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Lagomom

Member Since 01 Jan 2004
Offline Last Active Jul 31 2006 04:24 PM
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Posts I've Made

In Topic: Restless Legs Syndrom (rls)

25 April 2006 - 07:27 AM

Anyone else out there have RLS? If so, what do you do to try to relieve this? I can be up hours in the night with the constant erge to move my legs! Any suggestions would be appreciated!

Thanks!


I have RLS. I KNOW what you are experiencing. RLS can be a symptom of diabetes. Have a GTT done to rule out diabetes. Not enough exercise is another reason given. I swim and still suffer RLS. I have Sinemet (a Parkinson med) for the RLS. It's not a cure-all. But, after taking it for a month or so, the symptoms calm down a tad. Neurontin and Doxepin and Percocet are also used for RLS. I find that the Sinemet works best when combined with 2 percocet. When it's really bad, I have my kids beat on my calves with their hands (percuss). For some reason, it makes RLS easier to bear. I also have a 2 foot, 1 inch diameter dowel that I use to hit my leg muscles with when the kids can't percuss anymore. It sounds bizarre, but it helps.

I am convinced my RLS is a result of malabsorbtion. Researchers also suspect that RLS may be caused by insufficient iron in the brain. Interesting, as I am a carrier for Hemachromatosis.

Libby.

celiac disease/Lupus/OA/C282y het
and a bunch of other stuff.

In Topic: Butterfly Rash

30 November 2005 - 07:33 AM

Christine,
I have lupus. Am disabled because of it. Generally, with bonafide lupus, once the rash appears, it doesn't really "go away". It will fade and flush. My husband reads my rash like a barometer. He can tell how I am doing just by looking at my rash. The lupus rash burns when your immune system is going haywire. For years, I had Dr.s tell me I had rosacea. They were wrong. A true lupus rash does not manifest in the area between the nostrils and the face. Rosacea involves the entire area, according to my rhuematologist.
Unchecked celiac disease can cause lupus. That's how we think I got it. Talk with your physician about your rash. It's better to be safe, than sorry. Lupus sucks.

Good luck,

Libby.

celiac disease/OA/Lupus/Hypothyroid
Scoliosis/HH/Gilberts/DJD :blink:

In Topic: Scoliosis

18 November 2005 - 09:07 AM

Scoliosis runs in my family, too. I have it, slightly. One son with short leg. My sister had a Dwyer fusion (2 of them)after spending her teen years in a Milwaukee brace. That was rough.
The gene comes from my mom, who is 100% German, no celiac. My dad carries the celiac and HH genes( Irish/Cherokee). This wouldn't support the celiac disease/Scoliosis connection for my family, anyway.

Libby. B)

In Topic: Irish Heritage And Celiac's

18 November 2005 - 08:49 AM

Dad is Irish and Cherokee. My mom is all German. Dad had terrible digestion. So did his little sister. Her 2nd son has Celiac. Kind of nice having a cousin to share this with.

Libby.

celiac disease/HH/OA/Hypothyroidism/Lupus B)

In Topic: Any Gluten Free Ice Creams?

28 May 2005 - 10:31 AM

Just received a reply from Blue Bunny.

<<Hi my name is Judith I received your message. The mono-diglycerides derive from soy. If you need any further assistants. I could be reach Monday thru Friday from 8:00 am to 5:00 pm CST



Judith O. Lozada

1-(800) 942-3800 ext 2954>>


Libby.
Dx celiac disease 2002
+ bloodwork, + endoscophy

5 of six children with celiac disease Dx 2002 :blink: