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Member Since 25 Feb 2007
Offline Last Active Apr 11 2007 02:00 PM

Posts I've Made

In Topic: Angry Boy!

11 April 2007 - 02:00 PM

Hi there

I 'm needing some help. My daughter is still experiencing behavioural problems even when off Gluten, Dairy and soya. Mostly problems communicating her emotions and not able to stop her self going off like a bomb many times a day. She has one form of speech thats shouting!! She is unable to understand the other persons perspective.

The diet has done wonders and it is much more manageable completely GI problem free. Is this prephaps as good as it gets? Does anyone else experience behavioural problems even on diet. She has terrible trouble sleeping and I am wondering if this is the root of the behavioural problems now. We have been gluten free for 4yrs 100% different cooking utensils,pans plates toaster.

In Topic: Advice About Anxious Child

25 February 2007 - 04:47 PM

My 9 year old daughter has become extremely anxious in the past few weeks. I'm not sure if it is anxiety related or just ADD, but she has also been unable to do her homework without taking hours. Not only is she whining about how hard it is instead of doing it, but she does seem unable to do simple math problems. Before she went gluten-free, she had a hard time settling down to do homework but she was able to do it when she did.

She is also soy intolerant and she had some soy about 2 1/2 weeks ago. I suspect she has a problem with peanuts and she had peanuts as recently as a week ago.

I've been waiting for the effects to wear off if that is what it is but it isn't getting any better. Do you think she could still be reacting to the peanuts and/or the soy? Or should I try removing eggs and see if she is intolerant to that? My husband thinks I am crazy to be even thinking about taking more foods away from her.

It seems to me that every time we remove a food, there is a short period of her being extremely calm. So it seems to me she could be developing other intolerances. What do you think?

I had to do the same for my child, B still had lots of symptoms even after 2yrs gluten/dairy free then I read a book about the SCD diet. It was the best thing I did!! The day I put her on that diet she was pain free with no behaviour changes throughout the day. Then gradually I started to reintroduce foods now I know all legume beans, soya and all soya derivatives as well as rice cause problems if eaten in to large a quantity. May be this will put your mind at rest.

In Topic: Angry Boy!

25 February 2007 - 04:35 PM

My older daughter has gluten intolerance and an auto-immune (probably colitis, not celiac). The gluten causes temper tantrums and hyperactivity. If you'd known her before being gluten-free you'd think she had autism. She also gets exema and the look of a sunburn on her face. Since being gluten, casein, egg, and other foods-free all of these symptoms have disappeared. When she gets something in her system she is sensitive to her face turns red within minutes. We've used this as a quick indicator.

My younger daughter has some of the digestive problems, but really responds with hyperactivity. We tried to put some gluten back into her diet, wondering if she'd outgrown it, but she reacted with extreme hyperactivity. Imagine having a four-year-old who, literally, can't stop moving. After about a week, we pulled out all the gluten indefinately. Within a couple of days, she was focused and calm.

Neither girl has all of the screening markers for celiac. But when they've been tested, they had already been on a gluten-free diet, so the results are not valid. I'm not willing to put them through a gluten diet just to tell me to remove the gluten, since I know the removal works. My older daughter did have an endoscope put through her from stem to stern, and they did find damage in the lower intestine, but not the upper. That's why she has a different auto-immune diagnosis than celiac. I was told it will be a few years before a valid test can tell us exactly which auto-immune she has. In the meantime, she takes medication (Pentasa) and we control her diet. Otherwise, she doesn't gain height nor weight.

Hello, I'm new to the forum, but my goodness your daughter reacts in the same way as my eldest daughter does! The sunburn type rash which is immediate, extreme behaviour changes. We lose our daughter for weeks if she eats gluten. I mean she no longer makes eye contact, reacts to everything, she hand flaps; is unable to sleep, is often in terrible pain comes out in a rash all over. We have often wondered if B is autistic however if you remove gluten, dairy and soya all the symptoms disappear. I would also be interested, too, if others have the same experience of gluten. There is very little written about celiac disease and autism, does anyone have children with both?

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