Hey guys, Ive been feeling sick basically all my life and Im now 22 years old. In Feb of 2012 I finally couldnt take it anymore and took some tests. Basically Id feel feverish, my stool would always be super soft, I was pale, rashes(very itchy)and I would get canker sores in my mouth(never on outside of mouth). When I was working at the mall I would always eat a Subway footlong and everytime within 15 minutes I would run to the restroom and have explosive D(no blood), after which I would feel really drained and have the chills. So I took some tests and my Doc had me take some Blood and stool tests. Basiclly here are my numbers(abnormal #s) from that first test-
Albunim - 5.3 > 5.1
A/G ratio - 2.2 > 2.1
Gliadin AB IGA - 36 > 20 (Deamidated)
but Gliadin AB IGG - 12 > 20 (Deamidated) ( which my current Doc finds odd being low with my IGA's high)
Anyways Those tests were in Feb 2012
I was recently tested Feb 2013( was still feeling sick after being gluten-free/pretty sure Ive gotten some in my by accident)
Tested that im allergic to some grasses really bad and a little bit to Olives which I had been using to cook with (olive oil) so maybe that attributed to my sickness as of lately
But here are my Autoimmune results from the testing
Gliadin IGA - 5
Gliadin IGG - 8
Other than that everything else looks normal
Can you guys give me some opinions as Im new to the actual test #'s but Im pretty knowledgable about gluten and how to prevent it.
PS Im getting a colonoscopy in a week but am afraid that after a year of a somewhat strict gluten-free diet that it wont show any damage.
Thanks in advance guys
Edited by mvsterchief, 14 February 2013 - 09:49 PM.
A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying "I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45 Blood tested and repeatedly negative Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002 Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis All bold resoved or went into remission with proper diagnosis of Celiac November 2002 Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56 Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007 HLA-DQB1 Molecular analysis, Allele 1 0303
A colonoscopy is not the test for celiac. You need an endoscopy for that. If they are doing the colonoscopy you could ask them to do the endo at the same time to see how much you have healed. If you have been gluten free, even with a few accidents, that would be the reason your tests are going down. The fact that those numbers are going down is a good thing and shows the diet is working. Accidental gluten may cause symptoms, even very small amounts, but won't always cause a spike in the testing.
Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)
Thank you Ill be sure to ask my other Dr (which is going to be the one doing the oscopy test) if he can do the endo as well. The Dr I just went to last night said it look unusual that my IGA were high but with such low IGG (36/12), can someone explain what he meant? It was something like, if IGA is high, your body would also create IGG. Just really confused, all in all I really feel like its celiac, the only time I ever felt the peak of the symptoms (D, rash, pale, malaise) was when I would eat bread (subway, hot pockets, pot pies)
Thanks again
You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.
Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.
As ravenwoodglass said, you need an endoscopy...not colonoscopy.
good luck.
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1999 - Hypothyroid 2003 - Hashimoto's Disease 2008 - Diverticulitis 2009 - Significant Vit D Deficiency 2011 - Diverticulitis again 2011 - HLA-DQ2.2 2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012
You won't necessarily have ALL the types of antibodies elevated. The one you DO have elevated is a very good test, the deamidated gliadin peptides. Some docs WILL diagnose on that alone.
Lots of celiacs here who test negative on ALL the bloods, but still have positive biopsy, and the other way around.
As ravenwoodglass said, you need an endoscopy...not colonoscopy.
good luck.
Thank you very much. Just wanted to make sure the #'s were the correct ones for celiac disease. My Doc is the one who said Colonoscopy, I dont doubt his knowledge, but I can tell that his specialty is not Celiac Disease. Hopefully the next one knows a bit more. Thanks guys
