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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My 82 Year Old Father - Symptoms For Years
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4 posts in this topic

In trying to get myself better I am wondering about others in my family. My dad, for years, has had all of the same symptoms I have had: major weight loss, mood swings, fog, runs to the bathroom after eating (I had that and constipation, it varied depending on the day). He goes to the doctor a lot for his heart and for a bunch of blood work and they all tell him he is totally fine. My mother even went with him once trying to tell the dr to please find out what is wrong. He is so thin it is scary!

So I started with these symptoms for about 5 years now and I finally got myself to a gastro and went gluten free and feel so much better, I just need to gain some weight back.

I tried telling my mom that he should get checked for celiac but she won't talk to him because he just gets mad at her. So in a couple of weeks I am going down to FL to visit with them and to talk to him. He is a drinker - only whiskey and beer and he always feels bad after just one drink and I know gluten is in that. I'm going to have to buy him some gluten free beer when I am down there.

So do you think he could have had this for all these years and nobody has found it? He's never been on a computer, he is "old school" so he won't research anything. Only way I found out I most likely have celiac is by finding this forum and reading all about it and then making an appt with my gastro. Sometimes we have to do our own research and then tell the doctor what we find.

Also on my mom's side of the family they all have bathroom problems, except for my mom.

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He has some symptoms so he could be celiac or NCGI... The problem would be getting him to switch to a gluten-free diet; I can't imagine changing my diet after 82 years... that would be rough.

Good luck!

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Your family sounds exactly like mine. My father will turn 80 in April and he is also a lifetime drinker. Not so much now as he is on a boatload of meds but he drank heavily his entire adult life. I am the diagnosed celiac in our family and my father is presenting just like I did...classic celiac. I have a double DQ-2 gene, which means celiac is on BOTH sides of my family. I have tried in vain to get his wife to have him tested but my pleas fall on deaf ears. To make matters worse,

my father has "dementia", which is getting pretty bad. I think it is celiac dementia but try telling all the unenlightened ones that.

I have learned that you cannot save everyone. You may have to back off because, sadly, everyone has the right to do as they choose with their health. I have resigned myself to the fact that he will most likely die of untreated celiac. He is so skinny, it's scary. People stare. He has ataxia, lives in the bathroom after eating, dementia, skin rashes and sleeps a lot of the time, especially after eating. Sounds all so familiar. It kills me to see him like this but I am just the daughter and have no control over him at all.

BTW, he is also in Florida. The similarities are kind of funny. There are a lot of people like this out there. Can you imagine the number of elderly people who have celiac and everything is blamed on aging? :( Actually...this is sick......his doctors tell him he is fine too. He is on meds for BP and many other things but he is "fine". Okey, dokey........ :blink:

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Omg Gemini.....people stare at my dad too. My mom has to buy gluten free pasta and bread for me when I get down there so he will he eating it too and we won't tell him....not that he eats much anymore which is so sad. I can't stop him from doing his thing but maybe once he sees how thin I got since the last time I was down there, he will humor me and eat what I eat. Whole food like steak and chicken, fish, he likes salad so all I gotta do is switch up some bread and pasta. He was never into sauces so that will help. Should be interesting. I won't push him though. And I think his Dr is a jerk.

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
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