Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Dh Of The Scalp


  • Please log in to reply
16 replies to this topic

#1 DutchGirl

DutchGirl

    Community Member

  • Advanced Members
  • PipPipPip
  • 60 posts

Posted 14 February 2013 - 04:36 PM

I am newly diagnosed with celiac disease. I have had DH on my scalp for a few years but I didn't realize that's what it was until I was diagnosed recently. I have given up gluten but is there anything I can or should do to help heal my scalp?? It is so itchy, flaky, and burning, I would love some relief!
  • 0

Celiac.com Sponsor:

#2 pricklypear1971

pricklypear1971

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,684 posts

Posted 15 February 2013 - 06:58 AM

Id start with ensuring your hair products are gluten free and don't irritate your scalp for any other reason. Even though topical gluten isn't supposed to cause DH, many of us find better results when we do.

It's difficult to moisturize the scalp (compared to an arm) but I found my DH needed lotion a few times a day. I used Vanicream. In short, be nice to the rash.

I'm sure others here have dealt with it on the scalp. I haven't. I'm sure they'll chime in.


  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 DutchGirl

DutchGirl

    Community Member

  • Advanced Members
  • PipPipPip
  • 60 posts

Posted 15 February 2013 - 10:55 AM

I'm finding that anything to moisturize with will be difficult, I have thick hair down to the middle of my back. But with all of the itching, there are days I just want to shave it all off!! :)
  • 0

#4 pricklypear1971

pricklypear1971

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,684 posts

Posted 15 February 2013 - 12:23 PM

If you can do it every few days how about a scalp massage with a pure oil like almond, jojoba...?

I'd think the biggest thing would be to not use styling agents, shampoos or conditioners that irritate it. And I have no idea what that would be for you.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 DutchGirl

DutchGirl

    Community Member

  • Advanced Members
  • PipPipPip
  • 60 posts

Posted 15 February 2013 - 01:07 PM

I will give it a try! I need some relief! Thank you!
  • 0

#6 pricklypear1971

pricklypear1971

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,684 posts

Posted 15 February 2013 - 02:47 PM

You should also read the DH forum for tips.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#7 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,301 posts

Posted 15 February 2013 - 05:37 PM

I agree with what pricklypear said. I also have long hair down to my legs & BAD dh in my scalp. I know the feeling of wanting to shave it all off! This is going to sound gross & it is gross (at least to me) & it's very difficult to stand doing this BUT I have found that the longer you can possibly go without washing your hair the better off you will be when you have the dh in your scalp. When that skin is trying to heal it's best to not abrade it by shampooing even gently as the new skin is so fragile & thin. If you can go 3,4,5 days or as long as you possibly can then it gives that new skin a chance to thicken up & not bust open again. When you shampoo, do not use your nails --- only the fleshy fingertips gently. And for heavens sake do not let the brush bristles run across your scalp & tear it up. Be gentle, be very gentle.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#8 DutchGirl

DutchGirl

    Community Member

  • Advanced Members
  • PipPipPip
  • 60 posts

Posted 16 February 2013 - 11:00 AM

I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!
  • 0

#9 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,301 posts

Posted 16 February 2013 - 01:50 PM

It's impossible not to EVER scratch! But we do the best we can right? Right now I feel totally filthy. I haven't washed my hair for 3 days & it's driving me crazy but I am determined to go a couple more. This also allows our natural oils to help our scalp.

Hang in there.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 sisterlynr

sisterlynr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 153 posts

Posted 18 February 2013 - 10:47 AM

I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!


I have used Scalpicin, a product for scalp itch. It does work! I have applied olive oil to my scalp and left it a couple of days. It is hard not to scratch and I have a horrible time trying not to pick at the scabs. :(
  • 0

Misdiagnosed DH symptoms for 30 years in the form of blisters on shoulders, scalp, sole of foot and lower back.
Type II Diabetes 1995  /   Fatty liver biopsy 2001  ~ Diagnosed with NH Lymphoma in 2007 metastasized to bones & Stage IV by 2008 Chemotherapy in 2008 ~ Breakout of rash from scalp to sole of feet. February 28, 2012 until present
Iron deficiency anemia - July of 2012  /  
Osteoarthritis. September 2012  2012 Rash was diagnosed as Eczema, Grover's Disease, Folliculitis per biopsies of the lesions. September 2012   Started Dapsone and Gluten-Free diet on October 20, 2012 ~ Diag DH 2012.  Not taking Dapsone due to sulfa reaction.  Biopsy in July 2013 indicates Lupus but my doctors do not agree on cause of rash for various reasons.  

 

~Lyn~


#11 GFreeMO

GFreeMO

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,330 posts

Posted 19 February 2013 - 01:50 PM

Johnsons Baby shampoo has been helping my scalp DH.  Maybe give it a try.


  • 0

#12 Lady Eowyn

Lady Eowyn

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 142 posts

Posted 20 February 2013 - 04:45 AM

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.


  • 0

#13 DutchGirl

DutchGirl

    Community Member

  • Advanced Members
  • PipPipPip
  • 60 posts

Posted 21 February 2013 - 11:55 AM

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.

How long after you eat those things do you start having issues with your DH? How do you link the two together? I'd like to figure out what aggravates mine.


  • 0

#14 VeggieGal

VeggieGal

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 369 posts

Posted 22 February 2013 - 05:58 AM

Hi, I had an incredibly itchy scalp for years and was really embarassed about it. After 5 weeks being gluten free it had almost disappeared then I realised that coffee seemed to trigger odd blisters so Ive cut out coffee for the last 2 weeks and I'm completed itch free :) . Not sure if coffee was an allergy for me or if it was cross reactive or what it was but if you drink coffee (i even seemed to react to decaf), it may worth eliminating for awhile
  • 0
Celiac.com - Celiac Disease Board Moderator

#15 Lady Eowyn

Lady Eowyn

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 142 posts

Posted 22 February 2013 - 08:35 AM

If I eat sea salt (which sadly, I really like) my DH worsens from about the 2nd day of having it. This applies to putting it in things I'm making and eating too. I don't eat salty things normally but occasionally some sea salt is lovely :unsure: .

When I was eating oily fish (mainly salmon) three times a week it got a lot worse but of course, it was some time before I realised what the problem was.

Can't take cod liver oil (concentrate) either as this makes me hypothyroid too, in about three days.

 

This gives me a double whammy over iodine :blink: although I have never tried to go on the low iodine diet that some have had success with here.


  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: