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paula

Member Since 31 Mar 2004
Offline Last Active Apr 04 2005 03:56 PM
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Topics I've Started

Help With Daughter Who's Regressing On Diet.

15 January 2005 - 07:59 AM

I am looking for any advice you may be able to provide. My daughter has been gluten-free since April 2004. She had been looking so good, no enlarged tummy, great color, no black circles under her eyes, loads of energy etc. Thursday evening my husband and I took her to swimming lessons and when she stood next to the other kids I almost died. Her tummy is back, not to mention that all of a sudden she is very pale and today she even has black circles re appearing under her eyes. I know that the tummy was gone in August when she last wore this swimsuit and being that this is the 1st time she had put it on I was horrified. Her color has been nice and pink all along it really was only in the last 2 weeks that I noticed that it was not as "healthy." She weighed 31 and a half lbs last December (at 4 yrs old) went on the gluten-free diet and weighs 38 and a half lbs this am.

I am not sure what this means. I had called her GI and we go on Tuesday. Could this be refractory celiac disease? I was told that with refractory you do not improve and then get sick again.

I also was in her classroom yesterday and spoke with the teacher. Her french class has play doh in it. It is the home made variety with reg flour. Can this be absorbed through the skin? The teacher also mentioned that she is more tired and less interested this week.

I make all her own bread, muffins etc. The only couple of things I thought of I called on. One being those listerene pocket pack breath strips. THey couldn't tell me. The other being a pizza sauce and its fine.

Thanks in advance for any in sight you may provide.

Paula

New And Confused Please Help

01 April 2004 - 04:11 PM

Hello there, my 4 year old daughter has tested positive with a blood test (IGG I think) I am still awaiting the results of a second blood test. I read somewhere that the IGG test may be postive but the person may not have Celiac disease. Her level was 57. The GI specialist we are seeing wants her to have the biopsy on Monday and doesn't feel it necessary to wait for the other results. Can someone please clarify if its not Celiacs what else it could be and whether or not its a good idea to wait for the other test result. My huband and I have no prior knowledge of this disease and things are moving so fast. I really appreciate any advice you may have to offer.

Thanks.
Paula

4 Year Old Daughter Having Biopsy Monday Any Advic

31 March 2004 - 01:34 PM

What a long process this has been. My daughter has been suffering with very low iron (2) since last July. At that time my dr felt that it was related to her diet. A very good friend recommended that she have a blood test for Celiac disease but my dr said that she didn't have that. Long story short after months of pleading and lots of sleepless nights we just found out her blood test was positive. I am scared because my dr still feels that my daughter doesn't have celiac disease. She has never has diahera (sp) or any complication to gluten. She does have a big belly and is very small but contiues to gain weight. The level was 57 in her blood (told normal was 0-10) so I am pretty sure that this is what it is but am wondering if anyone elses child has presented with low iron and it the gluten-free diet has made a difference.

Thanks.
Paula