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Member Since 01 Jan 2004
Offline Last Active Feb 22 2010 09:45 AM

Posts I've Made

In Topic: Other Autoimmune Disorders

17 April 2009 - 08:53 PM

My mom had polymyalgia rheumatica, an inflammatory muscle disorder (different than fibromyalgia). She tested negative for celiac, but went gluten-free with me the day I got my celiac diagnosis. She no longer has any pain from polymyalgia like she did before and no longer takes any medication for it, unless she has gluten -- then the symptoms come back!

In Topic: The Really Great Food Company

17 April 2009 - 08:43 PM

Don't give up on mixes! They are a huge time-saver and there are many that are really good.
  • I am a huge fan of Pamela's mixes. They are versatile, with lots of different recipes on the package and they always come out great-tasting (in my experience).
  • I also think 1-2-3 Gluten-Free is excellent.
  • 'Cause You're Special makes good ones
  • A small company in Oregon called Laurel's Sweet Treats is great.
There are others, but these are my favorites.

In Topic: Diagnosing celiac disease

17 April 2009 - 08:37 PM

That's pretty much it, unless they want to check her vitamin levels for deficiency due to celiac disease. Vitamin levels should normalize on a gluten-free diet anyway, so be careful about any supplements if she is already taking, especially iron. You probably won't get much help or advice from your doctor about living gluten-free but there are lots of resources on the web!

In Topic: Genetic Predisposition, gluten-free Since Birth -- Now What?

16 April 2009 - 09:36 AM

The problem with just giving a child a piece of bread to see what happens is that it can take days, months, even years for symptoms of gluten intolerance or celiac to manifest. During that time, there could be damage happening that are not obvious gastrointestinal problems like vomiting or diarrhea. It could be subtle behavioral or neurological problems.

I am curious what "gluten allergy" tests gfb1 recommends? A child cannot be tested for celiac or gluten intolerance if they haven't been eating gluten. It could take months or even years of eating gluten to test positive on the current accepted medical tests for celiac. A test for wheat allergy (IgE antibodies) can be done by an allergist, but this is a whole different thing. What is a simple gluten allergy test?

In Topic: Genetic Predisposition, gluten-free Since Birth -- Now What?

15 April 2009 - 09:49 PM

Both my daughters have been gluten-free since the womb -- they are now almost 5 and 3. We are a gluten-free household and I agree with many people that have said already that the inconvenience of having a child gluten-free outweighs the risks associated with giving him gluten. I strongly believe that I am preventing possible health problems that have been associated with gluten and that are seen in many kids these days -- speech delay, attention problems, stomach aches, moodiness, crying easily, diarrhea, constipation, growth delay, night terrors. Even diabetes gets diagnosed before celiac when it could possibly have been prevented. Don't worry about any stigma attached to having your child gluten-free in school or anywhere else -- do what is right for the child!

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