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Member Since 02 Oct 2006
Offline Last Active Feb 11 2013 11:17 AM

#851841 Osteopenia - No Improvement In Scan Results

Posted by on 02 February 2013 - 10:49 AM

It might be an idea to check your Vitamin D, Calcium, Ionised Calcium and PTH ( several times ) - in case you have a Parathyroid adenoma causing the bone loss. Most Drs don't get Hyperparathyroidism at all - they still think it is a rare disease.. If they kept up to date they would find the stats are 1 in 250 woman over the age of 50 have HPT... which I would not call rare - would you ? Only one cure and chance to reverse the bone loss of HPT and that is surgery.
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#687214 Sometimes, The Term 'gluten Free' Makes Me So Frustrated

Posted by on 27 March 2011 - 02:32 PM

Its not just an American problem :(

In Australia we have had 5ppm as our standard. So anything reputable and stamped as gluten-free would be required to be tested to that level. Now the standard is being changed to 20ppm. We are being told that 20 ppm does not matter. That we should be happier with a wider selection of cheaper gluten-free food. Yeh right... I react to 20ppm and I know of many that do. There are studies that PROVE 20ppm food is accumulative. So one biscuit with 20ppm ... may.... be 'just OK' but 10 biscuits may send you under.

But 'scientific evidence' says 20ppm does not cause villi damage which is all the Coeliac brokers here seem to think matters. Fogginess, falling asleep at the steering wheel when driving, hives, continued malabsorption..... "must be something else" :rolleyes:
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#669676 Diagnosis...

Posted by on 21 January 2011 - 05:41 PM

I have Reactive HypoGlycemia ( 5 hour GTT) and Coeliac. What makes you think you no longer have Coeliac? You may also want to check for Adrenal Insufficiency. Your Primary Care Dr can run a fasting 8am cortisol test and you can order your own saliva tests - although many Drs do not recognise these. RH can be mistaken for low adrenal function. My AI dx came 2 years after the RH dx. It was and still is low cortisol for me.
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#656786 "gluten Free" Not Actually Gluten Free?

Posted by on 28 November 2010 - 11:41 AM

The USA standard for gluten-free is 20 ppm or less. Many of us need zero Gluten. In Australia our standard is 5 ppm or less and now they are trying to make it 20 ppm like other countries which is horrifing for us that need zero Gluten. I react to 20 ppm Gluten.
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#638091 Thyroid Getting Worse After Going gluten-free?

Posted by on 08 September 2010 - 08:40 PM

georgie, that symptom list describes me to a T. I have almost all of them. I saw an endocrinologist a few months back (before the Celiac test), and all he came up with was "you probably have Hashimotos; your meds are fine". I'm adding "Hyperparathyroidism" to the list of questions to ask my new doc on the 20th.

Thanks for the info!

Regular blood tests for calcium, iodized calcium and parathyroid ( PTH) show the picture. You may need weekly repeats. Do you think your Dr will be able to do that ? You can have hyperpt with only slightly high calciums... and if the PTH is normal but too 'high normal'... So make sure you get all 3 tests done at the SAME blood draw. If your calciums are slightly high - your PTH should be zzzing and near zero... That is the way Dr Norman can see it when so many other Drs cannot... He knows more about hyperpt than anyone.

And the levels fluctuate and so do the symptoms! This is what makes it so hard to dx for a Dr that is inexp.

The Parathyroid Disease Awareness Facebook page is good. Lots of info there.
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#632212 "gluten Free Is All The Rage Now"

Posted by on 16 August 2010 - 03:19 PM

Hey - recently I have had several co-workers make similar comments to me and a few of them are cutting back on their gluten intake. I have mixed feelings about this -- while I appreciate that this means there is some greater access to gluten free foods, I"m also concerned that the seriousness of celiac disease is lost in translation.

Recently I was on vacation in Niagara-on-the-lake, a great little village in Ontario, canada. A tea shop had gluten free food...BUT it was in the same glass cabinet as all the gluten containing muffins, breads, etc...and you could see that cross contamination would be a huge issue. I did not feel safe eating any of the gluten free foods...they were not safe for a celiac, but I'm sure they would have been fine for my friends who are 'trying out' the gluten free diet.

That is my worry too. That all these people doing gluten-free on a casual basis because it is 'trendy' are making it look bad for those of us that have Coeliac and need to be zero Gluten.

I have just had 3 days on the couch as a shop sold my hubbie some 'gluten-free' biscuits. ( that were not 100% gluten-free). When he rang back to ask and eventually complain the store owner was like - oh they are not 100% gluten-free but most people do not react to them.... like it was no big deal to eat a gluten-free food that was only 99% gluten-free ..... and had not bothered to train her staff to explain the difference between 99% gluten-free and 100% gluten-free....

If I had bought that biscuit and eaten it immediately before driving the car I could have killed myself by driving off the road. ( I would not eat a new food now before driving but I used to in my early days). As it was I spent 3 days on the couch and been in a lot of pain. Hubbie had to ring back 4x before the store even issued an apology/we will train the staff / store credit....

GRRRRRRRRR...... :angry:
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#632192 On The Couch For 2 Days!

Posted by on 16 August 2010 - 02:19 PM

Sue Shepherd has some great cookbooks as well. Have you found her site ? http://shepherdworks...low-fodmap-diet

I am new to this also - only 2 months ago. I really urge you to try hard cheese. Dairy is so important and I went dairy free for 2 years and severely regret it. I am lactose intolerant only but thought I was casein. I cannot tolerate whey either but normal food like butter, cream and hard cheese is fine My worst FODMAP allergen seems to be onion which is a fructan. And I react badly to apples and most fruits. I have discovered some ( sugar ) dried blueberries which are fine for me. Everyone varies a little in what they can tolerate. I also react badly to sorbitols and that family. Even fruit can be tolerated if you put glucose with it. Apple pie etc. What about rice ? I eat a lot of rice - Indian curries,asian stir fries etc. I have a European range of pasta and bread here called Schar. It is brilliant and we use the spaghetti as noodles for stir fries. I also use an Aust company here that does a very good pre mix that is allergen safe. Brighterlife. I am not sure if you can get it there or anything similar. That is what I make my waffles with and also muffins and cakes. http://www.wheatfree.com.au/

Have you discovered almond flour baking ? http://www.elanaspantry.com/cookbook/ Check with Sue re almonds. I believe w/out skins that they are OK for FODMAP but everyone varies. I have the choc chip almond flour cookies in my freezer at all times for emergencies :P

Our entire house is gluten-free as well. Hubbie eats the same as me. There is no way he allows Gluten into the house. Have you checked that idea?

I know Sue has a tape for remote training, and I have heard she may even be going to USA for clinics- so check with the Melbourne clinic as they may have some info there. Try to get the breath tests done as then you will feel more confident that you are heading in the right direction re FODMAP. It helps to know sometimes.
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#629852 For Those With Hypothyroidism

Posted by on 07 August 2010 - 03:30 AM

Erfa Thyroid from Canada is very good. It is almost exactly the same as the 'old' formula Armour ( before they changed the formula). It can also be used sublingually which is great for anyone with absorption problems. Mary shomon had a page on how to get the Dr to write the generic script.

My doctor prescribed a low dosage of Levothyroxine. I'm reacting to the corn starch in it.

I read there are natural forms of thyroid medication. Any suggestions for which one to recommend to my doctor?

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#405431 Do Eye Problems Go Along With Celiac?

Posted by on 06 March 2008 - 03:02 AM

Since then, my left eye has been completely clear, but a couple of days ago, my right eye suddenly went blurry. I'm getting it checked out tomorrow, but I was wondering if there's any correlation between celiac and eye problems.

This has been happening to me too. I saw a new Endo last week and within 5 mins he had a name ..... Not a nice name BTW ..... and I have since freaked - as my auntie had this disease - its autoimmune and genetic ( she also had thyroid and B12 issues like me - don't know about Celiac )

Myasthenia Gravis. Symptoms include drooping eyelids that get worse with fatigue and better with rest. Also the vision - gets blurred with fatigue and better with rest as ....... the eye muscles are affected.....

There are blood tests now for MG - about 50 - 80% accurate. And Neuros can do muscle stim testing..... However - not all Neuros know about MG that well.... And ...MG can go into remission too - so may explain strange 'episodes' that come and go.....

There are treatments and sometimes surgery is needed.... so ...be aware ...

http://www.myastheni...i...#WHAT IS MG

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