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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Living Normally While Battling Celiac Is Like:
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60 posts in this topic

Luv2teach, I'm sorry you are feeling this way but be assured, it is perfectly normal to go through a grieving stage. I think all of us did. Meltdowns at the grocery store, feeling left out when our friends go out to eat, and having a new baby must make it that much worse.

 

But the food doesn't have to be crappy. Most of what you used to eat is still available - meat, potatoes, vegetables, nuts, chips, and if you miss bread, Udi's whole grain or even better yet, Canyon Bakehouse Seven Grain San Juan bread is WONDERFUL. And for sweets, try Udi's double chocolate muffins. And of course most ice creams are gluten-free.

 

Maybe you could try your baby on a gluten-free diet. He won't miss bread at his age, and you can give him gluten-free chex instead of cheerios. I say this because celiac runs in families and you might find he does better on a gluten-free diet. The gluten-free diet is SO much healthier for a person anyway.

 

When I find myself getting down about it (which is VERY rare now), I remind myself that so many people have it so much worse. I don't need medications with their side effects, I don't need surgery, and if I stick to my diet I CAN live a normal life. I can do anything I used to do and do it harder and longer and better because I FEEL better than I used to.

 

That is WELL worth the slight inconvenience of a gluten-free diet.

 

It'll get better. I promise. :)

Gorilla Munch cereal is gluten-free also, and Pebbles too.

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I have turned into some what of a Super hero.  A secret identity :ph34r: (here on the forum), an arch enemy :rolleyes: (gluten), doing good deeds :) , and other super human feats :wub: disquised as a normal mom.  (Insert theme song.)  Wonder Women has nothing on me!  Except maybe that magic lasso of truth!!? <_< Note to self~ get some James Bond gadgets.  Those could come in handy. :P

How about a fork that detects and destroys gluten on your plate? A watch that tells you the wait time at PF Chang's and the closest gluten-free cupcake?

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Oh, I want that fork!!

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Those are the gadgets I'm talking about! ;)

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Thanks for the support, feedback, an positive words. I think it is extra frustrating because 1) I am also a vegetarian so my food is already limite and now many of my fav go to soy products are off the table and 2) I had NO symptoms prior to diagnosis so its not like I have the motivation o feeling better and, on fact, I am now having severe gastrointestinal issues ever since I stopped gluten so I feel worse than ever. Grrrr...I'll be ok though...just super frustated

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Sure sounds like a truckload of bird$#*@ just landed in your nest :unsure:   I hope a good spring cleaning soon has you feeling chirpier :D

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Thanks for the support, feedback, an positive words. I think it is extra frustrating because 1) I am also a vegetarian so my food is already limite and now many of my fav go to soy products are off the table and 2) I had NO symptoms prior to diagnosis so its not like I have the motivation o feeling better and, on fact, I am now having severe gastrointestinal issues ever since I stopped gluten so I feel worse than ever. Grrrr...I'll be ok though...just super frustated

I'm veggie too :)

Recently: (ie. since gluten free)

Allergic to eggs

Allergic to citrus

Allergic to pumpkin seeds

React to quinoa

Intolerant to dairy

Super intolerant to corn

Intolerant to soy

Sugar free

Caffeine free

Cigarette free!!

My food probs are incredible since diagnosis, corn reactions almost worse that gluten?!

I only eat fruit and veg. And rice. I manage to tolerate a very little butter. I dream of food.

Last night I dreamt that I drank a lovely latte coffee, sweet and frothy. It was luscious.

I awoke in a panic thinking I'd actually had it as it was so vivid.

I drink red wine now... probably not a good idea really, but can't help it as I feel so deprived. Or should that say depraved??!!! Might try and cut down soon as I started getting gut pain again.

Am considering fish (am veggie of 26 years) but thought of it makes me wanna vom, and I worry about introducing something my body no doubt will freak out over, something else to get allergic too?

It's not easy. But I must admit, food I thought boring and plain have now become delicious! And full of flavour? It's so strange. My taste buds are overwhelmed by things like a homemade veggie soup! Mmmm!

It honestly truly does get easier!! :)

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I can understand how desperate you might have felt during your times of transitioning to a gluten free diet.  I've been gluten free since 2000 and also had to eliminate all milk & dairy products, meats, etc., so am now vegan.  It used to really bother me when people were not accepting of my sometimes futile efforts to get this disease (and I also have asthma, gout & rheumatoid arthritis) under control.  I would get so angry at times that I would stay home rather than go out to social events.

 

Now, 13 years later, I have learned that it is usually because most people have no idea about what celiac disease is, or food intolerances, or diseases that you can't readily see, so they simply respond without having any knowledge of what we are going through.  I used to think that if I went to a family gathering or a social event, the person putting together the party would remember that I could only eat limited items.  That didn't work!  Finally I began taking along foods I liked and could eat, even to restaurants, and that solved all those problems, and allowed me to have fun, rather than being angry.  Sometimes my food was better than what I was seeing being served. 

 

I also bought tests from Enterolab for my immediate family members, since celiac is a genetic condition.  The one person who proved to have celiac hasn't made any dietary changes, and has experienced thyroid cancer and colon polyps which were thought to be cancerous, conditions which I've read can be a result of celiac disease.  Thank God it wasn't colon cancer.  BUT, now, nine years after those tests, some family members are getting tired of stomach aches, rashes, serious illnesses, and are beginning to change their diets.  Sometimes progress takes longer than we would hope for, but I am gratified to have been doing the best I could to help others.

 

This disease makes one less of a "people pleaser," and a stronger, more vocal individual.  As you're sitting eating the delectable meal you brought along, in a group, someone always notices and makes a comment.  Now I can smile and be happy with what I've brought.  One of my challenges for myself is to find as many new products as possible, each and every day.  I read every ingredient on every label that I think might be a "new find."  I float on air as I'm leaving the store, satisfied that my search has been fruitful and successful. 

 

Be kind to yourself.  Experts say that one out of every 133 Americans has gluten intolerance, and, believe me, there are tons more gluten free products on the market now than in 2000.  We ARE making progress.  Watch for the changes and you will certainly see, and most likely, you "went the extra mile" to make those changes happen.  Best wishes.  Welda 

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Designerstubble, I'm not vegetarian, but I think that healthy people who are vegetarian/vegan are doing the right thing. But the more restricted diet becomes, the more worried I would be about restricting my diet so much.

If you're considering trying meats, but the thought of eating fish disgusts you for ethical reasons, you could try things that are well, much dumber on the scale of animals, like clams, oysters, scallops or snails.

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Designerstubble, I'm not vegetarian, but I think that healthy people who are vegetarian/vegan are doing the right thing. But the more restricted diet becomes, the more worried I would be about restricting my diet so much.

If you're considering trying meats, but the thought of eating fish disgusts you for ethical reasons, you could try things that are well, much dumber on the scale of animals, like clams, oysters, scallops or snails.

Thanks Cavernio... To be honest, although I very much prefer to not eat any flesh, I would consider eating anything to make me better. The worry I have is that I have SO many NEW allergies and intolerances since being gluten free that I am petrified of introducing a new food at this stage. I don't know at this stage if my allergies are real allergies (Ige) or if they are intolerances because of perhaps the state of my immune system or perhaps I have leaky gut?? So I stress out just eating my normal food as it seems every 2-3 weeks something else gets knocked off. It's a tricky time and to be honest the truth of the matter is I actually don't know what to do anymore so have decided to give my poor brain a rest and just chill for a few weeks!

It's exhausting! :) I am very much hoping to get some foods back one day... Especially cheese. And seeds. And and and! :)

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    • Newbie: mother to coeliac kids
      Until he starts getting better he really needs to stick with soft, bland foods. I put a mashed potato soup recipe in the recipes area. What is healthy for a normal person isn't necessarily good for an inflamed digestive system. Anything spicy, acidic should be avoided. Fruit is acidic. I've read that pickled cabbage is good, but you couldn't pay me to eat anything pickled when I was nauseous. Things that I think would be safe are: broth mashed potato soup (the am. cheese and butter make the broth taste great) Baked potato mushy meatballs, no spices other than salt low fat vanilla ice cream with whey in the ingredient list   If these things work out try adding summer squash cooked in olive oil, add salt Summer squash tastes good in mashed potato soup.   Twice as many small meals are easier on your digestive system.   I am not a doctor or nutritionist, just been there, done that, want to help.  
    • Newbie: mother to coeliac kids
      I've just had a call from out GP with biopsy results. She said it confirmed celiacs and has a March 4 level. Does this sound correct?  She said she expected it given his antibodies were the highest she had ever seen.  We have an appointment on Friday for follow up. At least we know for sure now. 
    • Needed support
      Yes I got and colonskpy and endoscopy back in Oct. They said these tests were negative. However I recently found out at my new DR that notes on my tests(colonskpy ) said cronic inflammation of my intestines. I had also been eating mostly gluten free at least six months before the test. I have the gene for it and a huge amount of  symtoms so the g I dr said she could go ahead and dianose me with Celiacs or I could eat gluten for two weeks and get the colonskpy and endoscopy done again. I chose the first one and I have been feeling better since going competly gluten free. The ct scan is for them to check for cancerous tumors and possibility of Crohns just in my small intestines. She did say that I might have more than one thing going on. I didn't realize that you can't see Celiacs on a cat scan. I know that the tumors can happen with long term undiagnosed Celiacs and I'm not sure if Crohns is related as well. 
    • Newbie: mother to coeliac kids
      Yes, the broth helps. He wolfed some down and felt okay.  He insists he didnt eat anything from his friends. He did however gobble several gherkins last night - I checked they were gluten free but I am wondering now.  Dammit. He loves gherkins.  
    • Confused
      Nothing big to add, just want to reinforce what @cyclinglady said.  From what I have learned, your GP cannot diagnose celiac.  The best they can do is find indicators (such as the test you got results for) which are really neither definite positives or definite negatives - they're just warning signs, and refer you to a specialist. See your GI.   They'll be able to give you a real informed opinion so you won't be in limbo.  And as she said, don't cut out the gluten until the GI tells you to - even the GI's tests are indicators that appear as a result of relatively recent gluten intake.
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