Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Member- Test Results - Opinions?
0

5 posts in this topic

Hey guys, Ive been feeling sick basically all my life and Im now 22 years old. In Feb of 2012 I finally couldnt take it anymore and took some tests. Basically Id feel feverish, my stool would always be super soft, I was pale, rashes(very itchy)and I would get canker sores in my mouth(never on outside of mouth). When I was working at the mall I would always eat a Subway footlong and everytime within 15 minutes I would run to the restroom and have explosive D(no blood), after which I would feel really drained and have the chills. So I took some tests and my Doc had me take some Blood and stool tests. Basiclly here are my numbers(abnormal #s) from that first test-

Albunim - 5.3 > 5.1

A/G ratio - 2.2 > 2.1

Gliadin AB IGA - 36 > 20 (Deamidated)

but Gliadin AB IGG - 12 > 20 (Deamidated) ( which my current Doc finds odd being low with my IGA's high)

Anyways Those tests were in Feb 2012

I was recently tested Feb 2013( was still feeling sick after being gluten-free/pretty sure Ive gotten some in my by accident)

Tested that im allergic to some grasses really bad and a little bit to Olives which I had been using to cook with (olive oil) so maybe that attributed to my sickness as of lately

But here are my Autoimmune results from the testing

Gliadin IGA - 5

Gliadin IGG - 8

Other than that everything else looks normal

Can you guys give me some opinions as Im new to the actual test #'s but Im pretty knowledgable about gluten and how to prevent it.

PS Im getting a colonoscopy in a week but am afraid that after a year of a somewhat strict gluten-free diet that it wont show any damage.

Thanks in advance guys

Edited by mvsterchief
0

Share this post


Link to post
Share on other sites


Ads by Google:

A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.

0

Share this post


Link to post
Share on other sites

A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.

Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)

Thanks again

0

Share this post


Link to post
Share on other sites

Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)

Thanks again

You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.

Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.

As ravenwoodglass said, you need an endoscopy...not colonoscopy.

good luck.

0

Share this post


Link to post
Share on other sites

You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.

Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.

As ravenwoodglass said, you need an endoscopy...not colonoscopy.

good luck.

Thank you very much. Just wanted to make sure the #'s were the correct ones for celiac disease. My Doc is the one who said Colonoscopy, I dont doubt his knowledge, but I can tell that his specialty is not Celiac Disease. Hopefully the next one knows a bit more. Thanks guys

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,894
    • Total Posts
      919,527
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      I saw this the other day too & like Karen, wondered at the last line of the article. The article had me once again thinking about my deceased brother who was dx'd paranoid schizophrenic in his late 20's. He also had alternating constipation/diarrhea  but "they" always blamed it on his meds for the schizophrenia. We, his family, knew he had those issues prior to him being prescribed the meds but there is no telling the medical community something when you're talking about a mental patient.  Okay, I know the guy is selling something but the research noted in the article is valid: http://articles.mercola.com/sites/articles/archive/2013/06/22/gluten-grains-cause-schizophrenia.aspx We knew about this back in the 50's & going forward. They even coined the term for it "bread madness". Why have we not recognized this in the psychology/mental health/institutions community for all these many years? Why does it seem to have been just shoved under the rug like some dirty little secret?  Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me.
    • Gluten does WHAT to the brain?
      My first thought was how many people that have been labeled as mentally ill or psychotic actually have Celiac Disease and never get diagnosed?  Their whole lives spent battling these conditions, being flooded with various meds and no one looks at their diet or does other testing!  It really is tragic.  I always wondered whether Patty Duke was an un-diagnosed Celiac.  She was finally diagnosed with bi-polar and ended up dying of a perforated intestine, at the young age of 69.  Ya gotta wonder........
    • Desperately Seeking DISARONNO!
      I think the company knows what the ingredients are better than us.  If you mean Amaretto, I have had it.  
    • Gluten free before biopsy???
      My doctor required me to continue eating gluten before the endoscopy for biopsy. She did say I could let up "a little" to ease some of the terrible pain I was having, but wanted me to eat gluten-containing foods every day until the biopsy. As it turned out, they were able to get me in quickly, so it was really only a few days for me. Both bloodwork and biopsy confirmed the diagnosis and now I am happily gluten-free! It has been a challenge, but having a gluten-free kitchen, checking labels on foods and being super-careful when going out has worked wonders. I am not 100% recovered yet, but getting energy back a bit at a time as my nutrition status improves. We don't eat out much - mostly at vegan places that declare they are gluten-free (although I still eat chicken, eggs, milk, and beef sometimes at home). One day, I'll go somewhere else - but not without checking first! Best of luck to you. I think it important to always double-check with the doctor when there are any questions at all. My doctor welcomes questions and I hope yours will too.
    • Gluten does WHAT to the brain?
      Thanks for posting I was just looking at this a short time ago. Something I found interesting was the last line of the article- " The psychosis that the woman experienced was an extreme condition and very unique, Fasano said. " While not common I am not sure that it is that unique.  There is a fair amount of research that has been done on the effects of gluten on the brains and nervous systems of celiacs.  Doing a search with the words neurological and celiac at places like Lancet, PubMed and the NIH can bring up some really interesting studies. Thankfully this impact is slowly becoming more common knowledge in the medical circles. Many of us have experienced in our families or first hand the way that the antibodies can impact our mood and thinking. It does seem miraculous when the clouds finally lift. I wish more doctors would test for celiac before pulling out the prescription pad, especially with kids.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,939
    • Most Online
      1,763

    Newest Member
    vamanos25
    Joined