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New Member- Test Results - Opinions?
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Hey guys, Ive been feeling sick basically all my life and Im now 22 years old. In Feb of 2012 I finally couldnt take it anymore and took some tests. Basically Id feel feverish, my stool would always be super soft, I was pale, rashes(very itchy)and I would get canker sores in my mouth(never on outside of mouth). When I was working at the mall I would always eat a Subway footlong and everytime within 15 minutes I would run to the restroom and have explosive D(no blood), after which I would feel really drained and have the chills. So I took some tests and my Doc had me take some Blood and stool tests. Basiclly here are my numbers(abnormal #s) from that first test-

Albunim - 5.3 > 5.1

A/G ratio - 2.2 > 2.1

Gliadin AB IGA - 36 > 20 (Deamidated)

but Gliadin AB IGG - 12 > 20 (Deamidated) ( which my current Doc finds odd being low with my IGA's high)

Anyways Those tests were in Feb 2012

I was recently tested Feb 2013( was still feeling sick after being gluten-free/pretty sure Ive gotten some in my by accident)

Tested that im allergic to some grasses really bad and a little bit to Olives which I had been using to cook with (olive oil) so maybe that attributed to my sickness as of lately

But here are my Autoimmune results from the testing

Gliadin IGA - 5

Gliadin IGG - 8

Other than that everything else looks normal

Can you guys give me some opinions as Im new to the actual test #'s but Im pretty knowledgable about gluten and how to prevent it.

PS Im getting a colonoscopy in a week but am afraid that after a year of a somewhat strict gluten-free diet that it wont show any damage.

Thanks in advance guys

Edited by mvsterchief
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A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.

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A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.

Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)

Thanks again

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Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)

Thanks again

You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.

Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.

As ravenwoodglass said, you need an endoscopy...not colonoscopy.

good luck.

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You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.

Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.

As ravenwoodglass said, you need an endoscopy...not colonoscopy.

good luck.

Thank you very much. Just wanted to make sure the #'s were the correct ones for celiac disease. My Doc is the one who said Colonoscopy, I dont doubt his knowledge, but I can tell that his specialty is not Celiac Disease. Hopefully the next one knows a bit more. Thanks guys

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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