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vbecton

Member Since 04 Feb 2007
Offline Last Active Jan 21 2013 06:50 PM
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Posts I've Made

In Topic: Enzymes For Gluten

21 January 2013 - 06:36 PM

thanks myquest7846!! I will keep an eye out for this and maybe even offer myself up for trials! i'll also check to see if any trials are going on in my area. right now, 7010 are in preclinicals. exciting.

and no worries gemini! my situation is different. the whole blood sugar thing is a problem. i find that 100x worse than celiac! then traveling. not sure i'm cheerleading for the FDA to approve a drug that could help, but every once in a blue moon the FDA gets it right :)

by the way, you guys put ireland on your list. no matter where we went, there was always a gluten-free menu and every waiter knew exactly what i was talking about even suggesting corn starch alternatives to my favorite shepherd's pie recipes. i'm thinking retirement!

In Topic: New Drug For Celiac Disease? Would You Take It?

21 January 2013 - 01:15 PM

I would! Only because of my lifestyle. When I'm home in my own country eating gluten isn't necessary. When I'm overseas, it's sometimes unavoidable. And only because I have other medical conditions that further restrict my diet to a paleo type diet (but no fruit for me). When I'm in a 3rd world country and all that's available in a village are some pastries filled with meat...that pill would help. Otherwise I eat from my "prohibitive" meat sources I've smuggled over the border. Sometimes my stash gets confiscated, but I always risk it because I've been caught too many times in small villages and no food source. So, bring it on!!

In Topic: Enzymes For Gluten

21 January 2013 - 01:05 PM

Thanks for your help Gemini. I guess my post came across as blase toward careful meal planning, but that's not the case. In some countries, we've even done gluten-free reconnaissance missions (ha!) where we know people on the ground where we are headed and they get the lay of the land (restaurants, health food stores, etc...).

Another medical issue that might help you to see my dilemna is I have severe reactive Hypoglycemia and some other ridiculous hyper metabolism issue (of which hasn't been diagnosed yet). So, my diet is high protein, super low carb, no sugars, etc... Seems like meat and veggies would make it easy but in some countries it's hard. I've gone days living on nothing but turkey bites (gluten-free ones brought from home), gluten-free crackers, meat sticks and some veggies. Doesn't seem so bad right? Except for that I almost feel like I'm being starved to death, can't concentrate, and then blood sugar plummets below 40 and then I'm in a pickle. I have to consume a high caloric diet with protein being the main source, then eat every 3 hours. I always bring an entire carry-on of safe foods. It's risky as most countries confiscate my packaged meat when I'm caught. And you can't bring produce. Sometimes that leaves me with nothing but carb things like gluten-free breads, crackers, etc...

So I'm just putting the question out there if anyone has seen anything that works to help lessen the blow. I have literally been "that girl" who is standing in the middle of a souk crying because all I see to eat are things wrapped in pastries, sugary breads, regular breads, sweets, sodas, fruits, and meats laying on breads. Foxhole! I can't have any of that! If I have something with sugar, I had better back it up by a high quality protein within minutes or I'll flat pass out within an hour. Guaranteed. And unfortunately, traveling isn't as much a luxury as a necessity. But, I'd like to see it both ways.