This morning I had my 6 month follow up with my Gastro Doc. The first time we met, I felt like he was very non-chalant about the whole "celiac thing". I basically told him I was 95% sure I had it (my sister was diagnosed, plus positive bloodwork) and he said it could be, but it could be other things too, like IBS...
He didn't push the endoscopy, but I wanted it to be 100% sure + I wanted to know how much damage there was. He did it & sure enough it was celiac - he said he could tell even without looking at the biopsies they did.
SO - I've been all over the internet & this forum soaking up as much information as possible. And today I told him about some accidental gluten that was ingested (I ate 5 Bisquick pancakes thinking they were Pamela's!!) and how it didn't really affect me at all. Whereas some other times I think I got a hidden breadcrumb & was crampy and bloated.
From there he said that as long as a strict gluten free diet is followed "it's OK to cheat once in a while". I was really shocked to hear this.
By my understanding, this was NOT OK. I mentioned that I was surprised & he said something along the lines of it being a 'secret'.
I would love to hear what you all have to say about this.
I thought I'd cheat one day even thou I have felt so much better! Wrong! My Mom has it my daughter has it but my blood work was -. So why not cheat-I got my answer-I got a migraine! No more cheating for me. And my daughter gets very sick if gets any by accident. I think the Dr. is crazy!