6 replies to this topic

[Lanimo]

Hello world,

This is my first time ever posting, so bare with me as I make it through the learning curve.

I'm a 26 year old female, with symptoms starting over 10 years ago. It started with terrible pain and nausea eating Tex-Mex. Not gassy pain, but someone is slicing open my stomach and rubbing broken glass around kind of pain. It took me years to figure out it was the avocado in the guacamole. Fast forward 5 years and I start to have the same reaction to eggs. After 5 years of not eating eggs, i'm baffled by the blood test that came back negative for a food allergy. What is causing my body to react that way?

I've had preliminary blood work, but the only positive results for celiac was the igG gliadin. Does this indicate anything?
igg- 33 (30 is cut off for "normal")
iga- 4.5 (5 is cut off)
iga 17 (20 is cut off) i think this is the tissue one

I'm scheduled for an endoscopy and colonoscopy, but that wont be for a few weeks.

More info that may or may not be related. Most of the symptoms have been around a while:

Anxiety/depression (mostly severe anxiety)
add/mental fog
patch of unidentifed "stuff" on my face. (ive always assummed it was a dry patch that comes and goes, but it is very smilar to that of lupus's butterfly skin condition on face)
dry burning eyes and need of glasses
insomnia (no matter how tired I am)
fatigue (no matter how much sleep I get)
loss of weight and appetite
cold hands and feet (all the time, i can be sweating and they are still icicles)
mild fevers
milder, constant, lower back and gut pain
sometimes pain is sharp in my gut, and i'm finding blood in my stool (this can happen for weeks at a time)
sometimes after I eat, I have to go to the bathroom right away. do not pass go, do not collect $200
Mother and sister have autoimmune problem with thyroid and hashimotos, and both grandfathers with colon cancer


I was gluten free for 24-48 hours before i realized i needed to keep with it for testing, and i was ravenously hungry and fell asleep before my husband, which could be considered a small miracle. mind over matter, or actuall helpful in such a small time frame.

I'm also being tested for lupus, and i'm guessing they'll know If I have an IBD when I get my Scopys done (irritable bowel disease)
I can find a lot of my symptoms on a few different diseases/autoimmune lists, so i'm more confused that ever.

[gatita]

The blood in your stool sounds like you for sure should have that endo and colonoscopy. I'm having both next week, too, so here's to the scopes!

Even if your endo doesn't show villi damage you could have one of any of a number of conditions that can improve on a gluten-free diet. IBD's are one group, as well as SIBO and others.

Besides being literally allergic to wheat (we're not sure yet about gluten), I have SIBO. SIBO is a very common complication of celiac/gluten intolerance and other gastric issues that happens to cause very similar symptoms. Especially the broken glass one you describe and also the "gurgles." I always described it as tiny elves with pick-axes in my stomach! Now that I've been treated for SIBO, things are much quieter in there...

I hope you get some answers soon, and once your endo is done, do try going gluten-free.

It has taken me six months to see big improvements, but they are real!

[Lanimo]

I wasn't impressed with the NP I saw at the GI office. She told me "gurgle" sounds are normal, people just need to deal with it. Then I described my symptoms and she would say,"you need to see your primary about that, you need to see your gynecologist if your having lower back pain and lower abdominal pain."
I Thought if anyone would understand, it would be someone in a specialists office, but she made me feel like a hypochondriac. I don't want to go to someone who doesn't see my body as a whole. You can break a toe and throw your whole body off, let alone an autoimmune disease. Closed mindedness is what has kept me in pain for a decade.

On another note, I woke up today and my "butterfly" facial rash is back. This is more indicative of lupus, but don't other autoimmune cause this too?

Also, has anyone else had this reaction to eggs? And if so, were you able to eat them after you got your diet and medications right?

[powerofpositivethinking]

Hello world,

This is my first time ever posting, so bare with me as I make it through the learning curve.

I'm a 26 year old female, with symptoms starting over 10 years ago. It started with terrible pain and nausea eating Tex-Mex. Not gassy pain, but someone is slicing open my stomach and rubbing broken glass around kind of pain. It took me years to figure out it was the avocado in the guacamole. Fast forward 5 years and I start to have the same reaction to eggs. After 5 years of not eating eggs, i'm baffled by the blood test that came back negative for a food allergy. What is causing my body to react that way?

I've had preliminary blood work, but the only positive results for celiac was the igG gliadin. Does this indicate anything?
igg- 33 (30 is cut off for "normal")
iga- 4.5 (5 is cut off)
iga 17 (20 is cut off) i think this is the tissue one

I'm scheduled for an endoscopy and colonoscopy, but that wont be for a few weeks.

More info that may or may not be related. Most of the symptoms have been around a while:

Anxiety/depression (mostly severe anxiety)
add/mental fog
patch of unidentifed "stuff" on my face. (ive always assummed it was a dry patch that comes and goes, but it is very smilar to that of lupus's butterfly skin condition on face)
dry burning eyes and need of glasses
insomnia (no matter how tired I am)
fatigue (no matter how much sleep I get)
loss of weight and appetite
cold hands and feet (all the time, i can be sweating and they are still icicles)
mild fevers
milder, constant, lower back and gut pain
sometimes pain is sharp in my gut, and i'm finding blood in my stool (this can happen for weeks at a time)
sometimes after I eat, I have to go to the bathroom right away. do not pass go, do not collect $200
Mother and sister have autoimmune problem with thyroid and hashimotos, and both grandfathers with colon cancer


I was gluten free for 24-48 hours before i realized i needed to keep with it for testing, and i was ravenously hungry and fell asleep before my husband, which could be considered a small miracle. mind over matter, or actuall helpful in such a small time frame.

I'm also being tested for lupus, and i'm guessing they'll know If I have an IBD when I get my Scopys done (irritable bowel disease)
I can find a lot of my symptoms on a few different diseases/autoimmune lists, so i'm more confused that ever.

Was the gliadin test definitely the DGP test and not the AGA tests since DGP is more sensitive and specific to celiac?

I had one doctor appointment while still in high school where they made me feel stupid, and based on that incidence, now I tend to wait a long time before going to see a doctor. My past three appointments I've gone in with information written down and have gotten what I wanted, so maybe that will help. A friend told me to always remember that a doctor is providing a service, and if you don't like it, try another one

I had high DGP igG results. Here's where all my info is: http://www.celiac.co...results-please/ I have sent a few e-mails out to different Celiac Centers and here is the initial response I got from University of Chicago:

"I have presented your question to our medical director, and he says that your situation is conflicting. If you were his patient, and you had symptoms of celiac disease, these results would justify doing a biopsy on you and that would be the final determinant of the diagnosis."

I e-mailed again asking why it was conflicting, and here's that response:

"It's conflicting because you have a negative TTG (the most sensitive test) while the DGP-IgG (that should be overlapping with TTG) instead is positive. "


Your IgG is elevated, and your ttG is getting there, which according to Chicago, looks like there's a strong possibility you have celiac. Any chance you can see the GI doctor instead of the NP next time? btw we're close in age. I'm 27

[Lanimo]

Thanks for replying. I ended up in the ER on Thursday night/Friday morning with severe pain so I officially warrant one of the emergency spots at my GI office. I will get my endoscopy and colonoscopy done this Thursday. I think i'm more worried about clear liquids and laxatives for two days then the procedure itself.
I don't know for sure which celiac tests were done. I was given the results over the phone without prior knowledge of what they were so it's hard for me to understand what tests were actually done. I got a printout of my allergy tests, which all came back normal. At least next time i see someone, even the NP, i'll have all my test results so if i do have an autoimmune i won't feel like i need to defend myself.

[powerofpositivethinking]

not good to hear you went to the ER, but happy that you will get an endoscopy sooner!! Hope you're feeling better today

[powerofpositivethinking]

Lanimo, I'm curious as to what you ended up being diagnosed with?