Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Doing A gluten-free Trial
0

25 posts in this topic

I went to the doctor today, and she said based on my symptoms (GI, headaches, fatigue and rash which she looked at), she is fairly certain that I am gluten intolerant and pretty much sees testing as something unnecessary [for me] based on what I told her and what she saw and that the true test anyway is going gluten-free for awhile and seeing if it clears things up.

So now I have to buy a whole bunch of new food since most everything I have is laden with gluten...I have tons of pasta and bread and crackers etc. Fortunately, I love cooking, and I love fruits and vegetables, so I'm going to try to eat mostly fresh foods that I cook myself rather than switch over completely to gluten-free substitutes (although I will have to find a pasta...that's one of my favorite foods)! Any suggestions for that? I can live without bread. I actually don't eat it much anyway. I just keep it around in case I'm in a bind and need something to eat that I can make quickly and take with me.

This is going to be a very big change for me, and hopefully it works out okay. I'll probably now use more of my food budget from my parents (I'm a college student living in an apartment with no meal plan) since gluten-free foods are much more expensive than regular ones.

Wish me luck!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Eh, if you eat whole foods and a lot less of processed stuff it generally is cheaper from my experience.

I love ancient harvest quinoa pasta.

0

Share this post


Link to post
Share on other sites

I don't know...fresh fruits and vegetables are quite expensive!! At least around here.

0

Share this post


Link to post
Share on other sites

The one thing I would ask her is, what diagnosis is she prepared to give you if your symptoms resolve on the gluten free diet? Celiac, or non-celiac gluten intolerant? At the moment there is still a big distinction made between the two.

0

Share this post


Link to post
Share on other sites




It matters because if you have problems later on, another doctor might not believe that you have celiac disease/gluten intolerance and want to give you medications for all sorts of other things rather than work with you on your diet. You should get tested before trying the gluten-free diet. It is very hard to go back once symptoms have resolved because it hits you much harder. If you test negative, you can still try the diet, but at least you will have given yourself a chance to be taken seriously down the road.

0

Share this post


Link to post
Share on other sites

Reasons I can think of quickly to get a "real" diagnosis:

Future medical care

For kids - need a DX to get special food or accomadations in a classroom (like don't have to take cooking class in middle school)

College - not required to have a meal plan that can't accomadate Celiac or need a Diagnosis to get the gluten-free food

Hopsital/nursing home - most do a poor job of gluten-free currently but have no reason to even try without a diagnosis

Celiac is hereditary - doctors are more likely to look for it in your first degree relatives. your insurance should pay to get your kids, parents, sisters, tested every few years if you have that diagnosis

Taking food where ourside food is not allowed - with a medical diagnosis, you should be allowed to bring food into events that don't allow outside food (check ahead is best)

Just start with the blood panel. How does that hurt your doctor? Does not testing you benefit your doctor? Or if your rash is DH, get a dermatologist to biopsy it.

0

Share this post


Link to post
Share on other sites

I guess that makes sense. I would rather have to suffer later down the road and have to go back on gluten for a period of time though than do it now though. It's extremely hard being a college student and being sick all the time. I've already missed multiple classes because of it...so if eating gluten-free helps, I'll do it.

0

Share this post


Link to post
Share on other sites

There is no reason to wait! Just tell the doctor to give you the darned tests, and to give them to you now!!!! Don't let her bully you. You should read some of the stories of people who went (or tried to go) back on gluten after being gluten free. Absolute living hell!!! There is no time like the present for the testing because there is no agreement for how long you have to go back on it and no way of knowing if you would be able to tolerate it. The body can get very cranky with you if it starts enjoying being gluten free and then you make it deal with gluten again :ph34r: This is your chance, right now.

0

Share this post


Link to post
Share on other sites

Well at this point, it's too late for that. I can't get into the lab today because they aren't open on Saturday, and I'm going back to school tomorrow and won't be back home for another 2 weeks...and I don't want to continue eating gluten for another 2 weeks...I've already missed way too much from doing that!

0

Share this post


Link to post
Share on other sites

I would rather have to suffer later down the road and have to go back on gluten for a period of time though than do it now though.

I thought that too. I had no idea how impossible it would be. I get so sick just from a tiny bit. It would be horrible to eat enough for testing.

0

Share this post


Link to post
Share on other sites

I thought that too. I had no idea how impossible it would be. I get so sick just from a tiny bit. It would be horrible to eat enough for testing.

If it's really that hard, then I probably won't do it. I can't keep eating gluten and being sick all the time...not as a college student. I'm only about a month into the semester, and I've already missed almost all the classes I can without my grades being lowered...and it's all from getting sick from eating. I'm pretty sure my doctor will be willing to give me a diagnosis though, if the trial proves helpful since she said that is really the only 100% definitive test for an intolerance.

0

Share this post


Link to post
Share on other sites

Hi' I have been gluten free for a month now. I have substituted breads with gluten free ones. All the junk food I loved I have substituted with Glutino brand sea salt crackers and their regular crackers. Their vanilla dream cookies are good too. If I want dip, I buy gluten free hummus. I tried tostitos and their gluten free dips but got sick on them. I eat lots of yogurt, brown rice, sweet potatoes, all meats and fish and rub with garlic salt and pepper. I drink angry orchard hard cider and new planet gluten free beer. My food bill is high because I now have to buy my stuff and get my husband his usual chips, doritos and junk food but I feel SO MUCH BETTER. There is a local place here that makes gluten free pizza which I will try tonight. I thought I would miss eating my normal stuff but so far so good. And I have no time to hang out and cook, and I never liked being in the kitchen so none of that has changed really. My Dr suggests I go get the tests but I don't want to go near gluten again. I feel too good to get sick again. Maybe some day there will be a test where we won't have to get glutened.

0

Share this post


Link to post
Share on other sites

My cousin who is gluten-free and his wife suggested Wegmans brand stuff...so I got some of the all purpose baking mix to try, and it's great! It works almost like regular flour, and doesn't taste much different! And I made scones with it, so it's not like I was making something and really masking it flavor. I also got the King Arthur gluten-free all purpose flour, and I used that with the scones as well, to make the balls with the dough, and it didn't really change anything either. So at least I now know that I can still enjoy some of my favorite baked goods without too much trouble!

I also love the Snyder's gluten-free pretzel sticks (I had them at a friend's house once -- she is also gluten-free), so I bought some of those. I also got the Mi-Del gluten-free ginger snaps to try, and they're great too!

Still trying out different pastas...I'm sure I'll find one I like enough to eat at least on a semi-regular basis.

0

Share this post


Link to post
Share on other sites

I use kelp noodles. Even my family is good with it! I buy these at a health food store. There is also spaghetti sqush.

0

Share this post


Link to post
Share on other sites

Kelp? Like seaweed?? I can't do that...I've had bad experiences with seaweed. I work at the YMCA, and one of the most popular snacks for parents to bring their kids is dried seaweed which has an extremely strong and unappealing smell. It seriously makes me want to vomit!!

I also don't like squash of any sort...never have. I have corn pasta and quinoa pasta. The corn stuff is pretty good, but I haven't yet tried the other.

0

Share this post


Link to post
Share on other sites

If it's really that hard, then I probably won't do it. I can't keep eating gluten and being sick all the time...not as a college student.

I totally understand that. So, do what Mushroom said. Get the tests now. You can stop eating gluten and the tests might still work for a short time. If that doctor won't do it, find another one that will. Get it done as soon as possible before it gives you a false negative because you have been off gluten too long. You might not get another chance.

0

Share this post


Link to post
Share on other sites

I'm back at school, and that's about 2 hours away from home and my doctor. I won't be home for another 2 weeks, and I can't keep being sick all the time. I've already missed almost all the classes I can for the entire semester, and there's still 3 months left to it!

0

Share this post


Link to post
Share on other sites

Mmmm, does your school have an oncampus clinic? Perhaps they can draw the blood and send it off? Might be worth looking into.

0

Share this post


Link to post
Share on other sites

I'm pretty sure they only do blood draws for mono. But I (and most other students at my school) try our best to avoid going there anyway since they're essentially useless.

0

Share this post


Link to post
Share on other sites

You should also have a screening test for Lupus and thyroid. Thyroid issues can be affected by seaweed. Seaweed has iodine. You mentioned it and it has to be part of what is going on here with your health.

0

Share this post


Link to post
Share on other sites

I mentioned what? Seaweed? That was in response to the kelp suggestion. I said I can't do seaweed -- it disgusts me. I pretty much never eat it. I'll have the occasional spicy shrimp roll, but I would say that is only a few times a year.

0

Share this post


Link to post
Share on other sites

No worries. It's easy to misread things, especially if you're quickly scrolling through a thread!

0

Share this post


Link to post
Share on other sites

I was doing so well...until today. I accidentally "glutened" myself :( I got ice cream, and didn't even think that there might be gluten in it. Not long after eating it, I felt awful, so I looked more closely at the label, and saw that the peanut butter cup part of it is manufactured on the same equipment as wheat products. This is Ben and Jerry's PB Cup ice cream, by the way.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,110
    • Total Posts
      920,417
  • Topics

  • Posts

    • Personally, I would ask for the full Celiac panel and see what that shows.  I mean, the full Monty, not just cherry picking testing.  On the full panel, if the tTg and the EMA come back positive, that is a diagnosis without biopsy.  This is how I was diagnosed and there is absolutely no doubt I have Celiac.  I presented with classic celiac so it was a no brainer with my blood results. If you cannot stick to the diet religiously, without cheating, unless you have a biopsy picture, then I would go on to have a biopsy.  Like your daughter, I was way too sick to have one done at the time.  They would not have agreed to use sedation because I was so anemic and malnourished and that ended that!  Good luck with whatever you decide!
    • This Asian-style barbeque chicken makes a great summer treat. Barbecue chicken is a perennial summer favorite around these parts, and this recipe delivers barbecue chicken with a decidedly Asian flare. View the full article
    • And as for the green stools, you said you eat a lot of kale and spinach?  A generous, daily diet of kale and spinach will be reflected in the bathroom.  You are what you eat.  
    • I just traveled three weeks this summer in Europe (Eastern).  Do not trust that the airlines will remember to load a gluten-free meal for you.  There is a 50-50 chance that they will not (in my experience).  We packed ONLY carry on.  Still found plenty of room to stash some emergency food.  You should be able to find food within an International airport.  Chips and typical junk food clearly labeled, even fruit.  Print or load Celiac travel cards with you in all the languages you will need.  They are free.  Google it.  Found these handy (not only in restaurants) but in the markets when we could not read labels but the staff could read them and Help us to make gluten-free choices.  amazing how you can communicate without knowing the language.  A few words like "thank you" in their language go along way (so does Google Translator).  Never met anyone who was not willing to help.   I carry a collapsible cooler that I pack with food and bags of ice to eat on then plane or right at my arrival or connection.  I take extra zip lock baggies with me.  Sometimes TSA will let you through if the ice is still hard (not melting).  Some will make you toss them then I just ask a restaurant to refill my ziplock baggies after passing Security.   I also carry a doctor's letter on my phone to show I am celiac, but no one has ever asked for me to present it.   Even though I carry a "third" piece of luggage on board, I have not been stopped.  Both that and my day backpack fit under the seat.  I use this cooler as needed through our trips.  If not, it fits in my backpack.  
    • Welcome, Kierra. You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,147
    • Most Online
      1,763

    Newest Member
    Otto'sMom
    Joined