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Gluten Free Carbs Hindering Recovery
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Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.

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I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

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I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

That's very interesting Juliebove, thank you for sharing. I couldn't agree more about the diet. :)

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Amen to that. I am in your same situation, Songbird. I cannot even have rice, and don't know for how long I will have to be grain-free and legume-free (I don't seem to have issues with dairy). My doctor originally thought three months would be enough, but now it looks more like nine months, and then we'll see. In my case, even smaller quantities of these cause me almost instant GI reactions and a worsening of my edema in the legs, probably because they exacerbate my protein-losing enteropathy.

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Hi

I too am very suspicious of the fact that high-carbs could be the problem, as opposed to specific foods themselves.

Have noticed that all my problem foods (over and above gluten) are high carbs!!!!!

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In my case, I looked at carb contents of foods and which bothered me the most. Some high carb foods didn't bother me. When I considered cc, it seemed a more likely source of problems. Super sensitive celiacs can react to even the low levels allowed in gluten-free foods. I was fortunate to have a GI who told me about this. Knowing about this enabled me to find a safe diet. I don't know if it could be a possibility for you or not, but I thought that being aware of this issue might help.

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I've noticed I can't eat sweets made with gluten-free grains, in any volume. One slice a cake for two days, fine. More than that - I start to feel bad (belly, blood sugar, cravings).

I can eat coconut/almond/full fat dairy sweets in a higher volume for longer without cravings, bloating, blood sugar issues. They also hit the "stop eating" button in my brain, whereas gluten-free grain sweets don't.

gluten-free grains+sugar= bad news for me.

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It's all such a jigsaw puzzle.

I do consider myself a super sensitive and have yet to find a so called 'gluten-free' food (processed) that I can eat :( .

I do have problems with carbs though, especially combined with sugar which I am also not tolerant to. High carbs give me cravings too, which are worth avoiding!

I find it very helpful here to know I'm not alone :) .

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Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.

I too have this same problem - grain free is really helping.  May I ask what supplements you are taking?  I've been experimenting with various things, but would love to know what worked for you.  Glad you found an answer!!

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
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    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
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