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Gemini

Member Since 25 Aug 2006
Offline Last Active Today, 09:12 AM
*****

Posts I've Made

In Topic: Newly Diagnosed And Having A Really Hard Time With The Idea Of "never...

20 May 2013 - 09:03 AM

Please go and buy this book to read.......http://www.reallifew...iacdisease.com/  It is important that you learn the diet correctly and learn about the disease itself.  Only then will you realize that it's not the end of the world and there is plenty for you to eat.  But this book earned high marks from many actual celiacs so it's worth it.  Doctors know nothing about nutrition or the gluten-free diet so there is a certain amount of learning you need to do on your own.  We are always here to answer questions too.  :)

 

Everyone has given good advice but I disagree with some minor details....I had no villi left when diagnosed.  My gut was completely trashed. I did eat some processed, gluten-free foods and did fine with them.  Try to stick with dedicated facilites, if you can but if you are craving a cookie or a brownie, your healing will not be set back if you eat some.  I don't even think you need to avoid dairy at first, just gluten.  Many people can tolerate dairy just fine, others cannot.  I think it best to isolate one food group at a time, unless your symptoms persist for too long.  I did fine for 2 years after going gluten-free and then realized I had a problem with dairy, on return of symptoms.  I can tolerate small amounts but not a lot.  If you take away too much food from people when it may not be necessary, then they will resent the diet and be angry.  People are different and what some cannot tolerate, may not be the same for everyone.  You are already having trouble adjusting a bit, which happens to many, and I don't want to see you go off the deep end here!  You love to cook...that is half the battle with Celiac.  Knowing that, with time and learning, you will be eating awesome food in no time.  We can also help you with cravings and what the best gluten-free products are available.  There is some excellent bread out there and making your own is very do-able!

 

Hang in there!  


In Topic: Unknown Leg Pain. Result Of Celiacs?

20 May 2013 - 08:47 AM

Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

http://www.celiac.co...re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Osteoporosis does not cause any pain.  It's a silent disease.  Even if someone that young, or anyone under the age of menopause, had it, once they go gluten-free and heal, it almost always reverses itself easily, due to youth and hormones.

Older people can reverse it too but it takes work and dedicated exercise. 


In Topic: Mushroom (Neroli) Memorial Thread

17 May 2013 - 06:50 PM

I know that there is something else she is doing. As I mentioned in an email to the Tickle Me Elbow gang, I know that Neroli was a big cat lady. She spoke so fondly of her Miss Emily (which resonated with me as I am an Emily), and I knew that she was one of those people whom cats love.

Well, in the past month we have had to have our two elderly cats put to sleep, our old beautiful Tess just two days ago. Funny how things transpire.....for last night in my haze of grief, a great warmth suddenly washed over me, for I am sure that my two lovely little feline souls have met up with Neroli and have found her waiting lap.

I'm so sorry about your kitties.  I have had to put down too many animals over the years and it's as hard as losing a human friend.  All I can picture now is Mushroom in heaven, being followed by all these kitties that everyone has owned....probably going "Feed me, feed me"!


In Topic: Unknown Leg Pain. Result Of Celiacs?

16 May 2013 - 07:51 PM

I had bone pain for awhile and it was my femur (thigh) bone.  That sucker hurt for 3 years after I went gluten-free.  I was limping some days, it was so bad.  Bone pain....not anything else.  I also have osteoporosis but that is a silent disease.  You usually never have pain with it or any discomfort....until you break a bone.  I am weight training to reverse that but have never broken a bone.

 

I doubt you have osteo because you are young and, even if your bones were a little compromised, at your age you should regenerate bone pretty easily because you still have your hormones. At 20, you have good levels of hormones too. 

 

I had an x-ray of my leg done and the doctor said the bone looked perfect....no arthritis or anything else.  So I went home and dealt with it.  At the 3 year mark of

being gluten-free, all of a sudden one day, I realized that my leg did not hurt anymore.  It has never returned.  I think it was either a vitamin deficiency that resolved once I healed or it was a neurological issue that healed and the leg stopped hurting.

 

You have been gluten-free for a year and half and that is good but not very long, in Celiac terms.  It can sometimes take 3-4 years for pain issues to resolve.  You could ask for an x-ray but if it comes back OK, then I wouldn't worry.  You may wake up one day and it will be gone.  That is the norm for many.

 

I wish you luck but it most likely is one of those quirky things that happen to us for many different reasons. If you are really worried, ask for an x-ray.  Those are pretty easy to do!


In Topic: Mushroom (Neroli) Memorial Thread

16 May 2013 - 07:39 PM

We are sending the link for this thread to her hubs.

Oh......that is so nice!  I hope it will bring him some comfort.


 

 

 


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