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Secret Deodorant
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Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

Wow, how scary about your daughter! I hate the whole vaccine thing, I feel like I'm scared to vaccinate and I'm scared not to. The H1N1 Vaccine killed more people than the H1N1 virus itself.

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Ads by Google:

One of the best books to read is Celiac Disease: A Hidden Epidemic by Dr. Peter Green. He is one the leading researchers/physicians specializing in Celiac Disease and his advice is spot on. It's also a great tutorial on how this disease works and if you don't learn that, you'll never get the diet right. I highly recommend it.

One of the things talked about in this book is DH and how skin contact with gluten containing foods or products will not cause a DH outbreak. DH is the skin version of Celiac and works the same.....you have to ingest gluten for an outbreak to occur. However, most people with DH have very sensitive skin to begin with and other ingredients in products can irritate your skin or you may have an additional skin allergy to wheat or another ingredient in products. Not every outbreak or reaction is gluten based. You can choose to use gluten-free products if that is more comfortable for you but it may not be entirely necessary all of the time.

I could see where it might be easier to just stick to all gluten-free products if you do have DH.

Read the book....it's very interesting and you'll learn a lot of useful information.

I will definitely pick up the book!! Thank you for the recommendation! I have DH on my scalp and I worry that the gluten will do harm by entering in through the sores?! I also have a itchy gross rash in and between my eyebrows but since I've stopped wearing my makeup that contains gluten, it's getting better. So maybe I have an allergy as well as celiac.

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I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

That's so scary! Chickenpox seems so harmless until you hear stories like these! My step Mom had Mumps as a child and it left her deaf in one ear.

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That's so scary! Chickenpox seems so harmless until you hear stories like these! My step Mom had Mumps as a child and it left her deaf in one ear.

My sister and I had measles together.  I missed two months my first year in high school.  My sister was hilarious - she had delirium and we used to have the wildest conversations :lol:  - couldn't ever talk to her about them later though :rolleyes:

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I will definitely pick up the book!! Thank you for the recommendation! I have DH on my scalp and I worry that the gluten will do harm by entering in through the sores?! I also have a itchy gross rash in and between my eyebrows but since I've stopped wearing my makeup that contains gluten, it's getting better. So maybe I have an allergy as well as celiac.

DH takes a long time to go away, unfortunately. It is explained in the book, better than I can do. I think if your scalp and skin are that irritated, it might be a good idea to use a very gentle shampoo and cleanser that is gluten-free, something without perfumes/scent.  Keep it simple until the DH is under control. Sorry to hear you are having such a hard time but with patience, you will get this under control.

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I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

         I think the number of kids that die from chicken pox today is pretty low. That's extremely rare and we have better medicine to help if things get out of control.

 

I had them and it was just another childhood illness.  I also had shingles once but I knew what it was, went immediately to the walk in clinic and was put on anti-virals right away and it was not that bad.  Nearly dying of Celiac was far worse.  Not everyone develops shingles either...that medical scare is overblown, like everything else.  Kids get way too many vaccines today....they need to pick and chose the ones that apply to each situation.  It just seems odd that with all the vaccines, kids are sicker today than when I was young.  No one had food allergies when I was in school and diabetes was rare.  It makes you wonder if the assault on a kids immune system today does something bad in the long run.

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From the case files of some of the chickenpox deaths, its seems there was extreme OVERmedication.  The patient was given more drugs that need to processed by the liver, when the liver is needed to process the virus.  So the patient "died from chickenpox"  but IMO the patient died because of liver failure.  My opinion was partly formed from Reye's syndrome.

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Eosinophilic Esophagitus is the modern medical mystery.  (I am a bit bitter paying for specialist that can only say "just don't know".  *Something* just triggers the production of eosinophils to be produced and the nasty white blood cells just damage everything.  Fortunately we have narrowed down some of the food triggers (have suspects for the airborne triggers as there is a seasonal "flare".)  Gluten is the "trigger" for some patients, so we have quite a few EE patients here.  The connection was finally noticed by the medical community and newly diagnosed EE patients should be screened for Celiac.

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I think one of the reasons kids get sick more often today is that they don't play in the dirt. They are using anti-bacterial soaps. They are living in a more sterile environment and their immune systems don't get to build up strength. I know that is why you believe we should let our kids get these childhood diseases, but I guess it depends on the individual child. I was born sick and almost died several times. I had pneumonia several times as an infant and more as a child. (I even had it a few times when I was in my 20's - one time so bad that I needed to be hospitalized.) Mom said measles almost killed me too but I don't remember measles. I had croup, I got bronchitis at least twice each winter, I had scarlet fever, I was a mess!

 

I grew up to be pretty healthy though except for celiac and a touch of asthma. :)

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where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

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1 hour ago, Rosalind said:

where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

Most toiletry products are fine even if they have wheat/gluten in them.  The main issue is not to ingest them!  Many folks with celiac disease are careful with shampoo, conditioner, soap, lotion, lipstick, lip gloss, hair products,  and sunscreen because they could be accidentally swallowed (if you chew on your nails, etc.).  

I have used Crystal Deodorant for 20 years now.  It can last for years!  Seriously!  It is pretty effective but not as effective for a teenager.   My entire family uses it, but my teen uses regular antiperspirant too.  You can find it at Whole Foods, Sprouts, healthfood stores, and even a "roll" on version at CVS.  Of course, Amazon carries it too and the price is comparable to the stores.   I found some mini travel versions at Marshalls (but that is hit or miss).  I like the solid crystal option the best. 

I really like Gabriel Lipstick found at Sprouts.  I buy it on sale.  It is certified gluten-free, so I never have to worry!  I hear that Red Apple (sold online) is very good too and is certified.  

I hope this helps!  

Edited by cyclinglady
typo
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1 hour ago, Rosalind said:

where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

I never worry about deodorant.  The only things you really need to worry about are things that might get in your mouth.  I get shampoo in my mouth so I read the ingredients.  They will say if they have wheat germ oil in them. 

 

http://www.cureceliacdisease.org/archives/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in-them

 

"Gluten must be ingested to be cause for concern for someone with celiac disease.

We still recommend those with celiac disease avoid contact with gluten, especially with products that have the potential to be ingested. Small amounts of gluten can be found in many cosmetics, lotions and shampoos. Avoid product ingredients that literally say “wheat,” “rye,” “malt” or “barley.”  "

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
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