Hi, I don't know if it matters but is it Non-Celiac Gluten Intolerance (NGCI) or Non-Celiac Gluten Sensitivity (NGCS). Are they the same thing or 2 different conditions? Thanks.
|
|
Celiac.com Sponsor: |
9 replies to this topic
#1
DogWalkerNYC
-
- Advanced Members
-
- 65 posts
Community Member
Posted 13 February 2013 - 07:43 AM
Laura Grace
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
#2
DogWalkerNYC
-
- Advanced Members
-
- 65 posts
Community Member
Posted 13 February 2013 - 06:51 PM
No replies? I'm surprised. Maybe there's no answer and both are acceptable? But if so it seems to me that would cause even more confusion since so much confusion already exists about the difference between intolerance, allergy, sensitivity. Can anyone offer any feedback? Thanks.
Laura Grace
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
#3
mushroom
-
- Moderators
-
- 9,448 posts
Mushroom
Posted 13 February 2013 - 08:55 PM
So far as I know the two terms have been used interchangeably up till now, but there seems to be a growing preference for sensitivity rather than intolerance.
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#4
DogWalkerNYC
-
- Advanced Members
-
- 65 posts
Community Member
Posted 13 February 2013 - 09:44 PM
Thanks Mushroom. My doctor called it 'probable non-celiac gluten sensitivity' so I guess that's it then. Well, it's good to finally have a diagnosis.So far as I know the two terms have been used interchangeably up till now, but there seems to be a growing preference for sensitivity rather than intolerance.
Laura Grace
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
#5
Celiac Mindwarp
-
- Moderators
-
- 913 posts
Advanced Community Member
Posted 14 February 2013 - 04:51 AM
In January, in the UK, I was diagnosed with NCGI. I think it is the same thing at the moment, but as more research gets done, I expect the terms will be changed or pinned down more. Maybe 
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#6
gatita
-
- Advanced Members
-
- 321 posts
Advanced Community Member
Posted 14 February 2013 - 08:22 AM
I realize you're asking what the medical community is leaning toward, but just had to say it...
Personally, I prefer "intolerance," because that's what my reaction is!
"Sensitive" sounds as if gluten is merely annoying and I should just woman up and get over it.
Personally, I prefer "intolerance," because that's what my reaction is!
"Sensitive" sounds as if gluten is merely annoying and I should just woman up and get over it.
Diagnosed with wheat hates me 4/13
#7
mushroom
-
- Moderators
-
- 9,448 posts
Mushroom
Posted 14 February 2013 - 12:43 PM
I realize you're asking what the medical community is leaning toward, but just had to say it...
Personally, I prefer "intolerance," because that's what my reaction is!
"Sensitive" sounds as if gluten is merely annoying and I should just woman up and get over it.
On the other hand, "intolerance" has some not-so-nice connotations too
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#8
Celiac Mindwarp
-
- Moderators
-
- 913 posts
Advanced Community Member
Posted 14 February 2013 - 01:26 PM
I, for one am almightily intolerant of gluten. Grrrrr
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#9
DogWalkerNYC
-
- Advanced Members
-
- 65 posts
Community Member
Posted 15 February 2013 - 10:09 PM
Actually intolerant makes more of a statement than merely being sensitive to something. I fully agree and so does my pain. I do hope intolerant wins out.
Laura Grace
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
65 years old. Diagnosed with GERD at age 63. Started feeling bloated after eating bread & rolls in 2012. After doing online research ate gluten-free for a week & symptoms resolved. Symptoms returned when I glutened. That's good enough for me. Because testing is often inconclusive will not get tested. In 2012 had colonoscopy and endoscopy which showed no damage to the villi. In February, 2013 had capsule endoscopy which showed no damage to the villi or intestines. Diagnosed by gastroenterologist with 'probable non-Celiac sensitivity. Time to get serious before damage occurs.
#10
gatita
-
- Advanced Members
-
- 321 posts
Advanced Community Member
Posted 19 February 2013 - 01:19 PM
On the other hand, "intolerance" has some not-so-nice connotations too
I know! Funny thing is, I am exceptionally tolerant in the rest of life. I should say gluten and wheat are intolerant of me!!
Diagnosed with wheat hates me 4/13
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users
