If anyone is still reading this thread..... I am curious to the reaction he is having going back on gluten.
He has been back on gluten for a little over a week now. The first few days, I thought he was have no side effects of going back on a gluten diet, but over the first 9 days he has only pooped 3 times. The first 2 times were sludge, like always, this last one was very hard (but still the pale color) and he had a hard time going. This may not sound like a big deal, but typically he poops 3 (or more) times a day. Is this a sign that the gluten is affecting him, or could it just be a change in diet in general? Thanks for any insight! I know that constipation can be a symptom for celiacs, but it has never been a problem for him. It has been diarrhea for almost a year now, extreme while on gluten, but still going on even when he was gluten free.
The symptoms he is experiencing could defintely be from resuming gluten. ESPECIALLY the pale colored stool....a possible sign of fat malabsorption. Maybe they could also do some stool testing to check to see if that is happening? That is an easy test. Lots of people alternate between constipation and diarrhea with Celiac but the docs like to call that IBS.
I know some docs like to think that they can find damaged villi by a certain age, and I am sure this doctor is trying to help by taking lots of samples but a negative biopsy on a small child does not rule celiac out. It can take YEARS for damage to accumulate to the point where they hit a sweet spot. Here is a paragraph from the University of Chicago Celiac Disease center, which outlines what to look for during the biopsy. The increased intraepithelial lymphocytes are often an early indicator so checking for this is very important.
Definitive diagnosis depends on a positive small bowel biopsy and a demonstrated response to a gluten-free diet. Diagnostic criteria include architectural changes in the small intestine, including mucosal villous atrophy with crypt hyperplasia and increased intraepithelial lymphocytosis. The rate of change may be slow and the changes nonspecific.