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Member Since 28 Nov 2006
Offline Last Active Feb 08 2008 07:59 AM

Topics I've Started

My Mom Tested Positive!

08 January 2008 - 06:52 AM

Hello all. I don't get to come very often anymore. I'm super busy, but I just wanted to share that I finally got my Mom to be tested (a year after I was diagnosed lol) and she tested positive on the blood test.

The control number for her tissue trans was under 20 and her number was 53.3, so that makes her positive. I convinced her to see my new GI doctor who seems to be very knowledgeable in celiac and has a ton of celiac patients. She will be scheduling her biopsy shortly and hopefully she will finally have the answers to her medical issues. She has thyroid issues, high blood pressure, extreme exhaustion, as well as a ton of other symptoms. I also believe my dad may have Celiac but since he's adopted, unless he goes and gets tested, we will probably never know.

I hope everyone is doing well!!


Baking Flour?

07 January 2008 - 10:47 AM

I have an apple crisp recipe that I absolutely LOVE and miss with a passion. The other night I bought brown rice flour to make it with because brown rice pasta is my favorite and doesn't seem to be gritty like white rice pasta. I was disappointed when my apple crisp came out gritty YUK!! Does anyone know what is a good flour to use that has little to no taste and is not gritty?

My topping recipe calls for butter, flour and sugar and they are all crumbled together. Is there a flour similar to wheat flour but doesn't have the grit or a funky taste?

Thanks everyone.

Help Please!

30 September 2007 - 07:38 PM

Ok so I've been diagnosed with pernicious Anemia on top of Celiac and I am not getting the B12 that I need. I would like to have links to any articles from "reputable" sites that have factual information I can bring to my GI that will convince him that B12 shots once a month are not working for me. He never gave me the initial 3-4X's a week shots all he perscribed were once a month. I should have had that reserve and it was never perscribed and the B12 shots seem to wear off sooner and sooner each month. I see my GI specialist on Tuesday so I need to gather some info.

This is what happens. I get the shot and it takes a week to kick in, then it last for a week (maybe two weeks if I'm lucky) then it wears off so I have 3 weeks of major tingling, numbness and pain which is more then likely causing more nerve damage. I need proof to convince my GI that I am not getting enough B12 but I need to make sure he knows I've got my facts straight so I don't want to walk in with any old print out. I want facts that he can't argue with.

I am in the process of getting a new GI but Celiac knowledge is so rare in my state that the only GI that seems to know a lot about it is backed up until January already, and I can't wait that long because my leg is in a lot of pain.

I'm so sick of having to tell doctors what they are suppose to do. Isn't it their job to research it and make sure they are making the right decision. When I called up to tell them the B12 shots were wearing off they told me that the leg thing was a nerve issue and I'd need to see a neurologist. Well yah it's a nerve issue, but it wouldn't be if they'd give me enough B12 grrrrrrrrrrrrr!! I told her the standard was to give a lot more B12 in the beginning until they get my reserves up and they swear that the standard is B12 shots once a month and they never give more then that. UG!!

If I end up crippled because they didn't treat my condition aggressively enough they are getting slapped with a big time lawsuit (ok I'm just venting now, but really they need to read up on Pernicious Anemia and then treat me correctly)!!

D-amphetamines Or Dexadrine

15 June 2007 - 03:09 PM

According to the pharmacist NO they don't, but I'm having more and more pain everyday since I started taking them again. Does anyone know if they are suppose to be safe or not? Thanks so much to anyone who can help on this one!!

They Messed Up The Samples On My Daughters Biopsy

15 June 2007 - 02:30 PM

They sent the wrong skin samples for the opposite testing, so my daughter screamed and cried and got emotionally scarred for life with the IV's and crap and they have to re-do the damn biopsy. She has a scar now that I didn't even want her to have and now they tell me that she will have another one. I'd like to scream right now UG!! What in the hell are these people thinking? If you do a test like this on a 2 yr. old you better get it right the first time around. The doctor assures me that the hospital will pay for the tests since they messed it up, but I don't care about that part I care about my daughter going through that ordeal again and about her having another scar on her little body. This is just absolutely rediculous. Why don't they just diagnose her with DH already and just call it good. CALGON take me away LOL!!

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