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Member Since 23 Mar 2004
Offline Last Active May 17 2006 08:55 AM

Posts I've Made

In Topic: Mouth Sores

16 May 2004 - 12:05 PM

My husband and I had it and brought the kids to be looked at and the Dr said all looked fine so they didn't do the test but sure enough, a week later my daughter complained of a scratchy throat and again I brought the kids -- two year old was fine but my girls (6 and 4) had it. You mention your son is immunosuppressed and are these spots typical of his disease? If he is under two it is unlikely to be strep in a healthy child -- at least this is what I am told. Nicole

In Topic: Mouth Sores

16 May 2004 - 11:26 AM

Has he been exposed to strep? You describe a red throat, swollen tonsils and white spots which sound exactly like what we just went through last month with a strep infection. Maybe others have different ideas but I would want to rule out strep.

In Topic: Dh And Uv Exposure

01 April 2004 - 10:00 AM

Had a positive titer first ANA test, negative ANA next test. All other test ruled out Lupus. Dr. didn't think UV light should bother me and I was just curious to know if it bothers people with DH.

In Topic: Skin Problems And Cd

26 March 2004 - 01:58 PM

I do the same thing! I never (unless absolutely necessary) scrub my skin with soap. Usually just the necessary areas. The shampoo is really nice. When I get a second I will post the name.

In Topic: Is Cd Forever?

26 March 2004 - 11:43 AM

The biopsy of the blisters showed Linear IgA bullous dermatosis. I thought it would be DH but nope (Derm thought it pemphigus so I am lucky). I guess before immunoflourescence, they thought both were the same disease. IgA is deposited differently on the basement membrane zone in the diseases, granular in DH and linear in LAD. Supposedly some with LAD respond to a gluten-free diet but it is such a rare disease, drs don't know much about it. They prefer to medicate to suppress the blisters instead of figure the problem. At least with DH, the cause is clear -- not that this helps sufferers in the least. It is just weird to me that the diseases are so strikingly similar yet with LAD they do not think it is diet related (though there are two reports of remission on gluten-free diet). It is also a disease that can be drug induced and once the offending drug is removed, the disease clears up. Children get the disease and it is known as Chronic Bullous Disease of childhood. Go figure.

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