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Chuck8268

Member Since 09 Mar 2007
Offline Last Active Feb 22 2010 07:58 AM
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Posts I've Made

In Topic: Anyone From Pa.

22 February 2010 - 08:00 AM

Any other Celiacs live in Pa? I live just outside of Philadelphia..

HI

south central Pa here

In Topic: Question For Any Really Underweight Celiac's?

07 September 2009 - 01:40 AM

Wow, nearly 60 pounds. I would be happy to gain half of that!!

Did you put forth any extra effort to put on the weight? I am also interested about your timeline. You said 6 months; how soon did you really start noticing the extra pounds? Was it a pretty steady gain over the 6 months?

Thanks
Shane



Shane
I kinda did put in extra effort to gain.Lots of potatoes,rice,etc.But we are all different in healing.My theory anyways.All I know my gain just stopped,like a light switch when I got to that certain weight.Hope this helps you

Chuck

In Topic: Anyone From Pa.

03 September 2009 - 03:25 AM

I'm near Altoona. Anyone else?


somerset/bedford here

In Topic: Need To Find A Good Dr In Florida--please Help!

01 September 2009 - 07:59 AM

Hi There,
I live east of Tampa and encountered the same problem. I have yet to find a GI doctor in my area who is well educated on Celiac Disease. I travel to Atlanta to see Dr. Cynthia Rudert 2 x per year (she was my former doctor and is the only Celiac Specialist in the southeast). Since you have a formal diagnosis and strong family history, you may want to seriously consider seeing her. She will spend quality time with you, is extremely knowledgable and a great listener!
Please let me now if I can help you further!
Warmest regards,
Sylvia Ann


I found out the NEWER Doctors seem much more well aware of celiac than the oldtimers. My new doc ran celiac test First after she saw my previous testing done by my old doc

Chuck

In Topic: Recovering Celiacs With Demanding Lives

01 September 2009 - 07:53 AM

Curious question...are there any individuals working a very demanding work environment (or going to school to work) that are at the same time trying to recover from celiac disease (as well as other intolerances)? I would really just like to sound off some thoughts and meet other nurses with this condition.

I'm a nursing student myself (graduating in May 2010), and some days I feel like I have such a hard time trying to stay focused with the brain fog, or dealing with the constant fatigued feeling, headaches, etc. And no, I am not eating gluten...I feel like I'm still recovering, but of course most of us know that the days of recovering (shall we call it a "gluten detox" on our bodies?) are some of the hardest. I know that I'm physically present in class and clinicals, but at the same time it feels like I'm delusional. While I'm sitting there looking "fine" to other classmates, I'm a train wreck on the inside trying to fight against my body so that I can just learn the material that I need to. It takes me forever to study (which I hate, but I do what I have to), and on top of that I have other personal family issues that I'm trying to work out. On the "bad" days, on top of feeling crappy I put up with feeling like a complete ditz when my closest friends keep asking me, "are you okay?" or seem to have trouble following my train of thought. I'm soooo scared about graduating and "going out into the real world" in just 8 months from now. It's not that I'm nervous about not knowing the material...I'm more nervous about how long my body is going to play games with me! Some days I'm fine, and many others I'm not; hopefully that's just part of the recovery process. Just praying that I'll be "fully recovered" by the time I graduate!! It's only been a full week ago since I seriously started evaluating EVERY SINGLE thing I've been eating or drinking, and knowing that it's gluten, caesin, yeast, and egg free.

So that's my story. I'm not looking for advice or suggestions; I just wanted to be open and honest about how things are going with me. I want to hear about your situation and how you're coping with being in recovery on top of working in the profession, going to school, etc. Vent any frustrations (if you have any). For those of us in the field of healthcare, we can mutually agree that we decided to work/go to school at least for the partial degree of interacting and helping others with their own ailments. For some of us, maybe our diagnosis and own battle with our bodies has encouraged us to hold a greater appreciation for others who are sick or suffering (it has for me, anyway).

Anyway, if you're interested in sharing anything or just talking about things that you KNOW others wouldn't understand (unless they've been where we've been), I invite you to just sound off. It would be so interesting for me to hear anything you say...and comforting to know that I'm not alone in this (which I feel like I sometimes am).

~ LadyC

Hello Ladycyclist

I constantly had brain fog,unable to focus,in my case,I rapidly got better
(hence a 50 pd. weight gain in 6 months) Everyone is different. Be patient your good health will come back. Unless there is something else. If I remember your the person from York,Pa.?And your in nursing school, wow,the eating part must be very difficult !

But, I have to make my own meals (barely have time) and the cycling keeps my mental-state sharp,along with physical

You keep at it,keep gluten-free,and try to find time to CYCLE!

Chuck