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Member Since 02 Feb 2007
Offline Last Active Feb 05 2008 09:36 PM

Topics I've Started

Best Soy Milk?

15 August 2007 - 01:59 PM

OK - so I had to switch my 17 mo old to soy milk. He is having a fit. Standing at the fridge crying milk. I give him a cup of soy milk - takes a sip and throws it at me. I've taken a drink, his dad and siblings have taken a drink and shown him it's yummy and he just doesn't care. I've tried the vanilla and chocolate. He'll drink a little of the chocolate, but won't touch the vanilla. I think he'd like it best if there were just a kind out there that tastes just like his beloved vitamin D....
Any suggestions? HELP! :(

Has Anyone Had A Second Opinion On Their Biopsies?

31 July 2007 - 07:09 PM

OK - so I'm really confused :)
My son is 17 months old and keeps getting smaller and smaller on the percentage scale. Soon he's going to fall off of it :(
Anyway, my ped sent him to a ped GI and they've tested his ttg's etc a couple of times - and no positives (Not surprising since he's only 17 months). HOwever, they went ahead and did an endoscopy two weeks ago b/c he has the gene and isn't gaining weight, has a distended belly, etc. They said they thought everything looked normal, but had to review the actual biopsies. When reviewed they found that he has eosinophilic esophogitis. WHite blood cells in the esophogus that I guess make the esophogus constrict and harder to eat. Usually caused by many food allergies. So they did the RAST test and only milk came up as a MILD allergy. NOt enough to cause the eosinophils (they think). His doctor ordered my biopsies from the lab that processed them to compare mine to his. He is curious if I really have eosinophilic esophogitis and not celiac. However, my ttg's were high. ANd my biopsies were done 6 weeks after I started my diet (I was losing too much weight to wait - so I'm afraid they won't see what they need...). But I guess if I am responding so well to my diet and I show the eosinophils that it might show some relation between the two? There is a Dr doing research as celiac presenting itself in this way. Does anyone know anything about it? Or anything about eosinophilic esophogitis?

Not Sure What This All Means...?

19 March 2007 - 06:29 PM

My youngest is almost 13 months. He had a ttg and all came back fine. He is small, but has always been a terrible eater (at first it was because his tounge was tied - that broke on it's own). He seems to have some texture issues though - and still has some trouble chewing. He did grow before his last appt and is 50% in height again, but is still 25% in weight. He hasn't gained any weight since he was 10 months old. He is EXTREMELY active. For example, I found him on the kitchen table today :o . He runs. He JUMPS! The doctor thinks that some of his weight issues could be that he is just so active and doesn't eat much table food. But he also said that if he hasn't picked up much weight by his next appt (15 mo) - he would call the GI at Children's again to look into other ways to see if it's celiac...
So the last two weeks I've really been pushing the table food and switched him from his formula to whole milk. His poop went from regular to bright green (like neon) and now to mustard yellow. Any idea what this means? Do you think he's intolerant to milk? Or do you think that it's all of the table food (and gluten therefore) that he's been eating? I'm so confused. I plan on calling my doctor tomorrow - but I was just trying to get some ideas...?

Siesta Key, Fl

07 March 2007 - 08:30 AM

My sister in law just moved to Siesta Key and we are going to visit her at the end of the month. We are staying at a condo with my in laws - and my mother in law has been great. She said we'd go to the grocery together when we get there - she doesn't want to bring in any gluten to the condo unknowingly (I'm new at this - and so then is she!).
She told my father in law that if he wants a sandwich he can go make one in his car :) SHe's too funny...
Anyway, while on vacation - my inlaws LOVE to eat dinner out. They love fresh seafood and looking at the beach while eating it. I'm trying to plan ahead and find some restaraunts we can enjoy - since they're being so accomodating. Does anybody know of any?

Also, I have 3 small children - any ideas for snacks for them for the long car ride that are gluten free - since I won't be able to scrub my hands like I do at home...?

Thanks for all of your help!

Do You Automatically Test Your Kids?

20 February 2007 - 10:51 AM

Hello! I was recently diagnosed with celiac through bloodwork and then it was confirmed with a biopsy. I have 3 small children: 3,2, and 11months. I had the baby tested via bloodwork because he is so small (he has no other "symptoms"). It came back negative. They also did a nutrition panel of iron, electrolytes, protein, etc. just in case it showed up a false negative and he was suffering nutritionally. They came back excellent - so no worries about him for right now. I know it can show later - my ped said to not rule it out if something else comes up.
However, I can't decide what to do about the other two. My ped says they are young for the test (he'd prefer them to be over 5). They have no symptoms. They are healthy and happy and plenty big. Do I not worry about it until they're 5 or showing some signs of an issue (gastro or otherwise)? Or do I test them for the gene and then every 2 years or so for celiac just to make sure? Or any other suggestions?
I'd prefer not to make our whole house gluten free if I don't have to - I know it's harder on me - but I make all of the food anyway and we are just extremely specific about where they may eat. And I wash my hand 100x a day :) We just can't afford for all of us to be gluten free if they don't have to be....

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