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Pain! Help!
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5 posts in this topic

I have a previous post with more info, but right now I need advice in pain management. I ended up in the ER last night for abdominal pain. I had level 10 pain down my left side front and back while trying to go to the bathroom. For 3 hours I was at a level 8 pain in lower back and gut, both sides. They ended up giving me pain meds, but these always cause constipation which equals more pain.

I have endoscopy colonoscopy for march 5th so I can't stop eating gluten until then.

Any suggestions?

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So sorry you are going through that! I am also waiting on the endoscocpy while glutening myself, UGH! I have done some research and alot of people say to drink tons of water, make ginger tea, eat healthy foods (fruits and veggies), eat healthy fats like olive oil, avacodos all to help with the glutening and to flush the toxins out of your body. I have my endoscopy in three days so I only have to torture myself a little bit longer. I bought some ginger chews and eat those after I eat gluten which I am only doing 1 time a day, the bare minimum. Good luck! I am sure others whom have more experience than me will chime in.I am totally new to this whole celiac/gluten free life:) Just wanted to let you know that you are not alone!

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Perhaps a good masseuse (acupressure) and/or acupuncture until you can get off gluten? That may allow you take less pain meds?

I swear this dx process is barbaric. They've got to find another testing method.

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Thanks for they replies. Even though i wouldn't wish this on anyone, it is comforting to know i'm not alone. I actually have a really bad reaction to avocado even though my allergy test came back negative. another weird stomach thing, and the same thing happens when i eat eggs.

I actually got a massage yesterday, and it was amazing. I would recommend it to anyone currently dealing with pain... or even people with out it.

Since my trip to the ER, I've gotten bumped to "emergency status" so I will get to have my scopy's this week. There definitely has to be something better than a month wait for diagnosis.

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Oh how awful for you! My GI actually called off my pre-endo gluten challenge after two days because he didn't like my reaction. I didn't argue!

I feel bad for you having to tough through so much agony.

Glad to hear they moved the scopes up sooner though! And the massage sounds heavenly.....

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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