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Member Since 17 Jul 2006
Offline Last Active Jan 06 2014 10:38 AM

#898174 Airborne Gluten...

Posted by on 04 December 2013 - 06:46 AM

I am quite sure I react to airborne gluten such as being at my Mom's or sister's after theyve made bread or cakes.  It's real.


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#725237 Celiac Cost Me Everything

Posted by on 24 August 2011 - 08:08 AM

Really nice shared dialogue between GlutenfreemManna and Raven and others re: the tricky nature of adult kid and parent relationships. There is so often more than meets the eye in ANY relationship! I know that even here in my 50's I still can have issues with my parents and they with me! The human condition, I guess. That doesn't mean it doesn't hurt or feel crappy sometimes. I firmly believe in the "don't give up" approach and in recognizing there may be unexpressed needs for both parties in relationship; sometimes it's hard to remember this.

I think if spending time at the shelter feels good, Raven, that is excellent for now, and if someone is supposed to go home with you one day, I know it will just happen and feel right.

And, YES, WHY can't people just bring animals to the shelter and say they don't want or can't have them anymore? Then the shelter can do what they do... sigh.... so much need in this world.

Is "Pooh" named for THE "Pooh"? I am a big fan of A.A. Milne. If so, reading THE TAO OF POOH by Benjamin Hoff might feel good right now as it is something of a treatise on the Zen nature of Pooh. Possibly heart-warming in hard times?

Still thinking of you.
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#724773 Celiac Cost Me Everything

Posted by on 22 August 2011 - 02:22 PM

I really like what Jestgar said about "tribe"; I do feel here on the Earth Plane or the "Pain Plane' as I sometimes refer to it, we all have family and "chosen" family- those who we just feel more comfortable with and at home with. I come from a huge French and Greek family and there is a ton of love but with SOME, not always true understanding and compassion. My own kids (21 and 18) I know love me to pieces but can at times sound "hard" with me or act selfishly but I do realize that's where they're at right now. I think what you are experiencing with older kids seems much more difficult and painful and I wonder what unsolved issues they have that most likely have absolutely nothing to do with you yet you still bear the brunt of their long hurts or frustrations or missed opportunities... not fair, but common.

It's nice to read so many caring people's comments to you though I know it won't bring your beloved dog back. I just have to say, having buried so many of my beloved companions, I really didn't think I would get another cat after Sam died in February. (I had 7 at the time...plus 3 dogs and a rabbit) But, through a ridiculous chain of events that if one were to put in a novel (unless it was written by Gabriel Garcia Marquez...) no one would even believe, we met "Marvin", a foolish one-year old male tiger cat who has been slowly and entertainingly healing our household. I am sure Sam sent him.

Absolutely every one of my over 30 animals, with the exception of one little tiger cat back in the day, came from the shelter. They are the animals to get, I think. Or a few just found their way to our house, like some sort of 101 Dalmation circuitous calling chain... I don't know.....

Anyway, sorry, this is way too long; I just think opening your heart to the eventual possibility of another dog would be a good idea. And see what the universe then brings.

With kindness,
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#724647 Celiac Cost Me Everything

Posted by on 22 August 2011 - 05:20 AM


I am so sorry for all your sorrow. You have helped me so much over the years and I want you to know I see how much you help others on this board. Kids are selfish sometimes; maybe they will come around and realize most parents do the best they can. I come from the philosophy (Read Dr. Ross Greene/website:Livesinthebalance.org)) that people do well when they can and do not when they have unsolved problems (or a missing or lagging skill).

There is nothing I could say to ease your pain but, without really knowing you, (as no one really "knows" one and other on the computer, eh?), you seem such a caring person, deserving of love and happiness.

As for losing a "pet", especially having to be involved in their passing, I have an enormous pet family and always have; consequently, I've also buried far too many. This year we had to put down my absolute favorite coon cat of all time, Sam, more like a spirit guide than cat, really, and I don't know if I'll ever get over it.

Love to you and healing energy and hope for peace,
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#724110 Struggling :(

Posted by on 19 August 2011 - 03:30 PM

Perhaps some counseling would be your best route right now; be sure you give it a chance and then be discerning in terms of getting a good "match". (It can take SOME trial and error to find a counselor who's right for you.)

I am a super sensitive celiac who has lived gluten (AND soy, and corn and egg and nightshade and legume and dairy...blah, blah, blah...) free for several years before being able to put most foods (NOT gluten) back in my diet and who also feels strongly that, while this disease CAN be inconvenient and occasionally a freaking pain in the butt, it is not cancer- which is what I was sure I had when very sick- or a host of other diseases which one cannot really mitigate- hence, I try to be thankful that it's one where what I do makes a difference. It can take a while to come to this point of view, of course, and I do realize that some people's travails with celiac seem to be more far-reaching than others but, after 35 years sick and undiagnosed, I was happy to learn I could make some changes and feel better.

On the other hand, occasional venting can be helpful, too!
Hope you get some support and feel better very soon!

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#723601 Anyone Not Have Kids And Not Work Too?

Posted by on 17 August 2011 - 05:39 PM

First, I'd reiterate what Patti said re: it's no one's business what you "do"!, and then I'd say, "tell the truth"- It's the easiest thing to remember! I've had a million lives, one of which was a "stay-at-home Mom" to two now grown children, but, before that, I was and still am a working actor who gets paid well when I work and not when I don't, a waitress, a lobster sternwoman, a fish trucker for my lobsterman husband an NBC news cameraman... blah, blah, blah...

Now I'm an actor and full-time special education teacher for kids with emotional disabilities but I think we live in an adolescent culture where the idea of "success' and "well-being" is so narrow it's amazing any of us can breathe here! Why are we defined by work only? Just be your true self, talk of things that are important to you and ask questions of others. If people aren't interested or judge you by your life choices (unless you're a serial killer...) then, let them move on! Frankly, what people do for a living is an interesting topic of conversation but it is only the tip of the iceberg, if that, into a person's soul.

Maybe next time someone says something inane to you regarding your "work status" you could suggest reading J. Krishnamurti, Henry David Thoreau or the collected works of William Shakespeare and I suspect that would give them pause for just a bit anyway... at least while they study their iphone for awhile... (don't get me started on that...)

Yes, just be your true self-we need so much more of this. "To thine own self be true" Polonius, Hamlet

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#721752 On The Topic Of Buying Fruit/veggies

Posted by on 09 August 2011 - 05:27 PM

I know this thread is not about wine but!

I know we are all different but, I am so ridiculously sensitive (recently got glutened by breathing flour in the air again and, yes, I'm sure..)so I just have to say, I drink wine every day (true confessions from a girl of French and Greek heritage) and I KNOW wine is okay- for ME... I tend to look to more insidious things myself when glutened. This is after YEARS of thinking EVERYTHING is a problem...

Everyone needs to just do what they think is best for them but, boy, has the wine thing been assessed and reassessed on this board. If you are computer savvy and if it is possible, I suggest looking back into the archives on this one!

Good health to all!
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#700450 Chocolate

Posted by on 18 May 2011 - 05:25 AM


For those who love chocolate and are supersensitive, here is my Enjoy Life fudge recipe that people (all people, not only those with celiac) BEG me to make- not too sweet and, oh so tasty. I am super duper sensitive and eat this every day with no problems.


I take a "bread pan" and oil with olive oil.
2 Pkgs Enjoy Life chips into a saucepan to melt on low heat stirring
throw in about 1/3 to 1/2 stick of butter and about 1/3 cup lowfat milk
mix together til melted
(If you like, throw in about 3/4 cups of Planter's South Beach Diet nut mix or nuts of your choice.) Mix in and pour into pan
throw in fridge with foil on top.
Total time spent: about 10 minutes

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#642116 What Brand Of Dishsoap Do You Use?

Posted by on 26 September 2010 - 04:19 AM

Just want to add my voice to those who recommend dishsoap sans gluten. If you've ever swilled from a glass, say, a teenager washed and rinsed with a little less zeal than you might hope for and tasted SOAP- I rest my case!

Patti is wise, as always. Cross contamination is cross contamination and if there are posters here who have never had serious issues with this while still considering themselves to be super sensitives I believe those posters are EXTREMELY lucky!

Walking in other's moccasins can be very hard to do for some...

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#633702 Shampoo And Conditioner

Posted by on 22 August 2010 - 03:07 AM

Ditto for all the ways you mentioned, Sandsurfgirl, and thank you again, Patti, for reminding people that it is hurtful to be told you are essentially not informed if you have sensitivity to topicals. The level of intelligence and the amount of research the average contributor to this board does continues to both astonish me and give me hope for mankind. (People will continue to know how to read and discuss, something I worry about...) This board has been so helpful over the years and I am so thankful for it; I glean from others' experiences whatever I can and what does not apply to me may apply to others. Strident righteousness about one's own experience as opposed to others doesn't seem to do a lot of good.

And Patti, I don't know what a shampoo bar is, very curious, but as a brunette I've rinsed with vinegar (1/8 or so cup apple cider in a full glass of water and leave it in) since I was a teenager and people still ask how my hair is so shiny and soft. Not bad for an old lady! And cheap, too! Plus, I clean everything in the house with vinegar.

Take care all,
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#632527 Shampoo And Conditioner

Posted by on 17 August 2010 - 03:35 PM

Having just read through this, and discovering after initial cynicism, that I am ridiculously reactive to gluten, using topicals is DEFINITELY an issue that is relative to a person's sensitivity. Thank you, Patti.

My experience is not yours nor yours mine. Perhaps by sharing we find similarities between various and unique answers that aid us and hence this board works its magic. Just as I think all those with cancer do not experience the disease in the same manner, nor do those diagnosed with celiac or those with gluten intolerance. "Tolerance" is good to contemplate.

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#631811 What Is Your Response When People Say.....

Posted by on 15 August 2010 - 05:20 AM

Ravenwood has a great response- kinder than the two word (unprintable here) response that would pop into my mind.

But, really, I too thought I had cancer and discovering I just needed to change my diet was a monumental relief. It's remarkable how much gluten and processed foods Americans in particular eat. I always look at people's carts in the grocery line and never cease to be astonished at the preponderance of processed and glutinous items- no wonder we're in the state we're in!

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#630788 When Is Enough Enough?

Posted by on 11 August 2010 - 04:14 AM


It can be overwhelming, especially when starting out- believe me, most veterans will tell you there is quite a learning curve! And having to work while sick is the worst. Before I was diagnosed I don't know how I got through 2 years of being REALLY sick (I am a special education teacher in a high school program for students with emotional and behavioral disabilities) but I guess I got through it. Every day I wondered if I would get through til the end of the day and there is NO down time in my program!

Figuring out a few foods that work and then cooking and packing them ahead of time helped me. Now I have it down just as writing what I eat takes no time and I barely think about it because it's just second nature. But this took time to happen. I think what most veterans want to impress on those new to the diet is not to get discouraged as it really does take time. I'm sure there are those who can just take out the obvious gluten, replace it with other stuf and do fine, but, in my experience reading this board for 5 years, that is the exception and not the rule.

Hang in there, it will get better. But remember, if you are religious with your food and product choices and you see no improvement, demand another look. Ravenwoodglass' idea about seeing an allergist is good. Also, if acupuncture is included in your health plan, it really helps with anxiety; I've found it hugely helpful.

Feel better,
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#630183 When Is Enough Enough?

Posted by on 08 August 2010 - 02:08 PM

Full disclosure: I was skimming reading this so I may have missed something, but, I think you may need to start from the ground up and just go to a a VERY few trusted, simple foods with your elim diet, keeping a detailed and careful food log, with symptoms (it can take a year or more for patterns to emerge, sorry to say...) and add ONE WHOLE FOOD back in a time while logging it and symptoms. If it is useful, I am over 5 years into this diet and my food log and the elimination diet have been invaluable on countless occasions even as I sometimes felt like any damn food made me sick! That said, I am HIGHLY sensitive to gluten, have had other intolerances emerge, and consequently eat almost nothing but whole foods on a modified paleolithic diet with the exception of dairy.

For over 2 years after diagnosis I was gluten, soy, fruit, nightshade, corn, legume, dairy, egg, nut and rice free- like others, I lived on air. I ate: whole chicken, organic beef, cooked greens and squashes and sweet potatoes, some raw sugar and soon added bananas in. While meager and boring, this diet helped while I healed. I have now successfully added, nuts, dairy, some fruits (low fructose ones) and tomatoes (a nightshade) successfully back in.

I still keep a food log for when things go awry and it is over 5 years old!

Discerning what the precise problems are with this disease takes inordinate patience and vigilance. HOWEVER! If you continue to see lack of improvement, you really should seek further medical advice.

Feel well and be well,
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#556588 Type O Blood And Celaic?

Posted by on 21 August 2009 - 05:20 PM

I'm very common- O+. And I've read A'Damo's book. And I find it curious that his suggestions for me as an O+ seem remarkably accurate. Is it scientific? No. (I'm a black sheep amidst a cerebral family of scientists...) But, it's anecdotally fascinating.

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