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Kelgs

Member Since 07 Jan 2007
Offline Last Active Feb 14 2007 10:42 AM
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Posts I've Made

In Topic: Genetic Testing For Infant

14 February 2007 - 10:36 AM

According to this article they can actually use the cord blood to test.
http://www.uchicagok.../uch_007936.pdf

Good luck,
Kelly
Mom of Alex 9 - Gluten free since 1/07
Ethan 6 - Gluten free since 1/07
Zac 1 has never had gluten
Wife to Mark - Gluten free since 2003





I was dx with celiac last year, and have had our 2 yr old genetically tested since then (she has one gene) and am pregnant again. I was wondering if anyone knew if it was possible to have the genetic test done on my newborn in the hospital when they do all those other tests? It's a long shot I know, but I would love to know right away if I even have to worry about him having celiac too or not.


In Topic: When Can Kids Get Tested?

14 February 2007 - 10:32 AM

This article says you can use the gene test at ANY time. They can even use cord blood. http://www.uchicagok.../uch_007936.pdf

My husband is celiac and at least 2 of my boys are celiac. We have not given any gluten to our 1 year old yet.

Celiac is not the end of the world I am finding. My boys are doing great! You should be scared to have kids! LOL! They will change your life.... but in wonderful, wonderful ways.

Good luck,
Kelly
Mom of Alex 9 - Gluten free since 1/07
Ethan 6 - Gluten free since 1/07
Zac 1 - has never had gluten
Wife to Mark - Gluten free since 2003




I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you


In Topic: Great Grains gluten-free Bakery In Chattanooga

15 January 2007 - 01:08 PM

We go there pretty often. They have moved though - now they are over closer to Signal Mt. We love the cookies. They use Betty Hagman's recipes. :)

Kelly (husband and at least 2 of our boys are celiac)

Okay people good news! Well I mean if you're interested in ordering from the gluten free bakery in Chat.
I'm working with the corp. office to see if they can get the bakery owner (franchise) in Chat. to offer shipment that are only 1-2 days out from their location. You can find out what you are by calling 1-800 pick ups and telling them your zip code and the bakery zip (below).

For those of you who care below is the actual bakery (btw I was off on their name -oops! It's actually Great Harvest. Also, I'm listing the toll free of the number of the person I'm working with at corp. so you can call them too and rally support behind the idea if you are so inclined. You will not be disappointed if you give this bakery a chance. Also this is the ONLY bakery in the gluten-free dedicated facility in the country.

Great Harvest Bread Co.
8006 E. Brainerd Rd.
Chattanooga, TN 37421
423-855-7008

Oh and there are Great Harvest in Atlanta but apparently they don't offer gluten-free items. I'm going to double check that tomorrow. Plus I do not want items from a non ded. facility anyway and I'm sure the rest of you don't either.


In Topic: Angry Boy!

15 January 2007 - 12:55 PM

Vicki,
I would with out a doubt try the gluten-free diet for you 11 year old. It has made a world of difference in my boys even though ther bloodwork was neg.
Good Luck!
Kelly (Mommy of Alex 8, Ethan 6 and Zac 1)


My 11 year old was just recently diagnosed with Asperger's Syndrome, which is a form of Autism. I have had Celiac's since he was born, but was not diagnosed until he was nine months old. I have been doing a lot of research, and I believe that gluten is connected to behavior. He is a very angry child, and shows no cooperation in school. I also believe that if celiac's runs in the family, then gluten can affect a non-celiac member. I am having my son tested on Tuesday, just as a precaution, because he hasn't been tested in a few years. If the blood work comes back negative, I am still going to try a gluten free diet with him. It's not going to be easy, but if it will change some of the negative behavior, then I will be one happy mom.

Vicki
gluten-free since 1995


In Topic: Test Results Are In

15 January 2007 - 12:49 PM

so how many of your kids blood work came back normal and they were still found to be celiac
[/quote]

My boys bloodwork came back normal. However, letting them have gluten is a nightmare. We tried a gluten-free diet several times with wonderful results. Since my DH is celiac we are now keeping the boys gluten-free too. They are just SO much better when they are off gluten.

Kelly ( Mommy of Alex 8, Ethan 6 and Zac 1)