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kenlove

Member Since 23 Sep 2006
Offline Last Active Today, 11:08 PM
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Posts I've Made

In Topic: Noodles

17 November 2014 - 08:10 PM

My favorite recipe calls for homemade egg noodles half wheat half white flour. Is there a recipe for good homemade gluten free noodles?

try to  find  soba powder ( buckwheat) in a Japanese or other market.  Makes great noodles. rice flour too.  takes some practice to get used too but the taste is worth it.


In Topic: Gluten Free French Fried Onions

12 November 2014 - 04:38 AM

so easy to make your own  using chick pea flour ( my favorite) or any other gluten-free flour and oil of choice 


In Topic: Vomiting With Celiac?

06 November 2014 - 05:47 AM

HI, I feel for you,  I threw up  every morning for 6 months  and then it stopped -- they never figured out why but only that at a certain stage the stomach could not handle anything.   Still even when i didnt  eat it would happen.  Sure hope you can figure it out. good luck

Hi everyone.

 

My name is Aimee, I'm 19 and I live in Ohio.

 

In May 2013, I began throwing up. It started out randomly but soon began to happen daily. In September 2013, I went to the Cleveland clinic. They said I had some type of virus and did not run any tests. In October 2013, I went to a local gastroenterologist who ordered an upper endoscopy. It showed I had celiac disease. A blood test confirmed it. The diarrhea I’ve had for years finally stopped after I began eating a gluten free diet, but the nausea and vomiting continued. In February 2014, I had a gastric emptying test; the results were normal. In April 2014, I had a HIDA scan, which showed that my gallbladder contacted abnormally. In June 2014, I had an ultrasound of my abdomen, which showed my gallbladder full of stones but everything else was normal. In July 2014, I had a laparoscopic gallbladder removal surgery. The first day or two after the surgery I was not nauseous, but by the end of that week it was as if I hadn’t had the surgery at all. Later that month, I went to the emergency room because I vomited 6 times in a day. I had a CAT scan of my abdomen in the ER which was normal. In August 2014, I had a small bowel series and an MRI of my brain done, both of which were normal. In October 2014, I went to another hospital. They did not feel any of the tests that had been done were worth repeating. They did not conduct any additional tests either, except for a blood test that showed by BUN levels and BUN/creatinine ratio were low. About a week ago, I vomited blood. There was also blood in my stool. I went to the emergency room. They did a rectal exam which was normal. They also put a tube down my nose into my stomach to apply suction to check for blood in my stomach. That test was normal as well. There was no internal bleeding. They determined that the blood I threw up was from a small tear in my esophagus.

 

The medications I have tried for nausea/vomiting include Phernergan, Reglan, and Zofran. Phernergan helped slightly, Reglan did not help at all, and Zofran helped the best out of the three but still did not help very much.

 

I am about running out of hope. I don't know what to do and I'd like to know if any other celiacs have similar symptoms, even though they are following a gluten free diet.

 

Also, for some reason the nausea/vomiting is more prominent in the morning. (No, I'm not pregnant.)


In Topic: Celiac In Japan And New Symptoms

28 October 2014 - 05:26 PM

maybe we can meet after teh 20th  when i get there form  india.Not sure of my schedule yet though.  If you can find the place behind sogo that would be good  but actually you can get juwari soba in the local groceries.  Is there a LIfe supermarket near you?

 the key is to find some bases to use, for example yuzu kosho  and ume paste  have never had  problems  from what Ive seen and i use them all the time.  sometimes mixed with  wheat free shoyu or braggs aminos which i usually bring and leave at friends restaurants.   different shios are good for sauces too,  macha shio and  water works well  or with ume or yuzu shio.

 

youhave to be a little bit careful of misos and make sure your getting one made with only kome koji otherwise its for barley.

 

getting those other grains  are good too. The awa, kibi and hiya.  they are harder to find but i usually get them in komagome which is not that far from  mitaka.  COntact gene or butch  about the  juwari soba and explain to them you have the same thing as me. Its my real name BTW.  born and raised in mitaka They both speak perfect  english after school in Calif  where gene's wife is from.

 

they just dont have the smae laws but companies are really changing and becoming much more aware since there is such an increase in japan in celiac --  form 05 to 07  it went form  20 diagnosed to  over  27,000 and many more, especially kids, with wheat problems.  The big dept. stores usually have  shoyu made with  soy and/or sorghum  which is really good. while i can get sick walking through a bakery section of the store - -these products never did me in.   Good luck

 

Thanks a lot for the information. I'll probably try to contact this doctor, as I really need to receive some advices from a pro, and would as well need a new check-up.

I'm quite worried about what I can and can't eat (as I said, I don't know what a "light intolerance" truly means, and if I should refrain from eating such food), so I'm sure he will be of great help.

Some people already talked about this, but Japanese really don't care about allergy and all.

I mean, there was this nabe soup I wanted to buy, with an allergen list written on it. The only allergen was the lactose one. I thought it was safe, but I tried to call the company making it. I was then told that there was actually a risk of cross-contamination.

 

Is there any place near Tokyo where we can buy things without being afraid of such traps? Internet would be fine as well. Not only talking about cakes, pasta and such (already use iHerb for them), but also about sauces I will really need if I don't want to eat everyday the same thing. Like Shiro-dashi, ponzu,tsuyu, marudori gara soup...


In Topic: Celiac In Japan And New Symptoms

27 October 2014 - 01:16 PM

sorry not chiba -- shiba daimon is matoi