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Could I Have Celiac Disease?
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Hello. I am a 26 year old female who has been experiencing some GI issues for a couple if years. Up until recently my symptoms were mild and not concerning. In 2010 I had my gallbladder removed. After surgery I began noticing that my bowels had changed. I could no longer eat fried foods, sauces, processed meats, etc without having diarrhea. Since then I can't remember the last time that I had a "normal" BM. Anyhow around Christmas of last year I developed new and alarming symptoms. I experienced diarrhea for 2 weeks straight. No I did not have the stomach by or anything else GI related. During these two weeks I would experience severe aBD pain, sweats, nausea and burping. Just this week the pain was soooo bad I had to leave my 4 year old who had a 103+ fever and my other 2 children with their grandmother at 2a to go to the ER. Along with the above symptoms I also experienced dizziness and felt like I was going to pass out, my heart was racing and I felt so weak. Diarrhea was also accompanied. I also have another symptom not related to GI but over the summer my right hand became really dry ( almost like dermatitis). My right hand is still the same and drs do not believe it to be dermatitis. They have suggested it could be diet related- milk allergy or gluten allergy. I am going to the dr on Friday for a ER follow up and just wanted opinions of others. Thanks.

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Whatever it is,

Please get well.

I hope the tests will be difinative for you. Many of the symptoms sound like celiac and you need to find out what is causing it and try to solve it.

Diana

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Thank you! I just hope the drs listen and don't give me the run around!

When others have been tested for celiac disease did they instruct you to go on a gluten free diet first or did they do labs etc???

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They are supposed to do the tests first, the blood tests measure whether or not you have antibodies to the proteins in the wheat family. A lot of people who are celiac or gluten intolerant also become lactose intolerant as a result, this may clear up after being gluten free for a while, so people can add back in cheese or yogurt. Others are casein (milk protein) intolerant and end up off of dairy, fortunately, there are a LOT of tasty non dairy substitutes now like coconut and nut milks, even hemp milk.

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Technically, i've heard that certain foods should be avoided after removal of the gallbladder (fried?) due to "D" issues.

ah, wikipedia has a bit more on it:

http://en.wikipedia....Cholecystectomy

They say up to 20% have unexplained "D" afterwards that clears up? Huh.

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Thank you! My two youngest children have a milk protein allergy. So they are on a soy diet. You can see a reaction if they consume something with casein in it!

I don't always have "D" from eating fried foods. Just French fries take an immediate toll on me. That is why I also thought gluten intolerance. My family eats a lot of pasta and such because my husband is Italian.

Hopefully tomorrow I will be able to get some answers. :)

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French fries? do you have any other issues with potatos (or nightshades really)?

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Nightshades? I don't know if I have any other issues to potatoes. I just eliminate French fries. I do however experience almost immediate diarrhea after eatting. Pastas, grains especially. :( I always attributed it to not having my gallbladder but once it's removed those symptoms are suppose to be eliminated. I just want to find out what it wrong. I had a ct scan while in the ER and it ruled out appendicitis, Ibs and chrons. ER doc suggested the milk/gluten allergy as did other drs in the past with my hand issue. Just add the past two episodes of extreme adb pain. It scares me. :(

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    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
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