When I created this post a few years ago, it was mainly a comic relief effort to some really serious reactions from disengaged doctors. It has been gratifying to check in from time to time, because it still gives a chuckle; still gives a great vent and still educates us to keep pushing until you find a doctor who cares to be a partner in YOUR health and healing.
Worth it for the previous mentioned reasons of following specific lab tests that might be a creative stretch for your PCP to make the insurance company pay; worth it if you need the enforced mentality to stay on the diet; worth it if you need that for family members.
Not worth it to get better. Too many doctors keep a blind eye to the variations and subtleties of gluten sensitivity to full blown celiac disease and do not advise negative- tested patients who fit the diagnosis to go gluten-free ! Sorry ,big run on sentence there. There is no harm there to advise the diet, especially if they've done everything anyway and still can't get a gold standard. By that time, they should have eliminated anything else, so where's the foul???