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Member Since 01 Apr 2004
Offline Last Active May 06 2004 06:39 PM

Posts I've Made

In Topic: At A Loss

18 April 2004 - 06:02 AM

It has been a few days since i have been here...I have had some issues to work out but thanks for the advise. My 3 year old came in the bathroom the other night when I was throwing up and said "Mommy, I love you" It is so hard. I made an appointment with my GP for Monday to get set up with some depression medication. I am also going to seek some counseling.

The other night I had an issue with cross contaimination and I have been in a lot of pain since. I hope this will pass.

In Topic: Problems With Spouse Cause Of Celiac

18 April 2004 - 05:57 AM

I was diagnosed about a month ago...my husband was in shock and went through the 5 stages of grief but he is great about reading lables if there is something he wants to buy but not sure if I can have. If there is stuff in it that I cant have, he wont buy it. I would suggest that he do some reading on it. My husband did and it has helped him better understand the disease.

Best of luck with your husband.

In Topic: At A Loss

13 April 2004 - 05:41 PM

I have a professor who has a niece that has Celiac disease and she has been very helpful and understanding about my problems. I ended up dropping back to a part time status at school so I could keep up. My other professor has also been great about helping me out. I have a lot of support from my family and friends...my sister in law is a PA up at Mayo Clinic and has been sending me tons of information on it so I have reading to do for days!! I am also doing a lot of on line research as well when time permits.

There are times that I feel so alone, that I am the only one with the disease. I will admit that I do have some signs of depression so I am also going to seek the advise of my doctor again.

In Topic: At A Loss

12 April 2004 - 05:15 PM

Hey quick question???? Just out of curiosity...... How were you DX? through blood work, or biopsy or both????

I had a gastroscopy/colonscopy done at first with the biospis and then I had a blood panel done and 4 of the 5 panels came back positive for celiac disease.

Here is my long long story.

I started having problems back in January...I thought I had a stomach flu of sorts....I let it go and finally in February, I was so sick that I went to Student health down at the University of Iowa campus, where I am a student. The doctor down there was of no help to me! She gave me a prescription for an anti-biotic and sent me on my way. She did a blood test for the most obvious things. I went back after 3 days because I was still incredibly ill. She extended my prescrition for the anti-biotic. I was frusterated and I came home and I cried and cried for days. I went to class but I couldnt make it through a whole day. I was so exhausted all of the time and I became depressed. My husband took me to a pyschatrist (sp) because he thought I was depressed. I convinced the pyschatrist that I wasnt depressed. I let it go some more. I vomited probably 6-8 times a day...I had constant diarrhea (I know, EWWW!!)

My mother in law came by one morning and took me to my family doctor because I was so sick that I was laying on the bathroom floor so weak that I couldnt even make it back to bed. So, she called my doctor and got me in. He actually listened to me and then weighed me...in the 3 weeks that I had been sick up, I had lost 20 pounds. My clothes where falling off me....he refered me to a GI but first he had done a barium swallow test on me. I did have signs of GERD so I got put on an acid blocker as well.

Well, I went to my appointment with the GI who set up the scopes. They did the biospis, which came back abnormal. They sent me to get a blood panel done and 4 of the 5 panels came back postive for celiac disease.

So, that is what has happened in a nut shell.

In Topic: At A Loss

12 April 2004 - 12:12 PM

Thanks for all of the responses. I met with the dietcian today she was a wealth of information for me!!! She gave me list after list put out by various companies of what does and doesnt contain gluten. One of our local grocery stores even has a list of all name brand and store brand products that are gluten free. She said though by 2006, food manufactures are going to be required to put on the lable whether it contains gluten or not.

From the list she gave me, I have decided that I will compress it to the products that I like the most and carry it around in my purse. I am a busy person but I am willing to make the sacrafises (sp?) for this. I also bought 2 cookbooks today that are gluten free as well. I plan on sitting down with them tonight and reading through them.

My daughters are 3 and 1 1/2. I am going to say something to the doctor when I have them in for a check up to see about getting a blood test done for them to see if they are carriers or what the deal is.

The dietician also suggested I get a bone scan done for bone density since I seem to be lactose intolarant as well.

I plan on doing some extensive research on the subject during my free time. My husband and I also agreed that we should buy a seperate toaster and pretty much everything that could become cross-contaminated.

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