I'm a newcomer too. I DEFINITELY believe there is a link between endometriosis and celiac. In my case, I had exploratory pelvic surgery in 2004 that showed no signs of adhesions, endo, etc.
In June of 2006, I had an appendectomy followed by 6 months of intense illness--I was diagnosed with celiac that December. Some months later after being on the gluten-free diet, I was complaining of lower right quadrant pain. The doctors didn't have any answers; in October 2007, I had surgery to remove a fibroid and a dermoid in one of my ovaries. During the surgery, the surgeon found that I had Stage 3 endo and both of my ovaries were embedded!
I'm convinced that the endo, which also a disease of the immune system, was somehow triggered by the celiac.
So you're not alone!
Hello from a newcomer,
I was glad to find this site and have enjoyed reading some of the posts. I jumped online after eating a sandwich made with Ezekial bread..."sprouted" wheat. I heard this wheat was somehow different and thought I could tolerate it...it's not working. Perhaps the difficulty is that I haven't actually been diagnosed with Celiac. I do, however, have endometriosis. I have also gotten extremely sick when I eat. It seemed liked Atkins and South Beach diets helped me feel better when those came out. Then I learned about the endometriosis diet last year--no wheat, soy, meat, dairy, sugar, caffeine or alcohol. Doing this EXTREME and difficult diet relieved stomach pain. But I found my INTENSE stomach pain flared up when I cheated with wheat/gluten (my fav food). That's when I learned about Celiac. So, my question to the members is, do any of you also have endometriosis? I'm curious how oftenthe two co-exist.