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Member Since 25 Aug 2006
Offline Last Active Dec 18 2014 11:32 AM

Posts I've Made

In Topic: The What's For Dinner Tonight Chat

18 December 2014 - 11:26 AM

Creamy risotto with apples, pears, walnuts and gorgonzola! I've been testing out Udi's pizza crusts for a flatbread option... I brush them with extra virgin olive oil and garlic and roast them in the oven. They make pretty decent dippers.  

I am a pretty good cook myself but can I adopt you????????????  That risotto sounds heavenly!  :D

In Topic: Flu Shot

16 December 2014 - 10:27 AM

It sounds like you have something else going on and it most likely has nothing to do with the flu shot.  Do you have gall bladder problems?  This is common to those with Celiac Disease anyway.  You may also have pancreatic insufficiency, whic would cause gastro symptoms like you mentioned.


FWIW.....I have never had a flu shot.  I have also never had the flu but prefer to use common sense practices to avoid becoming sick. I am in a low risk group for the flu anyway.  Some people report a slight fever and the chills the day or 2 after a flu shot but that is normal. It just means your immune system has been briefly engaged.


Hope you feel better soon!

In Topic: New Rules In The Uk

15 December 2014 - 11:48 AM

I think this is great but honestly?  The UK are heads and tails above the US with their knowledge of food in general, when dining out, and already offer many more options than we see here in the US.  Every time I go there, it gets better and better.  This past trip in October I found that Starbucks offers delicious gluten-free sandwich wraps, all pre-packaged to avoid cc.  The company that makes the wraps is Warburtons and they put the wraps here in the States to shame.  Soft and delicious and whole grainy they were and after having 3 of these sandwiches over a 2 week period there, not a hint of sickness was to be felt and you all know I am very, very sensitive.  Everything, I thought, was already clearly marked.


Nero's, another coffee chain (my favorite) offered up a chicken salad sandwich on a gluten-free roll, which I think was from Warburtons.  Absolutely soft and delicious and I am missing my great gluten-free bread now that I am back at home.  All of these items were pre-packaged and I never had a hint of sickness from anything I ate that was pre-made.

This is the link to their site so you can see their products.  If shipping wasn't so damn expensive, I would order a case load!



I also ate out for dinner for 2 weeks and never got sick.....in fact, I felt better than I do when I eat here at home. The food seems fresher and the amount of small farms in Britain is probably the reason for that.  I also found that, especially in the French restaurants, there was a much higher knowledge of food and what is in the food served.  That seemed a no brainer to me as the French are masters of food.  Even the young waitstaff knew what was in the food I asked about, which is not common here in the States.  Makes me wonder what the hell they are teaching kids in school today.


Liability laws are different in Britain than they are here in the States so that is one of the reasons we do not have the same variety of offerings. If people weren't so sue happy here, things would change but that won't happen any time soon.  Such a shame.


I think the new labeling laws are good but if you want to travel to Britain, you can be assured that the labeling offered now is pretty good and you can dine out at many places that will not make you sick. They seem to take celiac more seriously, at least from my perspective and experience.

In Topic: Exocrine Pancreatic Insufficiency

04 December 2014 - 11:16 AM

I ended up being able to go off Creon about two months ago because my elastase testing went from 72 (indicated severe pancreatic insufficiency) up to a 414 (anything over 200 was considered normal), and things had been going really well!  Unfortunately I got glutened sometime last week...can't pinpoint it, and I'm still feeling the effects.  I ended up taking the day off work, which I never do, to just rest.  I know it will pass, but I can't believe I used to think feeling this way all the time was normal.

I know...isn't it bizarre that what you thought was normal was actually a serious illness?  I have a few years that I don't remember much about because I was so out of it.


The good news is that as time goes on and you heal more and more, recovery from a glutening happens much quicker.  I am at the 9 1/2 year mark gluten free and I usually am over a glutening after 3 days. I am getting really good at avoiding taking a hit but when it happens, I am not nearly as debilitated as I used to get.  Never a picnic but much better!


Hope you feel better soon!

In Topic: Feel Like There Is No Answer

04 December 2014 - 11:09 AM

If anyone is still reading this thread..... I am curious to the reaction he is having going back on gluten.


He has been back on gluten for a little over a week now.  The first few days, I thought he was have no side effects of going back on a gluten diet, but over the first 9 days he has only pooped 3 times.  The first 2 times were sludge, like always, this last one was very hard (but still the pale color) and he had a hard time going.  This may not sound like a big deal, but typically he poops 3 (or more) times a day.  Is this a sign that the gluten is affecting him, or could it just be a change in diet in general?  Thanks for any insight!  I know that constipation can be a symptom for celiacs, but it has never been a problem for him.  It has been diarrhea for almost a year now, extreme while on gluten, but still going on even when he was gluten free.

The symptoms he is experiencing could defintely be from resuming gluten.  ESPECIALLY the pale colored stool....a possible sign of fat malabsorption.  Maybe they could also do some stool testing to check to see if that is happening?  That is an easy test.  Lots of people alternate between constipation and diarrhea with Celiac but the docs like to call that IBS.  ;)


I know some docs like to think that they can find damaged villi by a certain age, and I am sure this doctor is trying to help by taking lots of samples but a negative biopsy on a small child does not rule celiac out.  It can take YEARS for damage to accumulate to the point where they hit a sweet spot.  Here is a paragraph from the University of Chicago Celiac Disease center, which outlines what to look for during the biopsy. The increased intraepithelial lymphocytes are often an early indicator so checking for this is very important.



Definitive diagnosis depends on a positive small bowel biopsy and a demonstrated response to a gluten-free diet. Diagnostic criteria include architectural changes in the small intestine, including mucosal villous atrophy with crypt hyperplasia and increased intraepithelial lymphocytosis. The rate of change may be slow and the changes nonspecific.