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Member Since 19 Jan 2007
Offline Last Active Mar 13 2007 08:10 PM

Posts I've Made

In Topic: I'm Extremely Confused..

02 March 2007 - 07:04 PM

I've sent you a PM. You are correct in that the inspection through the endoscope may LOOK normal, and be abnormal on biopsy. I was trying to say it IS possible to see the damage. Ultimately, the biopsy results trump the visuals.

I didn't get a PM..can you resend it? Thank you for your help!

In Topic: I'm Extremely Confused..

01 March 2007 - 08:50 PM

Let's see, well, I just asked my mom what blood test was positive and she said the IgG was. Which when I researched, it said that IgG can just mean that a GI problem exist.

I really think that this doctor either lost or forgot to take that biopsie when he scoped me because I got all the results back except that one(which was the most important!) and then when he finally answered back he just said that it was inconclusive. Does anyone think that I should get in touch with the lab and find out if there ever was a biopsie?

These are my symptoms..if anyone knows what this could be, please tell me because I'm sick of feeling sick and my doctor doesn't seem to know.
-Sharp pain below breast bone(top of stomach)
-Cramping of stomach(middle and lower)
-Still having a lot of acid reflux..I'm on prevacid twice a day and taking Carafate 4 times to coat the ulcers.
-Nausea constantly

In Topic: I'm Extremely Confused..

01 March 2007 - 11:24 AM

I agree. Your GI is nuts. If he is telling you that he saw flattening of the villi with the naked eye, and then said that your results are inconclusive... he's seriously insane, and not a very good doctor.

Have you tried a gluten free diet?? Obviously, you have more going on than "just" Celiac, if you even have Celiac - but a gluten free diet can help alleviate some of the symptoms you are having.

If I were in your shoes, I'd be looking for another GI - and I'd be demanding some answers. Also... when you go to another doctor, take all your medical records from THIS doctor with you, and ask for some clarification.

Best wishes to you!

Yeah, I've been on a gluten free diet since the end of December. So, two months now. It seemed to help with the lower gi problems at first, but now it's kind of bad again. I've been really careful because I'm not going back on wheat until they figure things out! I go to this doctor on March 14th and I'm gonna take all my records to another doctor. I might end up having a colonoscopy. Is that a bad test or is it similiar to the endoscopy? Is that how they check for Crohn's?

In Topic: I'm Extremely Confused..

28 February 2007 - 11:58 AM

Just re read your post. LOOK DEEPER!! Especially if you're still not feeling well. Have them biopsy for H Pylori, EE, and Crohn's too. My son had two negative H Pylori blood tests, but the doctor said those are very unreliable. Good luck and I feel for you.

Whenever they did my scope, I'm scared they didn't take the biopsie of my small intestines to check for celiac. I was out of it, but my mom said when she asked about it the doctor had a strange look on his face and replied, "she looked pretty flattened out." So, I wonder if he was just covering himself by saying that the test was inconclusive. I guess what i'm gonna have to do is slowly put wheat back in my diet and they are going to have to scope me again. I'm just really sick, and I'm sick of being sick. It's almost 3 months now! I had gastristis, ulcers in my stomach, deuodeunem, and esophagus, acid reflux with blood, and a hiatal hiernia. They rechecked me for h pylori by a stool test, which they said was reliable, and it came back negative. I really hope they figure everything out! I've had to change my entire schedule. I had to change to online classes and I quit my job, so it's been really hard. This just makes it harder!

In Topic: Newbie

03 February 2007 - 09:54 PM

Hey Joni! I am also new to celiac so I can't give you tons of advice but I can tell you what has helped me.
The gluten free diet seems so overwhelming. What I did was I made a notebook of all the information and recipes I found online. That way I could just flip through to find what I needed. I also googled ingredients in things to put my mind at ease about what I was about to eat. This forum has really helped me and I think you will find that it is a great support system!

I've been on the diet for 6 weeks now and I still feel pretty bad, but then again, I had some other things wrong with my stomach(h pilori, ulcers, gastritis, reflux, and hietal hiernia). I have wondered how long it takes, but from the research I've done it seems like it depends on the person.

I hope you start feeling better! If you ever need anything you can message me because I'm going through the learning process also.


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