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Pain! Help!
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5 posts in this topic

I have a previous post with more info, but right now I need advice in pain management. I ended up in the ER last night for abdominal pain. I had level 10 pain down my left side front and back while trying to go to the bathroom. For 3 hours I was at a level 8 pain in lower back and gut, both sides. They ended up giving me pain meds, but these always cause constipation which equals more pain.

I have endoscopy colonoscopy for march 5th so I can't stop eating gluten until then.

Any suggestions?

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So sorry you are going through that! I am also waiting on the endoscocpy while glutening myself, UGH! I have done some research and alot of people say to drink tons of water, make ginger tea, eat healthy foods (fruits and veggies), eat healthy fats like olive oil, avacodos all to help with the glutening and to flush the toxins out of your body. I have my endoscopy in three days so I only have to torture myself a little bit longer. I bought some ginger chews and eat those after I eat gluten which I am only doing 1 time a day, the bare minimum. Good luck! I am sure others whom have more experience than me will chime in.I am totally new to this whole celiac/gluten free life:) Just wanted to let you know that you are not alone!

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Perhaps a good masseuse (acupressure) and/or acupuncture until you can get off gluten? That may allow you take less pain meds?

I swear this dx process is barbaric. They've got to find another testing method.

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Thanks for they replies. Even though i wouldn't wish this on anyone, it is comforting to know i'm not alone. I actually have a really bad reaction to avocado even though my allergy test came back negative. another weird stomach thing, and the same thing happens when i eat eggs.

I actually got a massage yesterday, and it was amazing. I would recommend it to anyone currently dealing with pain... or even people with out it.

Since my trip to the ER, I've gotten bumped to "emergency status" so I will get to have my scopy's this week. There definitely has to be something better than a month wait for diagnosis.

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Oh how awful for you! My GI actually called off my pre-endo gluten challenge after two days because he didn't like my reaction. I didn't argue!

I feel bad for you having to tough through so much agony.

Glad to hear they moved the scopes up sooner though! And the massage sounds heavenly.....

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    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
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