. Not sure what caused it. But another thing I cut out was rice chex so i dunno if that could have been a culprit too/instead? SO right now..i'm eating boiled potatoes...lean ground beef...black beans....going to re-introduce cabbage next and then hopefully garlic...brussel sprouts....etc We'll see where it takes me as all those are low. Eventually i will work up to moderate sals...if i'm ok with that i'll try broccoli again. This will take a while but if i can get to broccoli again...eat it for a month and not get pains then i'll be at a loss for what was causing the pain unless something in rice chex didn't agree? I also have not re-introduced garbanzo beans yet but black beans don't bother me.

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Unfortunately the first half of my journey gluten free i never stuck to whole foods..i was eating amy's until september etc....so...it's been hard figuring out what my issues are suddenly.

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I can't eat rice chex either (dunno why) and no legumes of any kind, black, garbanzo or green, or lentils or split peas (or green). No corn, no soy, no nightshades, no lemon. We just have to figure out what works for us. :)

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Mold could be making you sick. If the air vent isn't cleaned then the dust you are breathing in can make you sick. I have found that if there is mold somewhere that I breath in, it makes me very sick.

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I don't think it's very common for there to be gluten in laundry detergent. Shampoo and soaps are another matter - I bring my own. 

 

I look for hotels with kitchens, or vacation condos. I am not comfortable eating out very much unless it's at a dedicated gluten-free restaurant. 

 

I bring a roll of tin foil and line any  baking sheets or whatnot before using. The first thing I do when I arrive is re-wash all the dishes and utensils. I don't use the toaster at all. If there are plastic or wooden utensils, I don't use those either. 

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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